Ohio State's MS Center
Ohio State's MS Center
Anyone have any experience there?
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Loobie
- Family Elder
- Posts: 2198
- Joined: Mon Sep 11, 2006 2:00 pm
- Location: Dayton, Ohio USA
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No from this Buckeye who went there! You hear things about it, that it's good, yada, yada. But I'm sure like everywhere else the experience is going to be personal. But you know they aren't hurting for dough since they are just so huge, so one would think they'd attract the 'brightest and best' from the area. Where you from anyway?
I went there for a short time before I moved to Naples. It was okay but at that time (over 6 years ago) they were overwhelmed and short staffed. I don't think that is the case any longer.
FYI-The Accelerated Cure Project and The Ohio State University now have a repository at OSU. The information is:
The Ohio State University Medical Center
Multiple Sclerosis Center
1654 Upham Drive, 445 Means Hall
Columbus, OH 43210
Principal investigator: Michael Racke, MD
Study coordinator: Lisa Hafer
Study coordinator phone: 614-293-7877
Study coordinator e-mail: acp-study-osu0807@acceleratedcure.org
If I were in Ohio now I would definitely make an appointment at OSU. There seems to be quite a bit of research going on.
Lori
BTW When I come to Columbus this summer I am planning on going into the the center to donate into the ACP repository. I was never able to do so before as there were no centers anywhere close to me.
FYI-The Accelerated Cure Project and The Ohio State University now have a repository at OSU. The information is:
The Ohio State University Medical Center
Multiple Sclerosis Center
1654 Upham Drive, 445 Means Hall
Columbus, OH 43210
Principal investigator: Michael Racke, MD
Study coordinator: Lisa Hafer
Study coordinator phone: 614-293-7877
Study coordinator e-mail: acp-study-osu0807@acceleratedcure.org
If I were in Ohio now I would definitely make an appointment at OSU. There seems to be quite a bit of research going on.
Lori
BTW When I come to Columbus this summer I am planning on going into the the center to donate into the ACP repository. I was never able to do so before as there were no centers anywhere close to me.
Lew,
So you went there at some point, and the experience wasn't positive?
I'm in Maryland - I know, why would I want to travel so far? Well, I've been going to UMD here, but I worry they are just too laid back in their treatment approach. The other option is Hopkins, which obviously has a good name, and I have heard good things about their MS center. But they aren't real big on clinical trials, and I think that might be a good option to have. So, I checked the web, and it seems like for going out of state, it's either west to Columbus or south to Tennessee. A drive to Columbus would be long, but not prohibitive. I've checked OSU's website, and it seems like that have a good number of nuero's, and a lot of stuff going on. Don't know how good they are, though.
Loriyas:
Thanks for the info.
So you went there at some point, and the experience wasn't positive?
I'm in Maryland - I know, why would I want to travel so far? Well, I've been going to UMD here, but I worry they are just too laid back in their treatment approach. The other option is Hopkins, which obviously has a good name, and I have heard good things about their MS center. But they aren't real big on clinical trials, and I think that might be a good option to have. So, I checked the web, and it seems like for going out of state, it's either west to Columbus or south to Tennessee. A drive to Columbus would be long, but not prohibitive. I've checked OSU's website, and it seems like that have a good number of nuero's, and a lot of stuff going on. Don't know how good they are, though.
Loriyas:
Thanks for the info.
Good to know, Lori. I drove to Atlanta about a year and a half ago to the one there. They haven't called me to come back yet, but it is good to know that if they do I can opt to drive 2 hours rather than 8 or 9. My daughter and I had a great time in Atlanta and it was well worth the drive, but Columbus certainly makes more sense for me.FYI-The Accelerated Cure Project and The Ohio State University now have a repository at OSU.
PX
The reason I was asking, my dentist has MS and she uses Vanderbilt. She says she has a good doc but he is all about her staying on the Rebif since her MRI's are better now. I think Dr is Dr Moses.
I feel for her because the Rebif is making her feel so very bad.
Cat
The reason I was asking, my dentist has MS and she uses Vanderbilt. She says she has a good doc but he is all about her staying on the Rebif since her MRI's are better now. I think Dr is Dr Moses.
I feel for her because the Rebif is making her feel so very bad.
Cat
Holly - Shine On You Crazy Diamond - Pink Floyd
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
Thanks for the info CF.
Maybe I'm asking for too much, or looking for something that's not there. But when I complain to my MS center about new symptoms (admittedly fairly minor) or my last MRI showed a new lesion, their response is, "well MS progresses, so you just have to expect that. And the standard injectibles aren't advertised to do that much, so you can't say the medicine is failing to work and a switch is in order."
Now, I could almost understand if they said "one new lesion isn't too concerning, and not reason enough to change meds." But that's not what I'm hearing. And, since I'm still fairly early into all this fun, I'd hate to miss a window of opportunity for being aggressive with treatment.
Anyway, like I said, maybe I'm expecting too much.
Maybe I'm asking for too much, or looking for something that's not there. But when I complain to my MS center about new symptoms (admittedly fairly minor) or my last MRI showed a new lesion, their response is, "well MS progresses, so you just have to expect that. And the standard injectibles aren't advertised to do that much, so you can't say the medicine is failing to work and a switch is in order."
Now, I could almost understand if they said "one new lesion isn't too concerning, and not reason enough to change meds." But that's not what I'm hearing. And, since I'm still fairly early into all this fun, I'd hate to miss a window of opportunity for being aggressive with treatment.
Anyway, like I said, maybe I'm expecting too much.
Re: Ohio State's MS Center
patientx wrote:Anyone have any experience there?
Yes I actually am a patient there. I was dx in Dec 2008, I live in Columbus. Luckily, OSU's MS clinic is very close to my home so I don't have to travel far. All of the Drs at the clinic are very qualified and have done lots of research, etc.
Let me know if you have any ?'s
Mommy2em:
Thanks for the response. If you don't mind my asking, which doctor are you seeing there? And what is their general approach to treatment (of course, each doctor there may be different)? Is it the standard "here are the FDA approved injectables - pick one." Or do they take a more active approach?
Thanks for the response. If you don't mind my asking, which doctor are you seeing there? And what is their general approach to treatment (of course, each doctor there may be different)? Is it the standard "here are the FDA approved injectables - pick one." Or do they take a more active approach?