Hey Jeff,
the bikers sound like totally rude people! You'd think they'd be tired! I feel so sorry for Cheer, and man, she is doing the return 14 hour trip on Wednesday too, talk about putting your body on the line!! Geezz. That is really nice of her to do that and thanks for supporting her going too Jeff! She's gonna be tired for a week.......
We are all grateful for her effort.
these passionate people sharing with one another makes me absolutely tingle with excitement, honestly. I have such great hope for them to discover together the mysteries of this new model and advance it in a way that is efficient and lacks the usual literature war that goes like this:
"MS is an autoimmune disease and we found MOG proving that these lesions are immune caused..............'
and researcher 2 comes along 6 months later
"Ms is considered to be an autoimmune disease though that has never been proven recently a colleague has claimed MOG was seen. In our present study we found no MOG....."
This kind of literature back and forth on such minutiae never makes it to the clinical (patient in the clinic who needs treatment) level and results in what I call "MS trivia"; nonsense information that makes us think something is being accomplished in the scientific fields when in fact it has not resulted in any information that can have clinical application.
No one seems to ask "is MOG present in any other disease?" as if its presence in MS is "obviously" indicative of an autoimmune process or of the MS process specfically, rather than asking if it may simply be an artifact of immune activity of any kind INCLUDING normal response to injury.
yet look at this:
The take-home
message is that most of these findings represent nonsense
antibodies that measure the antigenicity of the
proteins involved more than a specific root cause of
MS. The antibodies may reflect the increased immune
response of MS patients more than the pathogenicity
of the antibodies,
FROM HERE
what this person is saying is that these MOG and other myelin protein antibodies are just part of the fact there is damage here that the body is clearing up in a response and not necessarily that it CAUSED MS.
So that is an example of how business has been done in scientific circles.
never mind if it takes decades to get anything out to the patients..... that does not seem to bother them
The incredible strength of conviction and commitment of Dr Zamboni, Dr Dake Dr SImka and these other research team members is amazing.
These people are coming to a common table to share their information collaboratively and share not only scientific findings so others can learn from it, but also to discuss a strategy for getting this out to people the fastest way possible; how best to release the information, where etc, so we all can benefit at the clinical level. This is what medicine should be.
I did not expect this in my lifetime, and it is here. I am just incredulous at this....
I can't wait to hear what Cheer says...
I am west coast US and England is 8 hours ahead of us, Bologna must be...what ? 9? so it is 8pm here so Cheer should be sleeping, let's hope the Norwegian bikers didn't go to Bologna for some reason
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
When will the papers / data presented at this conference, be made available?