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- Family Elder
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In the regimens forum I have "Marie's stents CCSVI" and document my recovery there. would that work if everyone did it?
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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- Family Elder
- Posts: 1161
- Joined: Thu Sep 14, 2006 2:00 pm
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- Arcee
- Family Elder
- Posts: 338
- Joined: Wed Jan 05, 2005 3:00 pm
- Location: Massachusetts, USA
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Well we did have separate postings for people under the CCSVI forum but the 'patients log' thread confused that, I think. Personally, I like the idea of the separate logs, but hope we keep them in the CCSVI forum so all this news is easily accessible in one place. For example, when I access away from my desk, I just click on the CCSVI forum and explore from there so I often miss Marie's posts in the 'Regimens' area. And maybe the patients log can revert back to being for the basic baseline information, or maybe it is not necessary. Just my opinion...
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
I'm all prepared to be the snotty "good girl." Steve's imaging and intervention dates are September 28 & 29, and I've already prepared the first post of his individual treatment/recovery thread on MS Word. The opening post will include his MS history and symptoms (which should be handy for reference when anyone reads the treatment and recovery info). My intention is to make the prepared post within a few days prior to the trip to Stanford.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
Well OK teacher's pet showing everyone how to be prefectI'm all prepared to be the snotty "good girl."

you aren't excited are you?
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
will it be OK if I keep to my regimens thread? would you like me to add a tickle here 'added to my regimens?" I'm the queen of blab-o-rhea I need acres 

I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics