CCSVI and Slovakia, Europe

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Ernst
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Post by Ernst »

Is it written by dr. Simka? It looked very good and clear instruction? I shared it to everyone in Finland, so they could show it to doctors/radiologists..
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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whyRwehere
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Post by whyRwehere »

I couldn't read it because I don't have word on this computer.
ErikaSlovakia
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Post by ErikaSlovakia »

Ernst wrote:Is it written by dr. Simka? It looked very good and clear instruction? I shared it to everyone in Finland, so they could show it to doctors/radiologists..
I am not sure who wrote it, but Dr. Simka sent it to me last night.
I hope all doctors will understand it.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Post by ErikaSlovakia »

whyRwehere wrote:I couldn't read it because I don't have word on this computer.
How can I help you with that?
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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CureIous
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Post by CureIous »

ErikaSlovakia wrote:
Ernst wrote:Is it written by dr. Simka? It looked very good and clear instruction? I shared it to everyone in Finland, so they could show it to doctors/radiologists..
I am not sure who wrote it, but Dr. Simka sent it to me last night.
I hope all doctors will understand it.

Erika
Thank you very much Erika, I'm going to print it out though, but it IS fascinating and helps us understand how things change via position.

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CureIous
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Post by CureIous »

whyRwehere wrote:I couldn't read it because I don't have word on this computer.
Do you have a kinkos near you? It's easy to send it to them and they'll print it out for you. Otherwise would be happy to snail mail you a copy if you like. PM's always open.

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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whyRwehere
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Post by whyRwehere »

Thanks...I sent it to my husband's computer...but then I thought, why didn't he just go to the link, duh.....
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muse
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Post by muse »

Thanks dear Erika, thanks dear Dr. Simka, it’s just wonderful how it works!!! Simplex put the article “How to perform doppler examination in a multiple sclerosis patient” (Dr. Simka) instantly on our website. Thanx simplex you are a gem as well! :D
Best
muse

Article by Dr. Simka: http://csvi-ms.net/en/content/how-perfo ... t-dr-simka
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cheerleader
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Post by cheerleader »

TERRIFIC! Thanks to all...I've added a link to the Facebook page, as well.
nice work!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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CNClear
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Post by CNClear »

Erika...
Thank you! I have an appointment with a vascular surgeon on October 5th, here in Atlanta, Georgia, and I will give it to him. I think it may help them to understand the whole concept better after reading Simka's paper.

I finally got a call from Alex and sent her all my information (dr. reports, CDs of MRIs, etc) and now I am waiting to hear from Dake. Alex said that she would probably be scheduling me in late November.

I am in awe of all you have done and all you are still going through! I've been following your story and sending you energy and prayers...I wish it were easier for you, but surely, you must know that BECAUSE of you and what you are going through now, that many many others will have it much easier...I think that it a wonderful thing that you are doing and I am sending more energy and good thoughts for you to continue until you get all the relief you need and deserve!

Wouldn't it be grand if we could all get together someday to celebrate when MS will no longer be the monster that it is today! Maybe we can have a virtual party and socialize over Skype?

Lisa, aka CNClear
RRMS dx 1983, age 50
Waiting for Dake's call! (singing California, Here I go…)
ErikaSlovakia
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Post by ErikaSlovakia »

CNClear wrote:Erika...
I've been following your story and sending you energy and prayers...I wish it were easier for you, but surely, you must know that BECAUSE of you and what you are going through now, that many many others will have it much easier...I think that it a wonderful thing that you are doing and I am sending more energy and good thoughts for you to continue until you get all the relief you need and deserve!

Lisa, aka CNClear
RRMS dx 1983, age 50
Waiting for Dake's call! (singing California, Here I go…)
Hi Lisa,
thank you! Yes, I do it for the others. I also communicate with some doctors in Slovakia and I am sending them some important information.

Right now all my muscels hurt a lot. Every movement is painful. I did not have rest after coming back from Bratislava. I sent my mother to spa for 3 days and bought her one part of new kitchen. So I have a lot of work, she is coming this afternoon. She does not know anything. She told me, if I buy it she would kill me :D
But tomorrow I must have some rest, because on Tuesday is my next trip to Bratislava to another hospital. They also want to do the USG to me. I sent the doctor the instructions, so I will see.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Post by ErikaSlovakia »

Hi tomorrow is my next trip to hospital in Bratislava:
http://www.nusch.sk/en/
They will do USG to me. I have e-mailed them the instructions.
I am still tired and broken from the last trip. I am lucky I go to see only one doctor and then I travel back home by bus.
I think this hospital might start to do the OP. It is the best hospital for heart surgery in whole Slovakia.
I will post the details from the trip tomorrow.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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patientx
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Post by patientx »

whyRwehere wrote:I couldn't read it because I don't have word on this computer.
Not to get off topic, but for those that don't have Microsoft office, you may want to look into a program called OpenOffice. This program is open source, and you can download it for free at www.openoffice.org. It has a full suite of applications, including a word processor that will read and save files in Word format. It also has a presentation program that can read PowerPoint slides, as well as a spreadsheet program.
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whyRwehere
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Post by whyRwehere »

patientx wrote:This program is open source, and you can download it for free at www.openoffice.org. It has a full suite of applications, including a word processor that will read and save files in Word format. It also has a presentation program that can read PowerPoint slides, as well as a spreadsheet program.
Thanks px
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Needled
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Post by Needled »

Erika, you are absolutely amazing. It sounds like you could use another infusion of TIMS energy from around the world to help you tomorrow. So here's your first bucket load, straight from me to you.
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