CCSVI and Slovakia, Europe

ErikaSlovakia · Post by **ErikaSlovakia** » Mon Sep 28, 2009 10:16 am

Needled wrote: It sounds like you could use another infusion of TIMS energy from around the world to help you tomorrow. So here's your first bucket load, straight from me to you.

Yes, thanks. I do not feel OK, but I will make it, I am sure, without relapse, of course!

Erika

whyRwehere · Post by **whyRwehere** » Mon Sep 28, 2009 11:31 am

good luck Erika...have a cup of tea, that always makes me feel better.

mrhodes40 · Post by **mrhodes40** » Mon Sep 28, 2009 12:41 pm

Erika,
love and light to you sweet soul!! best of luck to you!!

Sharon · Post by **Sharon** » Mon Sep 28, 2009 12:45 pm

Erika!

My thoughts are with you - you are such a strong personality, I doubt this will get you down.

Sharon

CRHInv · Post by **CRHInv** » Mon Sep 28, 2009 3:48 pm

Erika, Bless your heart. You are such an inspiration! Know that I will be sending tons of good energy your way tomorrow for your trip and the next day for some rest. Take good care, Beth

CNClear · Post by **CNClear** » Mon Sep 28, 2009 7:25 pm

Sending you good thoughts and lots of good energy for your trip tomorrow!

Maybe it will not be long before your bus trips wil only be for something fun!

Here comes the energy from Atlanta, Georgia.....

Lisa aka CNClear

ErikaSlovakia · Post by **ErikaSlovakia** » Wed Sep 30, 2009 7:55 am

Report from my trip.

First of all, THANK you very much for you energy!

It was hard for me but it was very important and positive day.

1. I went to see Dr. Bzduchova - angiologist.
She checked my veins on my legs visually. It was OK, I really do not feel any problems with that.
2. She sent me to her nurse to do the Doppler of my veins on my legs. It was OK.
3. She sent me for EKG. It was OK, only my pulse is to high as usually.
4. She also sent me for Echo - cardiogram of my heart. It was OK, I just have small prolaps, which means nothing.
5. She also sent me to Dr. Mistrik, who did the Doppler of my jugulars. He did not know anything about CCSVI. He had only little time to read notes from Dr. Simka, but it was not clear enough for him. As he noticed I know quite a lot, he asked me many questions. He was not negative. He "only" found the problem with my valve in my jugular vein.
6. I went to Dr. Bzduchova with all results. She asked me to inform her about my case, as she is very interested in it. She told me to go for CT - I told her I did twice, but I tis not possible to see the problem with that. I also told her I went for MRV with 1,5 Tesla MR, without SWI, again, there was nothing.

I did not have to pay anything. Of course, I am going to send them many information.
This "meeting" was very important as it is the best hospital in Slovakia.

So now, I am able to communicate with 3 most important hospitals in western part of Slovakia.
I am sure it will be very helpful for the other patients.

I just was so tired yesterday, I was not even able to turn on my laptop. I feel better now, but I need some rest.

So far, no news from Dr. Simka.
Erika

whyRwehere · Post by **whyRwehere** » Wed Sep 30, 2009 10:23 am

You are a trooper Erika, have a cup of tea and put your feet up.

ErikaSlovakia · Post by **ErikaSlovakia** » Wed Sep 30, 2009 10:27 am

HOT NEWS!

Rici had right now phone call from Dr. Simka.
Rici should be in hospital in Katowice on October 12th and his surgery will be on October 13th.
So, it is the FIRST patient of Dr. Simka.
I do not know any other details.
So I should move my ... and go to see a neurologist in my town to ask for MRI. I want to see my brain before and couple of months later after the OP.
I should be the second. It is still not sure as I do not have proper MRV done and we do not know where all my problems are.
I must also contact prof. Stvrtinova to get ready the papers for the health insurance company tomorrow.

I can not have any rest

I am afraid I will have rest on the operation table in Katowice

Erika

ErikaSlovakia · Post by **ErikaSlovakia** » Wed Sep 30, 2009 11:35 am

A Slovak MS magazine has just asked me to write short story about CCSVI. How I started...
They have also asked the Slovak radiologist who is in contact with me and has the first blog on Slovak internet about CCSVI to write an article for them.
This is great.
Erika

Ernst · Post by **Ernst** » Wed Sep 30, 2009 11:41 am

Wow wow wowwwoooo... that is really wonderful! You have done incredible work with ccsvi - isn't it like a miracle what one human can do - to spread the idea, make things happen? It needs big HEART to make things happen, like Erika.

ErikaSlovakia · Post by **ErikaSlovakia** » Thu Oct 01, 2009 9:42 am

I will have MRI of my brain and spine on Oct. 27th as I want to have it before the treatment in Poland. It is only 33 km far from my town. I can make it by car.
I hope to have the surgery not many days after.

I only called a neurologist from my town. I gave her some information 3 weeks ago. She wants to help me a lot. She is positive about it. She has managed the MRI for me very fast.
Trust me, it is usually not that easy in Slovakia. I do not have to pay for it.

Erika

ErikaSlovakia · Post by **ErikaSlovakia** » Thu Oct 01, 2009 11:53 am

I am luuckyyy girl!

I just have got an excellent e-mail from Dr. Simka.
He will tell me tomorrow for sure, but my LUCKY day will be at the end of October.
Sorry, but I must go to dance now!

I will tell you more tomorrow. Bye, bye.
Erika

Rokkit · Post by **Rokkit** » Thu Oct 01, 2009 12:44 pm

All I can say is wow, this is incredible. I guess now I'm getting very curious as to whether or not Dr Simka starts seeing azygous issues.

CRHInv · Post by **CRHInv** » Thu Oct 01, 2009 2:14 pm

Woohoo! Here's some dancing energy! I am dancing over here for you too! Woohoo!