You have got to be f###### kidding me. I think moving to a cabin in the woods and letting whatever happens happen is looking like a good option.
http://www.bloomberg.com/apps/news?pid= ... xJwE07QFq8
Fampridine another flop?
Many MS'rs were looking forward to the drug coming on the market (even thought it was going to cost you an arm and a leg!)fampridine
To the FDA... I want to TRY this drug.....it may work, it may not, but please, at least give me the opportunity to try it at my OWN risk!!! I tried to get in a trial 5 years ago and was told I walked too well. Now I don't walk that well. Just let me TRY it. Very frustrating when I am willing to risk it.
Ellen
Ellen
-
CureOrBust
- Family Elder
- Posts: 3374
- Joined: Wed Jul 27, 2005 2:00 pm
- Location: Sydney, Australia
Re: fampridine
I found a local compounding pharmacist that made LDN for MS'rs, gave them some documents off the net on 4AP, spoke to my GP (this is where I think I was very lucky), and within a few weeks I had a slow release compounded 4AP.ellen wrote:To the FDA... I want to TRY this drug.....it may work, it may not, but please, at least give me the opportunity to try it at my OWN risk!!! I tried to get in a trial 5 years ago and was told I walked too well. Now I don't walk that well. Just let me TRY it. Very frustrating when I am willing to risk it.
Depending on where in the world you are, there may be a pharmacist that already compounds it for others. Mine had never heard of it before, but easily sourced it from the USA.