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Dr. Claude Franceschi- Director of the Paris Hospital Vascular lab spoke next on the Hemodynamic Factors of CCSVI ... He believes the answer to CCSVI may lie in postural therapy, or a direct change in pressure via the Liberation technique or stenting.
Just had my first NUCCA treatment. I had X-rays done etc.
Apparantly my neck is quite twisted.
She has done a couple of adjustments on me today but because I have reacted very strongly to other treatments in the past she wants to take it slowly.
Straight after the treatment I had a mild headache and felt a bit spaced out but I am feeling better now.
Just wanted to bump this thread - for those who cannot yet get surgery, or decide NOT to have it done, I think that we may need to bring in some specialists - physical therapists perhaps, from sports rehab maybe ... who can help determine ideal posture for reducing extrinsic pressures on our veins, and exercises to safely work toward this ...
I am going to Stanford in a week or so, and whether I get stented or not, I plan on getting into a rehab therapist and getting started on postural re-training, whetehr that means wearing a collar to doing exercises or changing my workplace ergonomics ...
Dr. Claude Franceschi- Director of the Paris Hospital Vascular lab spoke next on the Hemodynamic Factors of CCSVI ... He believes the answer to CCSVI may lie in postural therapy, or a direct change in pressure via the Liberation technique or stenting.
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Zap can you point me to a source and a contact address for Dr Claude?
I had my first exacerbation about 4 days after I worked an all nighter at the pc and slept for a couple of hours propped up between two office chairs. The next day I felt sharp tingling in my toes and a few days later my whole leg and part of my face went numb. I went to emergency and eventually got an mri and a dx of ms although my spinal was negative.
I've been working at the pc for years and have always had bad posture and sitting habits.
I saw my upper cervical x-rays today after visiting my chiro (who I haven't seen in years). She said my C-curve of the neck has improved from my x-rays of 8 years ago and that I have slight scoliosis. My muscles in the upper cervical region and lower back (where I fractured my spine several years ago) were tight. I notice I sometimes get tired of holding my head up, which she said is because these muscles are working too hard, all the time and is common in MS.
She did an upper cervical adjustment, but I haven't noticed any major changes in tingling or alignment yet.
She recommended we alternate using our computer mouse with the right and left hands (change every few days or so) as a way not to get too set in sitting only one way in front of the computer.
I'm going back this Friday for another adjustment.
After reading posts on here about atlas alignment and watching the Montel video on youtube, I went to see a chiropractor yesterday. I have also been having pain in my upper back that I hoped he could help with. I was pleasantly surprised when he had heard of the CCSVI theory through his other patients with MS! Amazing isn't it when my gp was totally unware of it and my neuro almost as ill-informed, but then I think chiros are generally more open to 'alternative' remedies due to chiropractic not being considered a serious medicine by some doctors etc.
He found I have some misaligned ribs and that my atlas was indeed not right - and he pinpointed a place just under my jaw, in the same place that I have always felt there is something wrong with my vein/artery, where if I press I can hear a noise in my ear. I am also carrying ten pounds more weight on one side of my body. I am sure none of this can be healthy for the blood flow through my neck and for my nerve function.
I went back this morning for my first treatment and had my back and neck very satisfyingly (and painlessly) cracked. My back feels so much better and I feel I am walking taller and feel generally brighter and healthier. He explained there won't be a quick fix and I'll need to keep going twice a week for at least a month, and then once a week for some time more, but I am really hopeful that this is going to do me some good.
I think those of us who are choosing to wait for CCSVI treatment to be available in this country should visit a chiropractor to get our atlases and necks checked out. It feels good to be doing something pro-active rather than sitting around waiting.
Extreme newby here after months of lurking and learning.
My first symptoms came immediately after spending several hours looking to the right and down out of an airplane window on a search and rescue mission. A very sharp chiropractor discovered that C1 and C2 were misaligned and gradually realigned them over about three months.
That chiropractor retired and others I have visited do not diagnose for that and seem to think it is necessary. A few years ago I found an upper cervical specialist in Boulder, Colorado who does wonders for me about once per six weeks.
All of the neuros I have told about this have said that improvement from chiropractic is impossible and the symptom relief I feel after treatment is just a coincidence. Fortunately for me, that coincidence has occurred every six weeks for the last five years.
I now suspect that the alignments are relieving pressure on a vein. I am waiting for the call from Buffalo to get a new view on the situation.
With huge thanks to Joan and the many other leaders on this forum.
My MS symptoms were initially diagnosed as a Repetitive Strain Injury (RSI). Whenever my head was tilted in a downward position, the tingling in my fingers and arms increased. Postural therapy has helped (including inclined bed therapy)
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