CCSVI on Daily Kos

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
zap
Family Elder
Posts: 326
Joined: Mon Apr 20, 2009 2:00 pm
Contact:

CCSVI on Daily Kos

Post by zap »

Pardon me if this was posted elsewhere, I may have missed it:

http://www.dailykos.com/story/2009/12/8/12328/1273
User avatar
Ruthless67
Family Elder
Posts: 422
Joined: Tue Oct 27, 2009 3:00 pm
Location: Montana, USA
Contact:

Post by Ruthless67 »

Zap,

I enjoyed reading his post very much, thanks for the link.

Lora
User avatar
CureIous
Family Elder
Posts: 1262
Joined: Tue Jul 14, 2009 2:00 pm
Location: Riverside, CA
Contact:

Post by CureIous »

So it begins...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
MS_mama
Family Elder
Posts: 107
Joined: Mon Nov 09, 2009 3:00 pm
Contact:

Post by MS_mama »

this bit cracked me up--so true:
In the US, where the drug makers are treated more like overlords, the MS Society was more reluctant. In fact, there has been dramaticaly less press about CCSVI in the US than in Canada. Imagine that. But, they finally came around and are at least paying lip service to funding research. I'm not convinced by this statement that they actually will fund it, in fact the impression I get is that they're humoring us:
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
User avatar
Loobie
Family Elder
Posts: 2198
Joined: Mon Sep 11, 2006 2:00 pm
Location: Dayton, Ohio USA
Contact:

Post by Loobie »

Cheer has this link up on the CCSVI Facebook page. I LOVED this guy's writing. This was a good one, and even though he takes a few jabs (it is the DailyKos after all :lol: ), he pretty much throws a pretty good net around the whole thing. I loved his take. He pretty much sums up, I think, how alot of us feel. Very well done!
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”