Dovechick wrote:Sorry Johnson and Fiddler, but we seem to have slipped in ahead of you both. Not sure how but we have an appointment in Feb with Dr Simka et al. Maybe it is because Ella is at a turning point in her disease or maybe he had a cancellation or maybe even he is doing it according to where you come from. Who knows...
But one thing I know I am extatic, you have no idea what a relief it is to know that my daughter has a chance of halting the progress of the disease and maybe recover a bit of physical ability. Ella often says it is harder for those who watch than for herself.
Thank you to all you people who have gone before us and posted images, links to TV programs, and details about accommodation and transport. Now all I have to do is learn a bit of Polish. Ella has the advantage on me here as she has been to Poland a number of time when she worked in the glass industry.
When I know more I will post information and feed back.
Yipee!!! :P :P :P
Oh no, please don't be sorry. I am ecstatic for everyone. I was just joking. I don't know anybody else with MS, and have never had anyone to talk about it with without paying $100/hr, or the neuro?.... until I came here a couple of weeks ago. I laugh at things that aren't funny, and don't take too much seriously. That is my coping mechanism.
I'm actually well pleased with not going until May. I've always wanted to go to Eastern Europe, but not so much in the winter. I don't do well in the cold. I need warmth, so spring sounds nice. I'm just thankful that I have the opportunity and the wherewithal.
I am also quite mobile. I do bounce off the walls and clutch furniture for the first few hours of the day, but once that passes, I can still drive, and can walk a long way. The fog and fatigue are the killer for me.
I agree with Ella though, I honestly would rather have these problems than to watch someone I love go through it. I have often said that. I have also thought that in so many ways, it was a gift, and now that it might well be over, I feel that more so. I learned patience, and calm, and compassion, and empathy, and so much more. I often go to sleep with the thought that "I have learned, and I am ready to be well again. I won't forget".
I feel that we will all be freed soon, and I am grateful to those that went and go before me. It gives me that much more confidence and enthusiasm. All the best in Poland, to everyone. I look forward to your reports.
My name is not really Johnson. MSed up since 1993