Inclined Bed Therapy

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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AndrewKFletcher
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Post by AndrewKFletcher »

Thanks for the update Erika

Neuropathic pain relief comes with the Inclined Therapy :)

Backache improvements also :)

Another kick in the pockets for big Pharma!

Could you list you problems from ms as they stand now so that we can learn more about your progress in the future?
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AndrewKFletcher
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Post by AndrewKFletcher »

Alun

Thanks for joining the forum and letting everyone know whoes legs they have been looking at :)

Alun also suffered from knee pain constantly and this has improved considerably over the months he has been using I.T.

The photographs speak louder than a thousand words so if you have not seen his improvements: http://www.thisisms.com/ftopic-6755-day ... asc-0.html

Without Alun's help and his trusty camera we would be in the dark as to how much varicose veins improve using I.T.

With this in mind, if any people here have varicose veins please take some photographs before tilting your bed and pretty please some more over the months you sleep inclined so everyone can see the connection with the venous system and I.T. relationship with CCSVI.

It would prove very interesting if we ever get the chance to observe before and after I.T. CCSVI scans.

Alun I owe you a great deal of respect for helping me prove this important point about venous pressure and the direction of gravity in the veins.

Best wishes to you and your family.

PS Grandaughter is on an incline from birth and her progress graph is intersecting with children older and heavier than her :)

She put 9 oz on in one week and not fat either so must be muscle and bone density.

Andrew
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AndrewKFletcher
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Post by AndrewKFletcher »

judipom wrote:Hello--I fell asleep in my sons flat bed last night and these are my two observations 1) I did not void completely and dribbled on myself afterwards 2) I am not as refreshed and alert as I have been since sleeping in inclined bed. Judi
Thank you Judipom

I think others here might have also noticed changes in bladder function and urine clarity. Urine should be stronger on I.T. possibly a stronger odour too.

This is early days yet.

Watch this space for more reports :D :) 8O
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Salvatore24
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Post by Salvatore24 »

Is it a coincidence that I actually feel better when I have less sleep? I seem to feel slightly better on 6 hours worth of sleep compared to 8 hours or more. I feel less brain fog & fatigue.
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Post by AndrewKFletcher »

Salvatore

Not according to 16 years of research! I said back in 1995 that ms was not a disease but a problem with circulation. My research has been with circulation from the very first varicose veins that went flat in 4 weeks, my wife and a nurse called Stephanie, both observed their veins nomalising and aching stopped. The only change they made was to avoid a flat bed.

Alun's Venous improvements tell the whole story better than a ten thousand words. He no longer wears support / compression stockings and has ventured onto the beach wearing shorts last year.

Varicose veins are twisted, bulging in places and constricted in places. Sound familiar with the CCSVI description?

Why would anyone believe these veins will not be affected by tilting the bed?

Chronic venous insufficiency or Chronic cerebrospinal venous insufficiency is part of the same venous system, not divided and seperated but part of a flow and return flow called circulation.

What about the plaques in the brain and nervous system? They are still there, how does a stent address this obvious part of ms?

What caused the CCSVI to progress to the point it caused reflux into the brain and nervous system?

I hope more people will reflect on your question which speaks volumes about ms.

Thank you



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ErikaSlovakia
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Post by ErikaSlovakia »

AndrewKFletcher wrote:Thanks for the update Erika
Neuropathic pain relief comes with the Inclined Therapy :)
Backache improvements also :)
Another kick in the pockets for big Pharma!
Could you list you problems from ms as they stand now so that we can learn more about your progress in the future?
MS symptoms before IBT and stenosis intervention: weakness (left side is worse), fatigue and a lack of stamina, heat intolerance, balance problems, bad coordination, urgent bladder - but not all the 13 years, poor left-eye vision from Optic Neuritis damage, cognitive and short term name/memory problems, constantly can’t remember what I was thinking, name, item, dates, where I was headed in the house and why, brain fog, dizziness, tinnitus/ringing in ears - only mild, central neuropathic pain in my right arm, muscle stiffness, very often headache and often extremely strong headache, impossible to fall asleep withou sleeping pills, tremor, ataxia, sometimes walking like a drunk Robot - during attacks.

Sorry I did not write whole sentence: I did not have backache before the IBT. I had some during IBT. I was not complainig much because it was not bad and I knew I just must get used to it. Anyway it was gone after 15 minutes after getting up. I think I got used to it because I do not have backache.

There is one new thing: I wake up with strong headache again (only for 3 days). The strange thing is the headache goes completely away after 30-45 minutes after getting up. I just have my little breakfast and I drink my mini coffee.
Before when I woke up with headache I had it whole day and I had to take 2-3 pills against headache.
I continue taking only 900 mg of carbamazepin instead of 1200 mg.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Post by judipom »

ErikaSlovakia wrote: sometimes walking like a drunk Robot - during attacks.
Erika

Erica--This is an apt description. I may have to borrow it!! We're close in years. You're RRMS '96, I'm '97. Judi
RRMS Diagnosed 1997
My house burned down, now I can see the moon.
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AndrewKFletcher
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Post by AndrewKFletcher »

Erika

Thank you for posting this information it is going to prove interesting over the months that follow.

Regarding headaches. Have you had your blood pressure tested?

Advice:

Drink more water, aim for around 1-2litres a day. Drinking tea and coffee has a diuretic effect and is not the same as drinking water.

IBT also has a diuretic effect pulling salts from the blood into the urine, again this requires aditional water to compensate for the losses from evaporation due to increased body temperature at night.

Stinging nettle tea is a powerful natural pain killer. Underestimated by many it contains histamines, sterols, steroids, iron, and flavonoids and many unknown properties. It is also a diuretic and stops bleeding so very useful for ulcers.

It may be useful for you to research this common herb.
ErikaSlovakia
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Post by ErikaSlovakia »

AndrewKFletcher wrote:Erika

Thank you for posting this information it is going to prove interesting over the months that follow.

Regarding headaches. Have you had your blood pressure tested?

Advice:

Drink more water, aim for around 1-2litres a day. Drinking tea and coffee has a diuretic effect and is not the same as drinking water.

IBT also has a diuretic effect pulling salts from the blood into the urine, again this requires aditional water to compensate for the losses from evaporation due to increased body temperature at night.

Stinging nettle tea is a powerful natural pain killer. Underestimated by many it contains histamines, sterols, steroids, iron, and flavonoids and many unknown properties. It is also a diuretic and stops bleeding so very useful for ulcers.

It may be useful for you to research this common herb.
Thank you! My BP is normal - always around 120/80.
I drink more than before the procedure. I remember a doctor telling me next morning not to forget to drink enough water as I have a stent. I drink plain water. I only drink 2 really mini coffees a day.
I will check the tea you mention - I did not know about it.
On the other hand I almost have no headache during the day.
My recovery takes simply more time. I am patient. I do not worry.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Johnson
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Post by Johnson »

This is a fascinating thread. I have sent the original with the varicose veins pictures http://www.thisisms.com/ftopict-6755.html to a friend whom has had bad very-close veins (what I called them when I was a kid) since she was 14.

I find it odd that we would have such a flaw in our evolutionary development (or design) from laying flat. We must have been doing this since before we were living in houses. If not, I wonder when and how we started sleeping flat. Perhaps we used to sleep up against the boles of trees, so that we could quickly climb out of the reach of danger, find shelter from precipitation, etc. The ground at the base of trees is naturally inclined as the root system spreads out. Hmmm. 5- 10 degrees?

My old Grandma used to sleep in a semi-sitting position so that she wouldn't "take a cramp" in the night from chronic phlebitis. She knew something.
My name is not really Johnson. MSed up since 1993
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Post by ozarkcanoer »

I have been thinking about American babies who sleep flat on their backs in cribs, vs babies whose mothers carry them around in slings or the Native American papooses. I wonder if we should be inclining the cradles and cribs of our children ?

ozarkcanoer
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Johnson
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Post by Johnson »

ozarkcanoer wrote:I have been thinking about American babies who sleep flat on their backs in cribs, vs babies whose mothers carry them around in slings or the Native American papooses. I wonder if we should be inclining the cradles and cribs of our children ?

ozarkcanoer
ozark, my son is Canadian (though we all have the same way of life), and slept on his belly since he was in the bassinette. He is just about 3 now, and sleeps on his belly still, or semi-prone. I hope to incline his bed too, but want to try it on myself first. Physiologically, he is a lot like me, so I am compelled.
My name is not really Johnson. MSed up since 1993
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Post by wymtime »

This is my first post to this site. I have been following all of the ccsvi information for about 3 weeks. I want thank all of you for sharing your personal experiences and supporting one another. I have enjoyed this thread because the bed therapy is something so simple and really is very interesting. Before I share my IBT experience I want to share how I got to this site. My mother has had PPMS for at least 30 years. I have not been diagnosed but I have had multiple nervous system problems since I was 20 years old. I am now 36. Like everyone else I have been trying to find out everything I can about MS. I believe even if ccsvi cannot help my mother that it will lead to treatment that will help her in the near future.
Now about IBT. I started this therapy three nights ago. First let me share my history. I had my first back surgery at 21 for herniated disc at L4 that has caused pain in my left leg. The surgery was not successful so I had surgery again when I was 26 for another herniated disc at L5. This surgery did not stop the pain either. I have had this pain for 17 years. So back to IBT. I got in the bed and noticed that my back where my scar is from surgery felt very tight...almost like something was moving under my skin. It was uncomfortable but I could tell my back was stretching. I am somewhat used to this because occasionally i use my teeter hang up. It's an inversion table. After 15 minutes in the bed my pain in my leg was gone. I couldn't believe it!! I was so excited that I couldn't go to sleep for a couple of hours. The next morning with only 5 hours of sleep I awoke rested and my brain fog was not quite as bad. All three nights I have slept with no pain in my leg. My back has been sore but I'm sure thats because the muscles are aligning. The pain in my leg does come back late in the day but being able to sleep pain free is a miracle. All 3 days I have awaken with a slight headache which I usually do not have.
My dad and I fixed my mom's bed two nights ago. The first night she didn't notice anything. The second night she did not snore(and she has been snoring badly for years) and upon waking told my dad it was best
nights sleep she has had in 30 years. Her mind was clearer and she had more energy. She also only had to use the bathroom once rather than three or four times. She has very bad bladder problems. She was amazed. I will keep the updates coming as often as I can. I know this therapy can help people.
THANK YOU Andrew!!
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Johnson
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Post by Johnson »

wymtime - I really liked this -
I was so excited that I couldn't go to sleep for a couple of hours.
That has got to be something good.

I inclined my 3 years old's bed late this afternoon by 3.5" (easiest). He was very excited about it!, and liked it a lot. I'll likely never know if he has benefit from it, but I am going to trust that perhaps, I have pre-empted something.

I have been really wanting to do this to my own bed (a difficult task for me right now), and actually, have been aching to do it. I can feel the congestion in my neck, and just "know" that it is right.
My name is not really Johnson. MSed up since 1993
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AndrewKFletcher
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Post by AndrewKFletcher »

ozarkcanoer wrote:I have been thinking about American babies who sleep flat on their backs in cribs, vs babies whose mothers carry them around in slings or the Native American papooses. I wonder if we should be inclining the cradles and cribs of our children ?

ozarkcanoer
http://www.thenakedscientists.com/forum ... .msg288984
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