Dr Simka (Poland)

[Edser]

Good for you Edser! Not only are you vastly improved, but now you're going to be famous for telling your great story to the UK.

That's true Michelle but i'm IRISH & i'm trying for the Dr & Neuro's over here in IRELAND to pay a little bit of interest to me & what i have to say about CCSVI.So far they are not listening to me.I'm not worried,as i will keep trying
Slainte Mo Chara
Edser & Anna

[Edser]

Wow, great job!

Thank you TFau
Slainte Mo Chara
Edser & Anna

[Edser]

Good evening TiMS,
I just received this information a few moment's ago,Does anyone know is there any truth in this?

You currently live in Ireland? There is hospital "Queen Mary" that do the liberation Treatment (Belfast). Did u know?

I know that the Royal Victoria Hospital(Belfast) did the treatment on GiCi.
Slainte Mo Chara
Edser & Anna

[Dovechick]

You sure about this information Edser, Can't seem to find a Queen Mary Hospital in Belfast... There used to be military hospital called the Queen Mary but I can't find anything contemporary about it on the internet.

[Edser]

You sure about this information Edser, Can't seem to find a Queen Mary Hospital in Belfast... There used to be military hospital called the Queen Mary but I can't find anything contemporary about it on the internet.

Good Morning,
I can't be 100% sure,as i received the information from an other MS person(London) yesterday evening.I hope that it is TRUE.I told them that i heard about Gici's procedure in "The Royal Victoria"(Belfast) a few month's back.
Slainte Mo Chara
Edser & Anna

[Edser]

Good Morning TiMS,
DAY 12
The bruising in my groin is gone.
I've got propper movement in my neck after the 1 STENT in my right Juglar.
My finger's are warm BUT there is a numbness on the tops of them.(I don't know is this a Positive 0r Negative thing)
Is there any IRISH people going for the procedure in Poland?
Slainte Mo Chara
Edser & Anna

Good Morning TiMS,
DAY 19
*********************Positive OR Negative*************************

I woke up this Morning @ 7.45am This is normal for me as i'm an early bird.My Mrs(ANNA) was still asleep.So i deceided to have a shave.The left side of my face was no problem,so i continued on.PROBLEM i could not shave under my lock's as i could not see where to put the razor I tried a few more times but to no avail ,so i deceided to stop as my pupil was moving much slower.In 1987 after a freak accident i lost the sight in my right eye(Detached Retina) so i'm a little lost at the moment.Time is a great healer so i'll remain very +POSITIVE+ as the procedure has/is working.
Slainte Mo Chara
Edser & Anna

[wonky1]

Hi, yeh I think it as the Royal Victoria in Belfast, I tried Anton Collins’s secretary there before I went to Poland, she said he’s not planning on doing it again. It would be fantastic if they were doing it somewhere else though.
Edser, I hope your eye sorts itself out, I’m sure it’s just a step on the two steps forward one step backwards path.
Dovechick, thanks for the tip re; D-mannose, it seems to work better for UTI than antibiotics. I just realised I can do that touching my nose without poking myself in the eye thing. That’s definitely a step forward.

[Badger]

I have been in touch with the hospital in Belfast and this is his rreply:
Dear Mr. McArthur,

Thank you for your e-mail.I suspect that you made this contact subsequent to reading an article on the internet. You will appreciate for reasons of patient confidentiality I cannot comment specifically as regards the information that I believe was posted on a multiple sclerosis support web site by a patient. The information on the web site is somewhat out of context. At present we do not undertake such treatment specifically for the treatment of multiple sclerosis. You may be aware that there is some early research, particularly from a centre in Italy as regards the possibility of a correlation between multiple sclerosis and central venous abnormalities. As a result of this internet posting I have received multiple enquires and therefore have looked into this in some detail. I have to say that at present there is no convincing high level evidence to support the theory. I am led to believe that several basic early trials are underway and further information may become available over the coming months.

However, invasive venography and venoplasty are procedures which are not without substantial risk and potential complication to patients. I think therefore at present it would be most inappropriate to offer this treatment to patients specifically for the treatment of multiple sclerosis. I can appreciate that you want to expedite any treatment that would help but I would urge caution until more information is made available. I hope this goes some way to answering your query.

Yours sincerely

Dr Anton Collins MB FRCSI FRCR FFRRCSI

[Edser]

Cheer's Badger.
Slainte Mo Chara
Edser & Anna

[Edser]

Hi, yeh I think it as the Royal Victoria in Belfast, I tried Anton Collins’s secretary there before I went to Poland, she said he’s not planning on doing it again. It would be fantastic if they were doing it somewhere else though.
Edser, I hope your eye sorts itself out, I’m sure it’s just a step on the two steps forward one step backwards path.
Dovechick, thanks for the tip re; D-mannose, it seems to work better for UTI than antibiotics. I just realised I can do that touching my nose without poking myself in the eye thing. That’s definitely a step forward.

This is what Rici on the Polish Forum said to me a few week's back.2 step's forward & 1 step back.I've learn't this from my past 1 day at a time
Slainte Mo Chara
Edser & Anna

[whyRwehere]

I find it a little sad, that the doctor knows it helps (because he saw that his patient improved), but that he is not interested in helping further to investigate the theory. Is he so old, that he hasn't the energy to make the effort? How are these studies going to happen, if no doctors want to bother themselves?

[ErikaSlovakia]

2 step's forward & 1 step back.I've learn't this from my past 1 day at a time
Slainte Mo Chara
Edser & Anna

Yes, I knew about it before and I have to say it is in my case the same. I had a problem with my fatigue yesterday again but I also have to say I made one little mistake.
I was taking Lisinopril (to make my BP lower) every morning without checking my BP. It was only 5 mg but anyway. I checked my BP yesterday after long time and it was only 100/60 - it is too low for me.
So I stopped taking Lisinopril. I feel better today.
Erika

[Edser]

Good Evening TiMS,
Anna contacted Dr Simka 18.00Hrs enquiring about my Clexane 60mg injection(20Day's) & he responded 18.37Hrs confirming that yes i am all finished with my injection's.I will remain on Aspirin for the remainder of my life.
My eye is after improving since this morning & even dough i've been blind in my right eye for the last 22Yrs,whilst i was having a shower this morning my right eye(BLIND) felt a few flickers of light
Slainte Mo Chara
Edser & Anna

[Brynn]

Hi Edser, I have been reading your journey for the last few weeks and I must say that your comments about regaining your eye sight almost moves me to tears of joy for you! As I deal with function issues with my hands and certainly my mobility, I can only imagine what a powerful experience that is for you. I think that having improvements llike that will make the "down days" easier to get through, as you live with this healing process that you will now be able to have. And reading of all the successes for those of you who have had the procedure done makes it that much easier to wait my turn! It will be so exciting to hear of your progress. Take care, Brynn

[malus]

Hello Everyone,

I am new on this forum.I been reading the different topics about CCSVI procedure & it will help me alot. It will help me alot if i could some of you guys feedback about Doctor Simka & the work of doctor simka.
Has anyone tried to get the surjery of CCSVI from doctor simka.unfortunatlly doctor Simka dosn't reply emails. He is very buzzy to talk to me on phone.The secertory of Doctor simka talks only in polish language.
I am thinking of having this procedure.I will be greatfull for any sort of tiny information.

Best wishes & merry X-mass & Happy new year.

Regards

Malus