Going to Poland!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
ComfortablyNumb
Family Member
Posts: 45
Joined: Sat Nov 28, 2009 3:00 pm
Location: Ontario, Canada
Contact:

Post by ComfortablyNumb »

Has anyone had a recent reply from Dr Simka? I'm guessing things are down for the holidays.

MERRY CHRISTMAS AND HAPPY HOLIDAYS TO ALL.
:D
User avatar
colapesce
Family Elder
Posts: 156
Joined: Thu Dec 10, 2009 3:00 pm
Location: London, UK
Contact:

Post by colapesce »

hi broomdancer,

could you let me know when you emailed dr. simka?

hope all goes well for you both!

b
User avatar
tipsyturtle
Family Member
Posts: 56
Joined: Sun Nov 29, 2009 3:00 pm
Location: Canada

dr. simka

Post by tipsyturtle »

To those waiting for Dr. Simka. I emailed him in mid November- 1st response came within 48 hours. 2 weeks later I was "on the list" for April. My friend emailed 3 days after me in November and is on the list for May 2010. Now he takes many weeks to respond due to the overload- and I think the holidays make it worse. So be patient. Don't send multiple emails as he will respond to each one and it just clogs up his system. I hear he is booking into 2011- but don't despair as I think many people will pull out at the last minute and are holding spots 'just in case'.
Good luck to all.
User avatar
colapesce
Family Elder
Posts: 156
Joined: Thu Dec 10, 2009 3:00 pm
Location: London, UK
Contact:

Post by colapesce »

thanks typsyturtle.

Yes, I only emailed him the once and it was only two days ago. I'm not known for my patience at the best of times :)

I wish more surgeons were trained in this procedure so we wouldn't have to wait sooooooo long.

Have a great Christmas
User avatar
6max
Getting to Know You...
Posts: 21
Joined: Wed Oct 14, 2009 2:00 pm
Location: Italy
Contact:

Post by 6max »

Merry xmas everybody ( 8O sorry for my english :roll: )

Simka mailed me on 22 . :) Booked for april :)

Dont' worry...It's xmas to the Poland too :wink:

I'm very happy :D ...but I don't know the reservation day, only the month

Happy new year :D ( without sm , of course :!: )
User avatar
Katie41
Family Elder
Posts: 179
Joined: Sat Dec 05, 2009 3:00 pm
Location: Southern California
Contact:

Post by Katie41 »

Congratulations, 6max! What a wonderful Christmas present! Merry Christmas :D
User avatar
broomdancer
Family Member
Posts: 73
Joined: Fri Dec 18, 2009 3:00 pm

Post by broomdancer »

Hi Colapese:
Sorry that I could not get back to you sooner do to Exmas and all.
I e-mailed Dr Simka on the 11th of Dec. He replied on the 12th. WE stated we would like all tests and precedures on the same trip, if possible as we too have to come from afar(Ont Canada). He again replied on the 18th with approximate date and again on the 24th he said more info would follow in soon. Hope this helps?
Wishing you a healthy New Year.
Diana
User avatar
colapesce
Family Elder
Posts: 156
Joined: Thu Dec 10, 2009 3:00 pm
Location: London, UK
Contact:

Post by colapesce »

thanks for then info, broomdancer!

I'll post on here once I hear back from Dr. Simka.

Hope you enjoy the rest of your Christmas.

belinda
User avatar
colapesce
Family Elder
Posts: 156
Joined: Thu Dec 10, 2009 3:00 pm
Location: London, UK
Contact:

Post by colapesce »

congratulations 6max.

Buon anno nuovo!
User avatar
SandyK
Family Elder
Posts: 221
Joined: Wed Oct 14, 2009 2:00 pm
Location: WA
Contact:

Post by SandyK »

I emailed on the 20th and still haven't heard back. Am I being impatient or should I send another email?
Guest
Family Member
Posts: 67
Joined: Wed Sep 02, 2015 11:35 pm

Post by Guest »

SandyK wrote:I emailed on the 20th and still haven't heard back. Am I being impatient or should I send another email?
I sent my email on Dec. 12th and still didn't get any reply from him. Since some of you emailed him after this date and heard from him already, I'm suspecting that my mail somehow fell through the cracks and he didn't receive it. At this point I'm a bit paranoid.
User avatar
Johnson
Family Elder
Posts: 979
Joined: Tue Dec 01, 2009 3:00 pm
Location: Ucluluet, BC
Contact:

Post by Johnson »

Guest wrote:
SandyK wrote:I emailed on the 20th and still haven't heard back. Am I being impatient or should I send another email?
I sent my email on Dec. 12th and still didn't get any reply from him. Since some of you emailed him after this date and heard from him already, I'm suspecting that my mail somehow fell through the cracks and he didn't receive it. At this point I'm a bit paranoid.
I get that uneasy feeling all the time too. I got the impression from one of his e-mails that he doesn't have a lot of time or patience for questions. He just wanted to know if I want the Dx and procedure. I guess the time for questions will be in Poland.

On Dec. 3, I told him I wanted to be liberated, and I received this on Dec. 11:
Hello,

You are in the waiting list for "the liberation operation". The estimated time of the procedure is May 2010.

We will do our best to make the treatment possible earlier, but actually we receive more requests than we can manage in a proper time. I will inform you about exact time of the examinations and potential operation in 1-2 weeks.

Best regards

Marian Simka, MD
I will be on tenter-hooks until I have a firm date. It will only seem real then. After that, I just have to hope that I am not one of those inadvertently put onto a "no-fly list" - it happened to Senator Kennedy, of all people!
My name is not really Johnson. MSed up since 1993
User avatar
Brainteaser
Family Elder
Posts: 460
Joined: Fri Jan 14, 2005 3:00 pm
Location: Melbourne, Australia

Post by Brainteaser »

XX
Last edited by Brainteaser on Sat Aug 09, 2014 8:33 pm, edited 1 time in total.
Guest
Family Member
Posts: 67
Joined: Wed Sep 02, 2015 11:35 pm

Post by Guest »

If he says he'll do something, I'm sure he'll honour his commitment.
I'm not on his waiting list yet. This waiting game is not easy to play.
English is not his first language
English is not my first language either, nor my second. I don’t think that that slows Dr. Simka down.
Personally, I prefer people who get on with things, like Dr. Simka rather than just talk
Same here...so the waiting game continues.
User avatar
Johnson
Family Elder
Posts: 979
Joined: Tue Dec 01, 2009 3:00 pm
Location: Ucluluet, BC
Contact:

Post by Johnson »

Hi Phil,

It was actually from your report that I formed the idea that Dr. Simka doesn't mess around. I think that it was in your report also, that the good Dr. made a comment about heparins, and 'Anglo-Saxon doctors'... I liked that immensely.

I have little doubt about Dr. Simka, or that he does what he says. I am adverse to probing him with questions and such, and do trust that I am on the list. I may be subject to yammering prose, but it doesn't necessarily inspire me to be confident in a doctor. I might just think that he was as pompous an ass as I can be... Grin.
My name is not really Johnson. MSed up since 1993
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”