Procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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SSG
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Post by SSG »

Left jugular stenosis. No stent, just baloon. Holding up well.
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babiezuique
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Post by babiezuique »

Simka wrote me this morning... I have an apointement in january 2011 ;) I'm actually crying of joy.... thinking about the good results you had after the ''liberazione'' ......

Barbara from Montreal
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vendredi5h
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Post by vendredi5h »

Oh! Great news Barbara! You're making me jealous! ;) When did you wrote to Dr Simka? I wrote to him on January 1st and did not get a reply yet.

Yannick
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Jaguar
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Post by Jaguar »

And I wrote to him in December with no response. Maddening is definitely the word for this.

good for you Barbara
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Pepe
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Post by Pepe »

Deleted.

Pepe.
Last edited by Pepe on Wed Jan 13, 2010 3:21 am, edited 1 time in total.
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babiezuique
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Post by babiezuique »

Yannick, i wrote to Dr Simka the 21 of december....
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Jaguar
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Post by Jaguar »

And I wrote on the 30th of December, so it seems he will get to me... eventually!
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colapesce
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Post by colapesce »

I wrote to him on the 22nd December. Still nothing.

Congrats to you though, Babi!
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babiezuique
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Post by babiezuique »

The feeling i'm testing out now is... peace... Since i know about the ''new'' (but not new because we know it is and old theory.... ) vascular paradigm ( since mid november...) I'm studying all day, from 5 to 10 hours everyday.... I'M reading about all i have been experiencing since so many years.... that now has an explaination... I'm on vacation... it is cold now in montreal... and i have no reason to go out... I'm studying from all of you here...

I'is astonishing for me to see how hight the lever of the research people here can do! I'm asking myself how i made it....since you all those years of ms.... felling so alone....
Barbara from Montreal ;)
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babiezuique
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Post by babiezuique »

oups... how i made it ''without you...'' i wanted to say ;(
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babiezuique
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Post by babiezuique »

TH Hello,

You are in the waiting list for "the liberation operation". The estimated time of the procedure is January 2011.

We will do our best to make the treatment possible earlier, but actually we receive more requests than we can manage in a proper time.

I will send you detailed information regarding date, hotels, payments etc. in a proper time

The hospital is in Katowice, the nearby airports are in Katowice and Krakow.

You should plan at least 7-days long stay in Poland (at least 3 days postop)You will get all necessary prescriptions and instructions how to use medications, as well as if and when to come for a follow-up (all these depends on the type of operation and patient's characteristics). In brief, postoperatively you should stay in the hospital overnight. The operation will not affect your mobility (it is only small puncture in the groin and nearly no pain).

We perform either balloning, or stenting, depending on particular characteristics of venous occlusion. Balloon angioplasty seems safer (lower probability of thrombotic event), but the possibility of restenosis is very high (~50%), so we prefer stenting, on condition that anatomic localization and characteristics of a planned stent looks safe. Anyway, in a case of doubt, we perform safer procedure (ballooning).



Best regards

Marian Simka, MD


is is the message i just received from Dr Simka :)
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Brynn
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Post by Brynn »

Congratulations, babiezuique!! :D Regardless of the long wait ahead for us, isn't it SUCH a refief to be acknowledged and on the list?! :D Brynn
41 years old, dx 1998, current EDSS 6.5
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Astrid1961
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Post by Astrid1961 »

I send an email on 12 december 2009, and 2 weeks later i received one back from Dr.Simka, i also am on the waitinglist for januari 2011.

And i hope, when they start treatments in Paris/slowakije it will be sooner.
I think some people from the list will have their treatments in their own country.

Brynn, i like you name... :) our youngst sun is called: Brynan.

I live in Holland.

Astrid
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pgm1
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Post by pgm1 »

Hi
I sent my e-mail back in November and am on the wait for a March procedure appointment.
I am still waiting to hear,its testing my patients

Happy waiting to you all :)

Pam :)
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Greenfields
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Post by Greenfields »

Does anyone have a cost for having the procedure in Poland?

Cheers
Brian
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