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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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cah
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Congratulations...

Post by cah »

... Cheerleader, to your 2500th (st?) post. I can't remember any of them being off the track, but many of them being long and very informative.

As far as I can remember you once wrote that you promise you'll never write a book about it. Well, that's ok - and I'm really looking forward to the next volume of your ENCYCLOPEDIA. :wink:

Cheers

Cah

THANK YOU
"There is only one good, knowledge, and one evil, ignorance." Socrates
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thisisalex
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Post by thisisalex »

agreed!

great work what you do Cheer, even after Jeff's liberation. I enjoy reading all your posts. thanky you VERY much!

alex
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cheerleader
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Post by cheerleader »

Oh man, 2500???? Really???....I am half way to being bob.
Yeah, I do get a bit long winded, but that's only because I type 6000 words a minute. sigh. Maybe I need to get a real job like Marie has, huh? :)
Thanks for marking this dubious honor, guys.
Now I'm going out for a walk!
long-winded cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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cah
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Post by cah »

I didn't mean long winded... :oops:

Just meant detailed.

In fact I'm often marveled pretty much about how precise your posts are in length - and words. Not too much and not too little. I think they actually could really be put in a book pretty much as they are.

If you think it was meant dubious in any way then you really got me wrong. :oops:

And who needs a job if (s)he's got a mission? :)
"There is only one good, knowledge, and one evil, ignorance." Socrates
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TFau
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Post by TFau »

Cheer, you've done an amazing job on this site and off as well! We are all grateful, and I hope that you have the stamina to keep it up for a while - even though I realize that this is a volunteer position for you! I wish that our gratitude could fill your coffers!

Theresa
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mrhodes40
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Post by mrhodes40 »

I am here today and want to add to this, Cheer you are the greatest!! I am so glad for your thoughtful efforts on behalf of others, THANK YOU!! I am glad to be part of the merry band of persons who have benefited from your tireless efforts.

By all rights you could have moved on, that you continue to inspire and share is amazing......... :D :!:
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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shye
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Post by shye »

Adding my gratitude Cheer! Is always a pleasure when you post, knowing the information will be clear and concise. MANY thanks...
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Sharon
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Post by Sharon »

Yes, Joan --- I need to ditto Marie.... you could have moved on -- I have a feeling though you are the type of personality that needs to see all the loose ends wrapped up neat and tidy before you claim a project is completed. You are an amazing source of comfort and reason to so many who are looking for answers.
:) :)
Sharon
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coach
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Post by coach »

Joan,
Adding my ditto and thanks. Thanks for the hard work! Trying to get adjusted to fb. It's new for me and feel like an old dog trying to learn new tricks. And I was just getting comfortable with e-mail. Facebook is kind of like "Mr. Roger's Neighborhood" in cyberspace.
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cheerleader
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Post by cheerleader »

Sharon wrote:I have a feeling though you are the type of personality that needs to see all the loose ends wrapped up neat and tidy before you claim a project is completed.
thanks, ladies. I really do appreciate the support. And I was only teasing, cah. I appreciate your kind words. You're right, Sharon. I'm all about follow-thru...and I'll feel a lot better when there's more research published and more scientific evidence. It's been a long, eventful year. Jeff's still great, working too much, but wide awake and stable. He's home now, time to go. Night!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Johnson
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Post by Johnson »

I would like to recognize your efforts, and appreciate your dedication as well. Your husband is a very lucky man to have you advocate for him, and I think that we are all very lucky here for your continuing efforts.

My brain has not been working well lately - usually I can much more eloquent, but I hope to have said what I feel.

Thanks to you, Ms. Joan.
My name is not really Johnson. MSed up since 1993
ErikaSlovakia
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Post by ErikaSlovakia »

Dear Joan!
Congratulation!
You know that you have not only saved me but many others as I could start it in Poland, because I read many of your posts and you gave me Dr. Simka`s contact.
THANK YOU!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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wonky1
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Post by wonky1 »

Cheer
I never got around to thanking you. If it weren’t for this forum and your wonderfully informative posts, my life would have taken a very different course. I and many others owe you so much.
The fact that your efforts which were born out of the love for your husband have touched so many, fills my heart and has renewed my faith in human nature.
Thank you!
:D
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Inge67
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Post by Inge67 »

Hear Hear Cheer!

The posts above said it all in better ways than I can express, but I like to thank you as well for all your hard work.

I just read your respond on Facebook to the National Post article and that made me smile a lot. So elegant and so not trashing them, but still...ruthless! That is a great skill! Please let us enjoy more of those treasures for a long time.

You are an inspiration.

Thanks from the Netherlands, where you have inspired a group of MS patients to fight the system and look for ways to convince the establishment to consider CCSVI as a serious option as a cause for MS.

Thanks. and Go Go Go!

Inge
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William57
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Good Job you are doing, Cheerleader!

Post by William57 »

And another capital THANK YOU from the Netherlands. For all your hard labour in posts on TIMS, giving clear and understandable comments. And now for your excellent reply on that rubbish article in the Nationalpost.

When I read the articles of the Nationalpost, I could only say: crap journalism, not giving facts or well thought arguments, just painting a bad picture based on an opinion. I even thought by myself: who or what company funded this article?

Your reply was a very balanced, profound answer on that article. It gave the right arguments that swept the floor with the ones given in the article (as far as you can speak of 'arguments'). Your reply pinpointed exactly the holes (or was it just one big hole?) in the story.

And as finished cherry on the pie: giving a short background on mr. Corcoran: he has financial background and none medical whatsoever.


Well, thank you again for all your work for this community. Your good work draws the attention all around the world!

William
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