Tara-
It would be worth trying a high dose of Magnesium, spread out thru the day--only use the Albion chelation process with magnesium, which means Doctor's Best, Carlson, or Solgar chelated magnesium.
This eases the neck pain and the blood pressure can stabilize also. Need to keep this up for a few weeks, but if you do get a postitive result, it might explain quite a number of your issues. Mg is difficult to absorb, and one of the most deficient minerals in our diet, yet is needed for over 300 different processes in the body. It is particularly imp in nervous system.
I would wager that most people with MS are deficient. No real way to test for deficiency--Serum does not reflect it, but the RBC mg might reflect a deficiency. So if you are getting any bloodwork done, see if you can include Red Blood Cell Magnesium. RBC Potassium would be worth checking also.
ccsvi fits how? with genetic heme biosythesis
Dynamics of bone and cartilage metabolism By M. J. Seibel, Simon P. Robins, John P. Bilezikian
via supplementing I got my level up to .94 and felt a million times better.
when I was REALLY SICK at the end of 2007 (major dysphagia ie drowning in my own saliva all day, getting stuck unable to breathe halfway through swallowing, thinking i would die by the end of the year) so yea around then, my magnesium level was .88 (my lab's range was 0.60 to 1.10).The reference range for normal total serum magnesium is a subject of ongoing debate. Concentrations of 0.70 - 1.10 mmol/L are generally accepted. However, epidemiological studies have revealed correlations between increased cardiovascular risk and low serum magnesium concentrations within this reference interval. Similar results have recently been obtained in a prospective study of patients with advanced atherosclerosis. Therefore we regard values of at least 0.80 mmol/L as desirable.
via supplementing I got my level up to .94 and felt a million times better.
the wierd thing is that i have every single symptom that an MSer has except that for the most part only my legs go parylized symetrically. I thinking because I have lumbar stenosis the reflux is occuring down ward instead of upward. really as far as causes its splitting hairs. now what causes stenosis? hmm degenerative disk disease but why is degenerative disk disease happening?
water loss in the joints...sjogrens. there is the sjogrens connection. I dont have sjogrens because my body doesnt want it. I have test probably 8 X for this and other rheumatology and only recently started testing possitive. In the past 4 months I have tested possitive 2X. each doctor felt the need to test it over and over. IT went -,+,- and then +. but if the doctors didnt test and retest they wouldnt even know this was happening. what I think might be happening is that during my period my blood volume goes down, porphyrins gather in my stomach with the H pylori, this spurs molecular mimicry, causing sjogrens, then degen disk, then stenosis. my body does not want the autoimmune response so it corrects it, leaving me none the wiser but with damage in the spin.
That could be just one mechanism. there are probably many. but ask yourself have you ever had really dry eyes. just thinking thats all
what is missing in me is the epstien barre. so what if the porphirins accumulated and your blood, did reflux, would that cause the free radicals to hang out too long in one area and cause damage.
That could be just one mechanism. there are probably many. but ask yourself have you ever had really dry eyes. just thinking thats all
what is missing in me is the epstien barre. so what if the porphirins accumulated and your blood, did reflux, would that cause the free radicals to hang out too long in one area and cause damage.
Last edited by tara97 on Fri Jan 29, 2010 8:04 am, edited 1 time in total.
Tara,
try the magnesium--you cannot correct low potassium without enough magnesium, no matter how much potassium you are taking. (been there...)
Did you test for H phlori? If positive, can correct that with antibiotics (I can't recall off-hand which one, easy to check this).
Mg is imp for nerve conduction--so you leg and other MS-like symptoms could be super low magnesium.
Potassium is needed to correct dry eyes (as well as other stuff of course), and as I say, you will not correct low potassium without enough magnesium.
Any chance you have a reasonable doctor who would give you a magnesium "push"? That is a venous injection of magnesium chloride--I recently got one, and AMAZING--had been taking chelated mg for years, but not the Albion Labs chelation form--the first push made me realize maybe my MS was induced by malabsorption--anyway, my years long Raynoud's syndrome is clearing up incredibly, the Mg went right to my fingers and toes! tingling beautifully (usually NO feeling). so for the week after the push, took Doctor's Best chelated Mg (uses the Albion process), and each time took it (300 mg 4 times thru day), got the tingling, and more and more color (feet and hands NO color before). Got another push a week from the first, again, great response in energy level, in skin color, in feeling, and by now walking million times better (can now feel ground and toes) --saw my chiro day after the 2nd second push, and she marveled at how my back muscles, usually a tight band right down the mild scoliosis ridge I have, were so incredibly relaxed! So I continue with the Mg supplements (take Ca also or will mess up again) and will get a push each week with the EDTA chelation, and I KNOW I am on road to recovery. I am so totally different to what was 2 weeks ago.
i thnk this is worth exploring by lots of people here on this forum. So many of the issues we have are ones tht involve mg--nerve, muscle, depression, cardio, CFS, proper oxygenation of BBB, etc
But it has to be done carefully. I think part of my problem here is that I upped my Vitamin D to a very high dose per day when finally measured it, and found it deficient. If increase D, need to increase Mg--I continued with the amt I was on, did not realized then that I need to increase the Mg--and as I say, I was not taking the Albion process form, and I do have a know absorption problem (probably celiac--allergic to gluten, gliadin, milk, Multilpe allergies).
But I stress, Mg cannot be used in isolation. For the past 15 years, after getting seriously ill, have been careful with diet, and take a good amt of supplements--mg alone will not heal--(but even alone it will show you how astoundingly much you need it)--but for its continuation, need to take the complements--Calcium, C , ete etc etc etc. AND most importantly for long term, eat well.
try the magnesium--you cannot correct low potassium without enough magnesium, no matter how much potassium you are taking. (been there...)
Did you test for H phlori? If positive, can correct that with antibiotics (I can't recall off-hand which one, easy to check this).
Mg is imp for nerve conduction--so you leg and other MS-like symptoms could be super low magnesium.
Potassium is needed to correct dry eyes (as well as other stuff of course), and as I say, you will not correct low potassium without enough magnesium.
Any chance you have a reasonable doctor who would give you a magnesium "push"? That is a venous injection of magnesium chloride--I recently got one, and AMAZING--had been taking chelated mg for years, but not the Albion Labs chelation form--the first push made me realize maybe my MS was induced by malabsorption--anyway, my years long Raynoud's syndrome is clearing up incredibly, the Mg went right to my fingers and toes! tingling beautifully (usually NO feeling). so for the week after the push, took Doctor's Best chelated Mg (uses the Albion process), and each time took it (300 mg 4 times thru day), got the tingling, and more and more color (feet and hands NO color before). Got another push a week from the first, again, great response in energy level, in skin color, in feeling, and by now walking million times better (can now feel ground and toes) --saw my chiro day after the 2nd second push, and she marveled at how my back muscles, usually a tight band right down the mild scoliosis ridge I have, were so incredibly relaxed! So I continue with the Mg supplements (take Ca also or will mess up again) and will get a push each week with the EDTA chelation, and I KNOW I am on road to recovery. I am so totally different to what was 2 weeks ago.
i thnk this is worth exploring by lots of people here on this forum. So many of the issues we have are ones tht involve mg--nerve, muscle, depression, cardio, CFS, proper oxygenation of BBB, etc
But it has to be done carefully. I think part of my problem here is that I upped my Vitamin D to a very high dose per day when finally measured it, and found it deficient. If increase D, need to increase Mg--I continued with the amt I was on, did not realized then that I need to increase the Mg--and as I say, I was not taking the Albion process form, and I do have a know absorption problem (probably celiac--allergic to gluten, gliadin, milk, Multilpe allergies).
But I stress, Mg cannot be used in isolation. For the past 15 years, after getting seriously ill, have been careful with diet, and take a good amt of supplements--mg alone will not heal--(but even alone it will show you how astoundingly much you need it)--but for its continuation, need to take the complements--Calcium, C , ete etc etc etc. AND most importantly for long term, eat well.