You just did help this study! A lot!Patches wrote:Hi Andrew
I'm a 56 year old male living in the united states with secondary progressive MS.I took Avonex for one year Rebif for six months and continued to get worse.So I turned to the internet and
found LDN been on 4.5 for 1.5 years. I didn't get the results that some people talk of but getting off of the MS drugs with all the bad side effects I was able to stop the medication for
urinary urgency and the medication for depression.I give a lot of credit to the LDN for stopping
the progression and helping to get off of the medication that I mentioned. I raised my bed 6
inches 12-2-09 the things that I have noticed are the urinary urgency that the LDN helped
with are all most all gone- the muscle cramps (or Charley horses) that I was having a lot of
are gone. Fourteen years ago I lost sight in my right eye from optic neuritis it took about a
year to get better but only about 80 percent better but now it seams that I can see better out of
that eye.I have toe drag and a weak ankle in my left leg and have to wear a brace to walk that
hasn't got any better but the leg was cold all the time that's a lot better. Any way I would like to
help with your study but I take a supplement called (Natto Serrazime) one twice daily this
supplement doesn't thin the blood but it makes it flow better. And a lot of vitamins I wounder if this would make me not eligible?
Thanks for all that you're doing to help Andrew
Patches
I hope Franz Schelling Paolo Zamboni, Simka, Dake et al have been following these threads.
The Hipocratic Oath dictates do no harm. Surely we have already seen enough evidence that surgery should be a last resort and Inclined Therapy should be the first move for anyone with multiple sclerosis?
Your post also proves the results in the first and second pilot studies.
Now to help you regain the rest of your lost function:
First of all purchase a humidity meter and pay attention to how high the humidity is in your bedroom at night. We are looking for around 50% or less for optimum benefits from I.T. If you find it is higher, then you must consider obtaining a dehumidifier and leaving it running in the hallway with bedroom door open at night.
A dryer atmosphere together with the inclined bed is a useful tool for recovery.
Pauline, a lady from the first study was first to try this combination and her results were unprecedented, in that each time she used the dehumidifier, her dropped foot problem became better by morning. When she didn't use it and the humidity was higher, her dropped foot would be back the next morning.
This "for me and Pauline" provided the icing on the cake for my theory on density flow in the circulation.
The next thing I want you to do is to modify your sitting posture during the day, so that whenever you sit, your bottom is higher or at least level with your knees. Never sit with your knees higher. (bucket type / wheelchair posture) makes sense when density flow is taken into account and compromises the circulation in several ways. Pressure on the buttocks from the weight of your frame pressing against the tissue beneath your pelvis is the main problem, and this applies to all forms of sitting. However, sitting with your seat higher than your knees affords an increase in circulation to your legs, which means the circulation throughout your body is also improved.
This means that the lymphatic and cerebrospinal fluid is also improved during the day, so coupled with the obvious benefits you have already found on the inclined bed, we should see a marked difference in a relatively short period of time.
Secondary and primary ms has not been shown to improve using venous surgery, certainly no where near the improvements you and others have reported.
We are all hungry for more reports from people trying I.T. for ms so if you are reading this and have something to add, please write it here or in the other Inclined Bed Therapy threads.
Would like to know more about your journey using I.T. What was it like when you first tilted your bed? How long before you noticed improvements? Have you noticed changes in hair and finger / toe nail growth? Muscle density changes? Strength, endurance, sensitivity, sleep quality, wake up compared to sleeping flat? bouts of optic neuritis? Did you have any signs of good days and bad days and if soo were these linked to weather changes?
Where did you find out about I.T.?
Patch, thank you thank you thank you on behalf of everyone here for joining us and adding your voice to I.T.
Andrew