They (and he) are SCREAMING and laughing and he's not yelling at them to be quiet (noise was almost painful to him) . I am trying not to cry...
Dr. Mehta in Albany, NY - Thank you, Kacey!
Michael and the kids are tearing the house down right now. He is running, picking them up, throwing them on the couch. Been going on for 20 minutes straight. AND he's enjoying it. This does not happen in my house!
They (and he) are SCREAMING and laughing and he's not yelling at them to be quiet (noise was almost painful to him) . I am trying not to cry...
They (and he) are SCREAMING and laughing and he's not yelling at them to be quiet (noise was almost painful to him) . I am trying not to cry...
That sounds wonderful, Kacey. Being on the other side (sometimes pained by my children's noise) I can relate too well.
edited to add: you know, I'll call Mehta tomorrow and get on the list if possible. I'd rather do this close but I also want to get it done, period, and hey, it's closer than Poland....
edited to add: you know, I'll call Mehta tomorrow and get on the list if possible. I'd rather do this close but I also want to get it done, period, and hey, it's closer than Poland....
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
kacey thanks
hi icalled dr mehta and now am on the list to do trials in february they were quite nice Said they have gotten a ton of people calling. Thanks I want to jump around with my kids!! Barbara
Wanted to clear up my earlier post where I was crying because Mehta
s office called to cancel my 2/4 and left it on my answering machine.
I called the next morning and was put thru to his researcher who stated that they were taking February to get the protocol they were going to do straight. I was elated.
I think maybe starting out with balloon tx is the way to go for me. If I need stents in the future so be it.
I noticed that when I am having a bad day my right eye lid kinda droops. I initially chaulked it up to aging, but there is a distinct diff between my righ and left eyes. I took a picture of it but cannot seem to post it.
Will leave word on here after my appt. (They said sometime in March)
kc
s office called to cancel my 2/4 and left it on my answering machine.
I called the next morning and was put thru to his researcher who stated that they were taking February to get the protocol they were going to do straight. I was elated.
I think maybe starting out with balloon tx is the way to go for me. If I need stents in the future so be it.
I noticed that when I am having a bad day my right eye lid kinda droops. I initially chaulked it up to aging, but there is a distinct diff between my righ and left eyes. I took a picture of it but cannot seem to post it.
Will leave word on here after my appt. (They said sometime in March)
kc
I've been away from the board recently and maybe I missed something even though I've been trying to catch up, but I thought that Dr. Mehta was just doing testing. Is he also doing the procedure if stenosis is found?
Sorry - I searched Kacey's profile and found that her husband did have procedure by Dr. Mehta. Wonderful.
Sorry - I searched Kacey's profile and found that her husband did have procedure by Dr. Mehta. Wonderful.
Kacey, you're an *angel* to so many... I hope it's a wonderful feeling for you!
I just cannot let myself go back on Tysabri or Novantrone without knowing if I have venous stenosis or not. And if I do have stenosis . . .
What if some, or all, of my stenosis is treatable?
What if some, or all, of my symptoms can remit partially, or fully?
What if some, or all, of my quickly advancing progression can be halted before it's too late?
I just have to take this chance, a simple angio of a chance. Yes, Kacey, you are my angel, for finding Dr. Mehta. As you know, I started this thread as a special way to thank you -- but just you wait until after I have the testing/treatment!
Luv, HappyPoet
I just cannot let myself go back on Tysabri or Novantrone without knowing if I have venous stenosis or not. And if I do have stenosis . . .
What if some, or all, of my stenosis is treatable?
What if some, or all, of my symptoms can remit partially, or fully?
What if some, or all, of my quickly advancing progression can be halted before it's too late?
I just have to take this chance, a simple angio of a chance. Yes, Kacey, you are my angel, for finding Dr. Mehta. As you know, I started this thread as a special way to thank you -- but just you wait until after I have the testing/treatment!
Luv, HappyPoet
I actually found this encouraging, that they are putting in a month's worth of effort to get it right.kc wrote:I called the next morning and was put thru to his researcher who stated that they were taking February to get the protocol they were going to do straight.
I called this morning and have left my contact info with his secretary, Megan.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
yes to that! Thanks from me too, Kacey!HappyPoet wrote:Kacey, you're an *angel* to so many... I hope it's a wonderful feeling for you!
I'm a praying gal so I will be praying real hard that this study goes through. I already was signed up but got canceled from Dr. Haacke so I am really hoping there are no setbacks with dr. Mehta's work.
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
Re: Dr. Mehta
I called and was given an e-mail address
wilcoxm@albanyvascular.com
Write: MS Research Study in the subject line
I called and was given an e-mail address
wilcoxm@albanyvascular.com
Write: MS Research Study in the subject line
Last edited by annad on Thu Feb 04, 2010 8:57 am, edited 1 time in total.
Her response says that I have been added to the list of patients that they will contact in March to begin evaluations. Not sure how long that list is but it seems like a very positive response. This was all done today.
I am feeling hopeful.
I am feeling hopeful.
Last edited by Cece on Wed Feb 03, 2010 5:40 pm, edited 2 times in total.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
No idea what it is, but I have that too. I brought a picture to my doctor in the beginning...yes, it was vanity that led me to the doctor and when I mentioned that it fit in with all my right side weird differences (weak foot, pain in my hip, vision issues)...she got real interested, ordered an MRI, and next thing I knew I was at a neurologist getting an m.s. diagnosis.kc wrote:I noticed that when I am having a bad day my right eye lid kinda droops. I initially chaulked it up to aging, but there is a distinct diff between my righ and left eyes.
Anyway, if the lid droops enough that it blocks a certain percentage of your pupil, then it qualifies for eyelid surgery covered by insurance. Mine's not bad enough, but it still bugs my vanity.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Let's see...I emailed at 2 p.m. and heard back at 2:43 p.m.annad wrote:That's great! Congrats!
When did you e-mail her? I might resend an e-mail since I haven't heard.
I think you missed the m in her email address!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition