Buffalo Newsletter

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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MS_Jess
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Buffalo Newsletter

Post by MS_Jess »

Hi, I'm a newbie, but thought this warranted a new topic to make sure it isn't buried:

http://www.bnac.net/wp-content/uploads/ ... 4-2010.pdf
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zap
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Post by zap »

AWESOME.
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PCakes
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Post by PCakes »

WOW!
Good job Jess!!
dunkempt
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Post by dunkempt »

Although they say, "We cannot recommend endovascular treatment before we fully understand the safety of any approach we may propose," following their CCSVI diagnostics "patients and their neurologists will be able to discuss appropriate next steps"

Which next step would surely mean considering ... endovascular treatment.

Game, set, and match, I think.
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GuRu
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Post by GuRu »

:D GREAT :D
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newfie-girl
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Post by newfie-girl »

OMG!!!!!!!! It's going to happen for us, all the hard work of our pioneers paid off and God Bless Dr. Zambone, can't type anynore, tears are filling up my eyes and I can't see the screen............
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Post by Cece »

Wow! Very encouraging! So what could they mean about additional questions raised that will be addressed in phase 2 of the CTEVD study? I think I am out of wait for these study results!!! :)
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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fogdweller
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Post by fogdweller »

Though no results announced, the tone of newsletter SCREAMS success A new machine invented and developed for this disorder; further expanded studies, negotiations begun with the insurnace companies to cover this (how can you do that without positive results???) all the things that they were able to say in the nature of an exciting new direction for MS reaserch, the expanded research, the ,"I hope to soon be able to redcommend intravascular treatment" etc,. etc!!!

OMG, this couldn't be more exciting !!!!
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fogdweller
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Post by fogdweller »

Cheerleader, how excited are you?? many, many thanks for all your efforts.
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ozarkcanoer
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Post by ozarkcanoer »

MS_Jess !!!! This is the best news ever !!!!!!!!!!!!! I'm so glad you posted this !!!

ozarkcanoer
Cece
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Post by Cece »

Also wondering what their treatment is that's different from both Zamboni and Dake's!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Post by AlmostClever »

Sounds like a complete success! Can't wait to fire my nerdo -I mean nuero! hahahaha!

Zamboni gets the Nobel easily with this!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Bobbi
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Post by Bobbi »

Wow MS_Jess!
Hot off the press ..... thanks for the link.
Bobbi
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TFau
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Post by TFau »

Wow - I can't believe how positive this newsletter is! It's amazing!
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annad
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Post by annad »

Like the song says. . . . I've got a feeling. . . .
Great news!
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