Going For CT
- AJWANTSACURE
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Going For CT
going for my ct-scan today of jugular and azygos veins. According to Dr. Dake from what others have said, this is the BEST alternative if you can not find a radiologist to properly perform and read the dopplar scans
<strong>STAY IN THE FIGHT TO FIND A CURE FOR MS</strong>
Best of luck with your scanning.
If you haven't already seen these amazing images from a CT scan, here is the link: http://www.thisisms.com/ftopict-8515-.html
Also see this link: http://www.thisisms.com/ftopict-9753-.html
Keep us posted!
~HP
If you haven't already seen these amazing images from a CT scan, here is the link: http://www.thisisms.com/ftopict-8515-.html
Also see this link: http://www.thisisms.com/ftopict-9753-.html
Keep us posted!
~HP
- AJWANTSACURE
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got my ct scan. with and w/o contrast, i looked at the photos for hours. i dont't know what im looking at but when compared to some other phots i have seen there are a couple of photos of the head where the jugulaar appears wide then very narrow.
not sure....maybe im that 1% thaat doesnt have it. hope is dwindling
not sure....maybe im that 1% thaat doesnt have it. hope is dwindling

<strong>STAY IN THE FIGHT TO FIND A CURE FOR MS</strong>
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- AJWANTSACURE
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If it is necessary I will repeat this every day:AJWANTSACURE wrote:got the radiologist report - NORMAL!
thats my last bit of hope GONEEEEEEEEEEE!
1. I had ma Doppler done by Dr. Simka Aug. 7, 09 - left jugular valve problem, zero blood flow
2. I had 3 or 4 Dopplers in Slovakia and they knew what they were looking for - my jugulars were just perfect
3. I had CT with contrast in Slovakia - my jugulars were perfect
4. I had second CT in another hospital with contrast - my jugulars were perfect
5. I had MRV with contrast in Slovakia - my jugulars were perfect
6. I got a stent because another 2 MRVs in Poland showed problems + Dr. Ludyga found the same problem with Doppler + it was visible during phlebography as well!!!
Sorry, but your negative results does not mean much, well almost nothing. You still can have CCSVI.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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I hope there are some doctors in the US who are going to have proper training for Doppler.AJWANTSACURE wrote:thanks erika - maybe i need to go to poland
I know even some Slovak doctors go for the official doppler training in March to Italy.
I know Dr. Simka and Dr. Zamboni are/were in Northern America also for giving Doppler training to some doctors.
I strongly believe there are going to be more and more doctors who would be able to do proper Doppler.
On the other hand I completely understand you need it right now.

Good luck!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Of course I have heard of Dr. Dake. I started in this forum last year in July. It was full of Dr. Dake and his patients going for the procedure at Stanford.AJWANTSACURE wrote:Erika, can i ask how your doing since the procedure. Haave you heard of Dr. Dake at Stanford University in California USA?
- my balance is better - but not OK
- my walking is better - I walk faster and longer but I still use one cane
- I tolerate heat much better but after having a shower my left eye is worse - it is still sensitive to heat
- I can do more physicaly and I do not have the feeling to faint that often
- my vision is as bad as before the procedure
- I still have problems with my crazy BP and pulse - like this afternoon it was 152/92 and pulse was 135
- my fatigue is worse again after having flu, but I also goes to exercixe - first time after 6 years - I do only very slow and simple movements but even thou I get very tired and sleepy
- I am 99 days after the procedure and I for sure do not feel worse than before the procedure
- I think my EDSS is 5,0. It was 5,5 before the procedure.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- AJWANTSACURE
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