If you are referring to my post above, the point is I do not think I have made a fool of myself by adopting an open mind to a new way of thinking.LR1234 wrote:And the point of this post????
Paging Dr. Zamboni?
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whyRwehere
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ClaireParry
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Habenoughyet
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beggers become choosers
It is extremely hurtful to read the outpur of bitterness expressed towards a scientist and a man who has possibly opened a door for so many. Zamboni is not God and cannot therefore be ubiquitous and hold the hand of every MS person. A man found a snake freezing to death one day. Compassion won him, he lifted the snake and put it under his clothes next to his chest to warm it up in the attempt to save its life. The snake revived and bit the man injecting fatal poison in his blood. Next to death the man asked why it killed him although he saved its life: because I am a snake it replied.
Do I need to add anything more?
GiCi
Do I need to add anything more?
GiCi
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ozarkcanoer
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thornyrose76
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Man, I've read some bizarre posts in this forum, but that one about the snake is up there neat the top. I guess I don't really understand it - so the original poster is the snake who bites Dr. Zamboni? Weird.
You know, a lot of times people vent on thisisms. Almost all of the time people realize this. I get the impression the Chris1967's post was along these lines. Given the great hype surrounding CCSVI, I can understand the emotions. So, I don't understand why everyone is jumping on it, and I certainly don't see any reason for the moderators to delete it. Others here have no problem bashing neurologists, questioning their motives, saying they're in the pockets of drug companies, etc. I've seen at least two threads trashing one of the neurologists who helped develop Campath. Yet, no one had a problem with that.
No, Zamboni is not a god and doesn't owe anyone anything. But he did seek publicity early on, which I found a bit suspicious. And I don't think is was very professional to do that Canadian TV story. I can't imagine any serious doctor would have participated in a story like that.
I'm inclined to wait until the full report comes out from the Buffalo group before making any judgments on their data, but I can't but have a feeling it won't nearly live up to Zamboni's findings.
You know, a lot of times people vent on thisisms. Almost all of the time people realize this. I get the impression the Chris1967's post was along these lines. Given the great hype surrounding CCSVI, I can understand the emotions. So, I don't understand why everyone is jumping on it, and I certainly don't see any reason for the moderators to delete it. Others here have no problem bashing neurologists, questioning their motives, saying they're in the pockets of drug companies, etc. I've seen at least two threads trashing one of the neurologists who helped develop Campath. Yet, no one had a problem with that.
No, Zamboni is not a god and doesn't owe anyone anything. But he did seek publicity early on, which I found a bit suspicious. And I don't think is was very professional to do that Canadian TV story. I can't imagine any serious doctor would have participated in a story like that.
I'm inclined to wait until the full report comes out from the Buffalo group before making any judgments on their data, but I can't but have a feeling it won't nearly live up to Zamboni's findings.
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whyRwehere
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patientx,
That is so like you, to defend the rights of anyone who has something bad to say about ccsvi or Zamboni. If I thought Chris was for real, GiCi's message was appropriate. GiCi is probably not used to people using boards to try for some cheap thrill in their pathetic lives, to him I just want to say: Don't worry all the real patients are thankful. Just the people with a different agenda are desperate to badmouth and discredit....so sad.
That is so like you, to defend the rights of anyone who has something bad to say about ccsvi or Zamboni. If I thought Chris was for real, GiCi's message was appropriate. GiCi is probably not used to people using boards to try for some cheap thrill in their pathetic lives, to him I just want to say: Don't worry all the real patients are thankful. Just the people with a different agenda are desperate to badmouth and discredit....so sad.
px - there would be no Buffalo study had Dr. Zamboni not taken the bold steps he has taken. Same for Stanford. And all others.
Let's give credit where credit is due - Dr. Zamboni -
And speaking of credit ....let's not forget and overlook the fact that all of these incredible CCSVI-MS investigators all have a TEAM of skilled people that work with them. Each playing an important role.
Was it not only yesterday that we were all waiting for the Hillesclare [sp] report from Dr. Zamboni ??
And look where we are today PX . Thanks to the Dr. Zamboni team.
The frustration expressed by the original poster is misguided. I suspect due to not following the story from day one - as some of us have .
Once again .....Bravo Professor Zamboni
Mr. Success
Let's give credit where credit is due - Dr. Zamboni -
And speaking of credit ....let's not forget and overlook the fact that all of these incredible CCSVI-MS investigators all have a TEAM of skilled people that work with them. Each playing an important role.
Was it not only yesterday that we were all waiting for the Hillesclare [sp] report from Dr. Zamboni ??
And look where we are today PX . Thanks to the Dr. Zamboni team.
The frustration expressed by the original poster is misguided. I suspect due to not following the story from day one - as some of us have .
Once again .....Bravo Professor Zamboni
Mr. Success
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costumenastional
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When i read this post i just knew what would follow.
Chris didn't say Zamboni is a bad scientist. He just made a point about ethics, how our dear doctor handles public relations. Maybe in a kind of emotional way. And this is totally understandable.
But instead of understanding what he is trying to say, once again all others attack, pointing out that if it was not for him, this discovery would never have seen the light of the sun etc. Same goes for dr Zivadinov too.
Well, i think Chris knows that, so spare yourselves people.
And if you dont like what you read then dont bother to answer by attacking. Have you ever considered the possibility of Chris being right actually? Or you just go crazy when someone speaks his mind?
I agree with him in many ways. Yes. Zamboni owes not only to this forum but he should make a statement in general. He should spare a couple of hours to comment on Buffalo results. Why?
Why not?
What the fact that he doesn't means then? I didn't read a serious reply on that, not by him, not by you. Maybe because it isnt something we are allowed to talk in here cause everything is black or white. No. We are in grey area friends. Again. Believe it.
This forum is where it all started. If it wasnt for Cheerleader and a few other dear persons (myself excluded) i very much doubt that Zamboni's theory would be where it is, publicity speaking. This kind of impact is only due to sites like this, patients like us and caregivers like Joan. And if someone does not believe it he should take in serious consideration that even today CCSVI hasnt made it to the serious media yet.
This is why each and every one of us should help any way we can. But they owe to help too.
Of course Zamboni has probably made the discovery off the century, even if ccsvi will only take the MS research further and away from the status quo who is actually killing us slowly for profit. I personally think that God made his wife sick so a very good scientist could at last find the way to a CURE. YES, A CURE. Maybe not today but soon...
Of course Zivadinov deserves our gratitude for diving into deep, black waters trying to help giving so much status to the research. Especially when only a few were ready to follow.
But when someone is not afraid to get radical he should be able to stand behind his words, keeping the hope alive. There are patients that do not know how to interpret scientific papers, they don't know what numbers exactly mean or maybe they dont have the luxury of keeping themselves in track of every little detail. They just hear what Zamboni said in youtube. And i can only respect that. But this is exactly why more serious handling is expected from the pioneer doctors. Maybe it would be better not to speak at all until real conclusions are made. I dont know...
Zamboni is doing the best he can. I know this. Zivadinov is a very serious scientist that eventually will make CCSVI a reality. And Simka and Haacke and everyone who can see the truth. I just wish they could keep a steady line in the process. It is a very sensitive matter and if i was in their shoes i wouldnt be afraid to shout out loud that CCSVI is the key besides asking for 4500 just for diagnostics... For some reason they do. And this is like feeding the pigs that are waiting a chance to destroy our dreams.
Do not attack to each other. After all, noone has told you that CCSVI is a fake in here. Noone has the authority anyway. The word is out there by neuros, pharmas and all kind of fat ass leaches. And i feel that our doctors should play the PR game better.
For all our shakes. Orelse...
Chris didn't say Zamboni is a bad scientist. He just made a point about ethics, how our dear doctor handles public relations. Maybe in a kind of emotional way. And this is totally understandable.
But instead of understanding what he is trying to say, once again all others attack, pointing out that if it was not for him, this discovery would never have seen the light of the sun etc. Same goes for dr Zivadinov too.
Well, i think Chris knows that, so spare yourselves people.
And if you dont like what you read then dont bother to answer by attacking. Have you ever considered the possibility of Chris being right actually? Or you just go crazy when someone speaks his mind?
I agree with him in many ways. Yes. Zamboni owes not only to this forum but he should make a statement in general. He should spare a couple of hours to comment on Buffalo results. Why?
Why not?
What the fact that he doesn't means then? I didn't read a serious reply on that, not by him, not by you. Maybe because it isnt something we are allowed to talk in here cause everything is black or white. No. We are in grey area friends. Again. Believe it.
This forum is where it all started. If it wasnt for Cheerleader and a few other dear persons (myself excluded) i very much doubt that Zamboni's theory would be where it is, publicity speaking. This kind of impact is only due to sites like this, patients like us and caregivers like Joan. And if someone does not believe it he should take in serious consideration that even today CCSVI hasnt made it to the serious media yet.
This is why each and every one of us should help any way we can. But they owe to help too.
Of course Zamboni has probably made the discovery off the century, even if ccsvi will only take the MS research further and away from the status quo who is actually killing us slowly for profit. I personally think that God made his wife sick so a very good scientist could at last find the way to a CURE. YES, A CURE. Maybe not today but soon...
Of course Zivadinov deserves our gratitude for diving into deep, black waters trying to help giving so much status to the research. Especially when only a few were ready to follow.
But when someone is not afraid to get radical he should be able to stand behind his words, keeping the hope alive. There are patients that do not know how to interpret scientific papers, they don't know what numbers exactly mean or maybe they dont have the luxury of keeping themselves in track of every little detail. They just hear what Zamboni said in youtube. And i can only respect that. But this is exactly why more serious handling is expected from the pioneer doctors. Maybe it would be better not to speak at all until real conclusions are made. I dont know...
Zamboni is doing the best he can. I know this. Zivadinov is a very serious scientist that eventually will make CCSVI a reality. And Simka and Haacke and everyone who can see the truth. I just wish they could keep a steady line in the process. It is a very sensitive matter and if i was in their shoes i wouldnt be afraid to shout out loud that CCSVI is the key besides asking for 4500 just for diagnostics... For some reason they do. And this is like feeding the pigs that are waiting a chance to destroy our dreams.
Do not attack to each other. After all, noone has told you that CCSVI is a fake in here. Noone has the authority anyway. The word is out there by neuros, pharmas and all kind of fat ass leaches. And i feel that our doctors should play the PR game better.
For all our shakes. Orelse...