Timeline for ccsvi study-Canada

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
Andie
Family Member
Posts: 31
Joined: Tue Dec 01, 2009 3:00 pm
Location: Calgary
Contact:
Contact Andie

Timeline for ccsvi study-Canada

Post by Andie »

http://www.mssociety.ca/en/research/res ... ms_rfa.htm
Top
AlmostClever
Family Elder
Posts: 366
Joined: Mon Dec 21, 2009 3:00 pm
Location: Houston, TX
Contact:
Contact AlmostClever

Post by AlmostClever »

The maximum grant is $100,000 per year? for 2 years max?

What a joke! I read somewhere that the Buffalo study is going to take $5 million (someone check that number pls) !!!

I bet there's a maximum number of grants also - like,ummmm, 1?
If you can't explain it simply, you don't understand it well enough. - Al Einstein
Top
dunkempt
Family Elder
Posts: 142
Joined: Sun Nov 29, 2009 3:00 pm
Location: Heart of the Continent
Contact:
Contact dunkempt

Post by dunkempt »

The maximum grant is $100,000 per year? for 2 years max?

What a joke!
No, I think the MS Society wants to help with postage.

-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
Top
markus77
Family Elder
Posts: 122
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada
Contact:
Contact markus77

Post by markus77 »

actually i think postage is COD. : )
STAY REAL MY FRIENDS

dx 1989, spms
Top
User avatar
cah
Family Elder
Posts: 336
Joined: Tue Oct 27, 2009 3:00 pm
Location: Germany

Post by cah »

Here's what they've funded in 2008 (the money figures start at page 20):

http://www.mssociety.ca/en/pdf/research ... s_2008.pdf

On their site, I've found another pdf file that could be helpful for pushing CCSVI. It's called "Handbook for Government
Relations and Advocacy"

http://www.mssociety.ca/en/pdf/socact_g ... ngDiff.pdf
"There is only one good, knowledge, and one evil, ignorance." Socrates
Top
AlmostClever
Family Elder
Posts: 366
Joined: Mon Dec 21, 2009 3:00 pm
Location: Houston, TX
Contact:
Contact AlmostClever

Post by AlmostClever »

Pages 20-26 made me sick!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
Top
User avatar
ms2009
Family Member
Posts: 44
Joined: Sat Jan 16, 2010 3:00 pm

Post by ms2009 »

The current distribution of MS society funds reflects the current interest of its executives. It is very important to push them to look at the other end. The only way to do that is to tell donors to be specific about one type of treatment and to explore this option further.
Top
User avatar
Brightspot
Family Elder
Posts: 207
Joined: Fri Jan 15, 2010 3:00 pm
Location: Vancouver, Canada

using the MS Society handbook on taking political action

Post by Brightspot »

Thanks Cah for posting the MS Society link regarding how to go about taking political action. Since the the MS Societies are doing nothing to advance the chances of those of us with MS getting tested and treated for CCSVI, we really do need to take this matter to our elected representatives.
Top
User avatar
berriesarenice
Family Member
Posts: 80
Joined: Tue Dec 01, 2009 3:00 pm
Location: USA
Contact:
Contact berriesarenice

Post by berriesarenice »

AlmostClever wrote:Pages 20-26 made me sick!
Yup, the disparity is pretty staggering.
Top
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”