Ella's adventures in Katowice
5 days post op
Just got a phone call from Ella, been to work today aften flying home from Poland yesterday and arriving back at her flat at midnight. She says she felt strong and thought her balance was a bit better.
To me this is quite amazing... on the plane yesterday she was alert when I was dozing, she was joking with the men getting her off the plane, when all I could do was stand up straight. Today it took a good deal of energy to get myself out of bed and clean the house, and she is off to work, driving 35 minutes there and back and feeling elated.
To me this is quite amazing... on the plane yesterday she was alert when I was dozing, she was joking with the men getting her off the plane, when all I could do was stand up straight. Today it took a good deal of energy to get myself out of bed and clean the house, and she is off to work, driving 35 minutes there and back and feeling elated.
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
- Ruthless67
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Ella
Dovechick,
All I can say is YaHoo!!!!!!!!!
Lora
All I can say is YaHoo!!!!!!!!!
Lora
Brilliant news, let the healing begin!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
- Vhoenecke
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Thanks for being the mother that you are Dovechick. You Rock! I am a mother of 2 beautiful daughters and once I found out I had MS in Jan 2009 I was mortified for my daughters. I watched my dad die from this disease as well. Went from being a man who was loud and the life of the party to a man that described himself as "Two eyes looking out of a coffin" There is hope for my family and myself. I never thought this would happen. I am on the list for Bulgaria, June 2010 and can't wait for liberation.
Was there a concern flying so close to having the procedure done? I like to worry
Was there a concern flying so close to having the procedure done? I like to worry

- ozarkcanoer
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flying close to procedure
The clinic in Poland advised us to stay close for 5 days after the procedure just in case but we actually flew home after 4 days. Because of the blood thinning drugs there is a risk of bleeding, but the risk is fairly small since the wound is tiny. They do take blood samples before the op to ascertain your blood's need for thinners.
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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"Stay close for 5 days just in case"The clinic in Poland advised us to stay close for 5 days after the procedure just in case but we actually flew home after 4 days. Because of the blood thinning drugs there is a risk of bleeding, but the risk is fairly small since the wound is tiny. They do take blood samples before the op to ascertain your blood's need for thinners.

Was this because of anything specific in Ella's case? Because I booked flights based on their email:
And then, heck, added another day for fun. But that's still only 4 days. If they think it would be wiser to stay 5 days, I wish someone had told me...You need to arrive in Poland the latest 23rd March, departure 28th
March.
-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
stay in Poland
All my contact was with Dr Simka directly back in November, since then they have appointed an organiser/administrator to make hotel bookings and arrange transport between medical facilities. Additionally they have much more experience now than they had then of dealing with people have to travel by air.
It is my guess that they are now recommending what they think is best from their experience and to make the trip more affordable. I thought they were being a bit cautious at the time, other people were flying back the next day, but as I was not doing this for myself but for my daughter I decided to go close to what they recommended. If they had said stay 2 days I would have been happy with that...
It is my guess that they are now recommending what they think is best from their experience and to make the trip more affordable. I thought they were being a bit cautious at the time, other people were flying back the next day, but as I was not doing this for myself but for my daughter I decided to go close to what they recommended. If they had said stay 2 days I would have been happy with that...
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
- pegmegrund
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Re: thanks
This brought tears to my eyes. I know my mom would do the same for me. Thank you for keeping us up to date. Good to hear about Ella's day at work!Dovechick wrote: Looking back it is an amazing adverture that I would not have considered myself capable of. I'm a bit of a home bird and have never considered travel something to enjoy. But there you are: a parent will do anything for their child, no matter how old they are.
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My trip to Poland is a little tight in respect of convalesence. Procedure (assuming stenosis) on 25 March and flight return early am on 27th. In an ideal world I would have preferred more time but needs must. At least I will be fairly inactive as I will be pushed in a wheelchair.
For some reason none of my communications with Dr Simka have included any recommendations regarding length of stay in Poland.
For some reason none of my communications with Dr Simka have included any recommendations regarding length of stay in Poland.
Nigel
stay in poland
Nigel, I asked the question... he answered. Things are different now they have an administrator.
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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