CCSVI in Bulgaria

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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youbetcha
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Post by youbetcha »

annad - does your neuro not cc your GP with all reports etc? My neuro copies my GP with all MRI reports and any major changes, so, it will be my GP who provides me with information that I will need to take to Bulgaria. I am actually off to Greece this weekend for stem cells but once I get back, I will start working on getting things ready for Bulgaria.
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youbetcha
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Post by youbetcha »

@ annad
I forget to mention that we are both very lucky to have such understanding GP's!
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AnnaP
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Post by AnnaP »

Hi everyone,

What papers do we need?
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annad
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Post by annad »

I don't know if my GP gets my papers from my neuro but that will be the first place I check!!
thanks
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annad
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Post by annad »

AnnaP,
we're talking about the epicrisis that Dr. G. asks for us to take over.

According to google:
Epicrisis means:

English translation: patient case summary (epicrisis)
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AnnaP
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Post by AnnaP »

thanks :D
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Mechanicallyinclined
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Post by Mechanicallyinclined »

I'm pretty sure your GP should have the reports from your Neuro
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livabird
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Post by livabird »

I AM JUST GOING TO MY GP FOR MY HISTORY. I HAVEN'T SEEN MY NEURO FOR YEARS. YOUR GP WILL HAVE ALL THE NEURO STUFF THAT YOU NEED.
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alanbrowne
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Post by alanbrowne »

Livabird, that's fantastic news, you must be very very happy :D

Although I have a slot in May in Bulgaria, I have just found out that I have an appointment to see Dr Vogl in Frankfurt at the end of this month.....very excited :D
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livabird
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Post by livabird »

I AM EXCITED ALSO BUT A BIT NERVOUS TOO. FRANKFORT IS CLOSER FOR YOU ALAN THAT IS I HOPE WE ALL COME BACK ON HERE AFTER OUR LIBERATIONS. IT IS HARD TO FIND MANY TALKING ABOUT THEIR AFTER EFFECTS,
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alanbrowne
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Post by alanbrowne »

I too am nervous, just got confirmation that I have an appointment on the 29th March, if CCSVI is found, it's possible to have interventional procedure the very next day.... :D
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AnnaP
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I have a problem

Post by AnnaP »

Good Morning,

My computer got a virius and I had to reformat. In the process of reformatting, I lost a lot of important emails(CCSVI) Thankfully my emails can and will be retrived, including Dr. Grozdiniski's.
I'm scheduled for June, what else do we need to bring with us to Bulgaria besides the translated epicrisis??
Help please!

Anna
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livabird
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Post by livabird »

I THINK YOU NEED TO BRING PROOF OF MEDICAL INSURANCE DON'T KNOW WHY AS NO MEICAL INSURANCE WOULD COVER IT. THAT IS IT I THINK. THIS IS LIKE GETTING READY FOR A SCHOOL TRIP LOL
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AnnaP
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Post by AnnaP »

Thanks.
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Vhoenecke
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Post by Vhoenecke »

Too funny about the school trip Livabird. I have a CD of all my images done (MRI of brain, CT of brain, X-rays of spine) I think I will take all that I have with me. I always get copies of my neuro's reports. I do not think that I have an edss reported though. I will go to my GP and look into getting that, but what do I do if there isn't one reported? I am actually not that bad with visisble sypmtoms yet. There may not be one reported by my neuro. That's why I want to hurry up and get this procedure done. I don't want to go downhill anymore.
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