CCSVI - Aussie Action!
- avantitech
- Family Member
- Posts: 79
- Joined: Mon Oct 26, 2009 3:00 pm
- Location: Melbourne - Australia
- Contact:
Hi Val, fantastic news. I hope it goes well for you.
I'm in NZ and my friend has SPMS. We've been watching the developments in Oz, since it's not only close to us, but seems to be opening up to CCSVI more quickly than other places.
Are you able to post details of the clinic where you are having your venogram and possible procedure? I haven't seen it mentioned in any posts. Is it Dr Julie Gregg?
Another question, for any Aussies here who know about these things: Is it possible for Kiwis to be treated in Australia? Does anyone know of any potential problems with that? I'm assuming we're going private and paying.
Thanks a lot,
Roger
I'm in NZ and my friend has SPMS. We've been watching the developments in Oz, since it's not only close to us, but seems to be opening up to CCSVI more quickly than other places.
Are you able to post details of the clinic where you are having your venogram and possible procedure? I haven't seen it mentioned in any posts. Is it Dr Julie Gregg?
Another question, for any Aussies here who know about these things: Is it possible for Kiwis to be treated in Australia? Does anyone know of any potential problems with that? I'm assuming we're going private and paying.
Thanks a lot,
Roger
DR.ZIVADINOV'S SYDNEY VISIT
HI MEMBERS PLEASE SEE THE RECENT REPLY I HAVE RECIVED FROM M.S SOCIETY AUSTRALIA ON PROFESSOR DR.ZIVADINOV'S VISIT TO SYDNEY. ALL HIS INFOMATIONS ARE OPASITE HIS PRESS RELEASE ON NOVEBER 2009 ABOUT HIS FINDIND FROM HIS BUFFALO TEVD/CCSVI STUDIES.
THIS IS THE LETTER FROM M.S AUSTRALIA
REGARDS
SEEVA
Please be advised that an update on CCSVI has been posted onto the MS Research Australia website. www.msra.org.au <http://www.msra.org.au/>
To view the update please click on the following link;
http://www.msra.org.au/news-media/news.php#Buffalo
Kind regards
:roll:
THIS IS THE LETTER FROM M.S AUSTRALIA
REGARDS
SEEVA
Please be advised that an update on CCSVI has been posted onto the MS Research Australia website. www.msra.org.au <http://www.msra.org.au/>
To view the update please click on the following link;
http://www.msra.org.au/news-media/news.php#Buffalo
Kind regards
:roll:
Hi Everyone,
Quick update on my procedure with Prof T today. Thanks to Adolfo the Prof learnt that it is too long a process to check blood flow and just went straight to finding and treating stenosed veins. From go to woe it took just under an hour.
Checked RIJV and there was stenosis at the jugular valve (which was inverted). He ballooned this no probs. Then checked the LIJV and it was almost completely blocked at the inverted valve, in fact it was an 'anomaly' in that the blood had found a lesser vein to drain to. This stenosis was ballooned and it was a stubborn vein. Had to go to heavy duty balloon for a second go and finally opened the vein. Was good to see the blood (dye) running where it should.
Azygos vein is 'good and juicy' according to the Prof.
I have many more details and will post a youtube vid tomorrow. He permitted me to video the procedure and after editing I will post on youtube also. I won't comment on how my symptoms are just yet - want to let it all settle down a tad.
My neck is very tender and also all along the area where the wire was inserted. Hopefully feel a great deal better tomorrow.
Thanks for all your well wishes, Kerri![Big Grin :D](./images/smilies/4.gif)
Quick update on my procedure with Prof T today. Thanks to Adolfo the Prof learnt that it is too long a process to check blood flow and just went straight to finding and treating stenosed veins. From go to woe it took just under an hour.
Checked RIJV and there was stenosis at the jugular valve (which was inverted). He ballooned this no probs. Then checked the LIJV and it was almost completely blocked at the inverted valve, in fact it was an 'anomaly' in that the blood had found a lesser vein to drain to. This stenosis was ballooned and it was a stubborn vein. Had to go to heavy duty balloon for a second go and finally opened the vein. Was good to see the blood (dye) running where it should.
Azygos vein is 'good and juicy' according to the Prof.
I have many more details and will post a youtube vid tomorrow. He permitted me to video the procedure and after editing I will post on youtube also. I won't comment on how my symptoms are just yet - want to let it all settle down a tad.
My neck is very tender and also all along the area where the wire was inserted. Hopefully feel a great deal better tomorrow.
Thanks for all your well wishes, Kerri
![Big Grin :D](./images/smilies/4.gif)
- taxi
- Family Member
- Posts: 25
- Joined: Sat Jan 16, 2010 3:00 pm
- Location: Melbourne, Australia
- Contact:
Hi Kerri
Thanks for sharing the details. My wife is going in on Tuesday and we are very excited. (Well, I'm excited and I think she's a bit nervous). Good to hear that Prof T has reduced the time to one hour... will let her know that, I think she was worried about it, especially as she is super sensitive to cold.
Looking forward to hearing if things have improved for you.
Hey Adolfo, any updates from your end of town?
Cheers
Mark
Thanks for sharing the details. My wife is going in on Tuesday and we are very excited. (Well, I'm excited and I think she's a bit nervous). Good to hear that Prof T has reduced the time to one hour... will let her know that, I think she was worried about it, especially as she is super sensitive to cold.
Looking forward to hearing if things have improved for you.
Hey Adolfo, any updates from your end of town?
Cheers
Mark
- hwebb
- Family Elder
- Posts: 361
- Joined: Thu Nov 26, 2009 3:00 pm
- Location: Melbourne, Australia
- Contact:
mixed feelings
am curious to see your videos...but a bit scared too as my procedure is on Wednesday. I was planning to not look at anything during the procedure...and take a sedative if offered. I want to pretend it's not happening. Not sure how successful this approach will be. My family want to come along to the procedure - they think it's a show!
Helen
Helen
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