Phlebotomy anyone?
but when compared to the billions that all the bs labels generate big pharma (who's really calling the shots) would lose in a big way...It's scandalous but I believe true. The entire business of medicine is controlled including the docs and their education/guidelines, all of it...bottom line..they want patients 'treated' not cured..
There are now a number of people that show no blockage in their jugular veins or in the aczygous... and yet they have MS. Doesn't anybody else question this? Are they checking for iron in the brains of these people? If they are still finding iron, why? It is the same problem with the healthy controls, 29% of people have stenosis, no MS. And now we find lots of people with MS, but no blockages even though they have stenosis. It is infuriating that they are not checking for iron in the brains of these people, because if they have iron, how does it get there? Everyone seems to be in agreement that the iron is a problem because it causes neuronal death/oxidation etc... if these people have no iron in their brains, why do they have MS? And if they do have iron without the blockages, what does that say except that it has to be a metabolic problem or some other defect that causes accumulation of iron! They are so conveniently ignoring the discrepancies, trying to make the theory fit in with the CCSVI as a mechanical problem. It is so obviously spotty and unpredictable. Some people have the blockages/stenosis, some people do not and yet they still have MS... until they test the healthy controls and the people with MS that do not have blockages/CCSVI for iron in those brains, the whole theory is totally incomplete... there is no cause-and-effect.
Katie45-this is the other main argument why people should be testing iron metabolism. If they find out they are iron loaders, they don't have to do the drugs, they don't have to do the surgery, they don't have to bankrupt themselves trying to buy Exjade every month. We are just iron loaders! We are easily treated by phlebotomy! Quite frankly, I am going to do it at home with a 21gauge needle. I have not trusted the medical profession for many years, not since my myleogram which left toxic Myodil in my central nervous system. There are huge lawsuits going on in the UK over this because they have determined this caustic drug was the main cause of "back failure". The average person doesn't seem to realize that the medical system is not your friend. I learned the hard way. But now I am ecstatic because I can heal myself quite economically. And safely. And in a natural, more healthy way! That is one of the other reasons people should be testing iron metabolism, it gives them their power back.
An update on my progress: With my first blood test, I managed 4 days with good energy and no fatigue, then crashed back to my normal fatigue. With this blood test I'm on day 6 now and no daytime sleeping & very good energy levels, so it has lasted longer. I put this down to my iron levels going down quite dramatically. Ferritin has halved from 121 to 73.
found this statement interesting....Most people who have both genes for the disorder don't require treatment as there Ferritin levels are still normal (+ info)
I'll try to find the link.....lookfordiagnosis.com
So drs. have it coming and going if this is the current beleif....don't they usually say single gene carriers don't load?
I'll try to find the link.....lookfordiagnosis.com
So drs. have it coming and going if this is the current beleif....don't they usually say single gene carriers don't load?
That's quite right Katie. Quite a few people with two hemochromatosis genes don't load iron. Others load very high and don't notice anything. Others feel very bad with lowish numbers.
I was talking to a friend yesterday, from a family with 7 siblings. Her brother has just tested positive for hemochromatosis and is having phleblotomies. Her sister had the tests and is positive too, but has normal iron studies, so wont be doing the blood thing. My friend wasn't even going to go and get tested, because she feels good!
Not sure if I changed her mind
I was talking to a friend yesterday, from a family with 7 siblings. Her brother has just tested positive for hemochromatosis and is having phleblotomies. Her sister had the tests and is positive too, but has normal iron studies, so wont be doing the blood thing. My friend wasn't even going to go and get tested, because she feels good!
Not sure if I changed her mind
I feel like I am railing against a huge propaganda machine. People are paying up to $4500 for testing, rather than do in iron metabolism panel? The reason the medical system is the way it is is because people are blindly trusting doctors to be working in their own best interests. Despite the fact that doctors are the fourth leading cause of death in the United States. The somehow always gets ignored. Look at Simka and his obviously, blatantly false, assertion that iron metabolism has nothing to do with the pathogenesis of multiple sclerosis... why would anybody ever trust this man with ignorance as profound as this?
I don't know that I will continue to use my energy trying to convince people that there is a simpler answer. It's very time-consuming, and really I'm just repeating the same things over and over. People have to be their own advocates, try to sort out what is true and what is not. You would think that people would immediately be questioning all of the MS therapies, the Betaseron's, the Avonex's, the chemotherapies etc., and how they are supposed to address iron in the brain. And having questioned those, you think people would question CCSVI, instead of treating it like it is some form of inviolate truth.
Look at the facts. 29% of the health controls had stenosis, no MS. We don't know if they had iron, because the study is so poorly designed, they don't test for that. Many people with MS are showing up with no stenosis... again, the studies are so poorly designed, they don't test for iron in the brain of these folks. Add to that, some of the people with stenosis that are having the angioplasty experienced pain and not much improvement... meanwhile, we cannot compare the results to a series of phlebotomies, because according to these brilliant doctors, there is no relationship to iron in the brain and iron metabolism, even though they fully relate iron metabolism to iron in the brain in other conditions. I mean it is so much nonsense, if people are that gullible, no wonder doctors have a full pockets... and every time you bring up the subject that there is iron in the brains in other conditions, it gets glossed over, like it is of no importance, and not relevant to MS. Meanwhile, my improvements are holding, and I'm shouting in the wind... it's not just this forum that I am on, and I find the same roundabout arguments that CCSVI must be causing MS because it is so identifiable.
http://jmg.bmj.com/content/41/4/261.abstract
I don't know that I will continue to use my energy trying to convince people that there is a simpler answer. It's very time-consuming, and really I'm just repeating the same things over and over. People have to be their own advocates, try to sort out what is true and what is not. You would think that people would immediately be questioning all of the MS therapies, the Betaseron's, the Avonex's, the chemotherapies etc., and how they are supposed to address iron in the brain. And having questioned those, you think people would question CCSVI, instead of treating it like it is some form of inviolate truth.
Look at the facts. 29% of the health controls had stenosis, no MS. We don't know if they had iron, because the study is so poorly designed, they don't test for that. Many people with MS are showing up with no stenosis... again, the studies are so poorly designed, they don't test for iron in the brain of these folks. Add to that, some of the people with stenosis that are having the angioplasty experienced pain and not much improvement... meanwhile, we cannot compare the results to a series of phlebotomies, because according to these brilliant doctors, there is no relationship to iron in the brain and iron metabolism, even though they fully relate iron metabolism to iron in the brain in other conditions. I mean it is so much nonsense, if people are that gullible, no wonder doctors have a full pockets... and every time you bring up the subject that there is iron in the brains in other conditions, it gets glossed over, like it is of no importance, and not relevant to MS. Meanwhile, my improvements are holding, and I'm shouting in the wind... it's not just this forum that I am on, and I find the same roundabout arguments that CCSVI must be causing MS because it is so identifiable.
http://jmg.bmj.com/content/41/4/261.abstract
I am ((almost) relieved to finally see some posts containing justified outrage at the deliberate ignorance of 'modern' medical professionals..People with blind trust in incompetant wearers of white smocks facilitating this slow death march. M, it's a lonely feeling to be using simple logic against the powers that be and gullible, brainwashed people....please know you're not alone. I have always (since '84 known I was being poisoned (I didn't know it was iron) but knew it wasn't a bloody 'label''
http://tinyurl.com/yzkrfld
I mean read the first paragraph... the hemochromatosis genetic mutations in the first paragraph.
I mean read the first paragraph... the hemochromatosis genetic mutations in the first paragraph.
http://www.ncbi.nlm.nih.gov/pubmed/1595 ... t=Abstract
Mutations in the hemochromatosis gene (HFE) and multiple sclerosis.
Ristić S, Lovrecić L, Brajenović-Milić B, Starcević-Cizmarević N, Jazbec SS, Sepcić J, Kapović M, Peterlin B.
Department of Biology and Medical Genetics, School of Medicine, University of Rijeka, Braće Branchetta 20, 51000 Rijeka, Croatia. smiljana.ristic@mamed.medri.hr
In the present study we have investigated whether HFE gene polymorphism may play a role in the disease process of Croatian and Slovenian MS patients and their potential genetic susceptibility to MS. We genotyped 314 MS patients and 400 healthy controls for the C282Y and H63D mutations by polymerase chain reaction/restriction fragment length polymorphism (PCR-RFLP) analysis. Our results showed no significant differences in the distribution of the two mutations between MS patients and controls, suggesting that HFE polymorphisms do not contribute to the susceptibility to MS. Also, there was no significant correlation between HFE polymorphism and the disease progression index. However, we observed that MS patients carrying the mutant C282Y allele exhibited earlier onset of disease symptom relative to other genotypes, but it warrants further study in a larger series of MS patients.
All one can surmise is they got slapped for making this known or they have a serious alz problem themselves...Simka did a complete 360 on this one in the stmt I posted..makes you wonder to say the least! I'm still on the wrong planet . Someone else is publishing under Simkas name? They don't read their own stuff?
http://www.medscape.com/viewarticle/554163
According to the study, hemochromatosis genotypes, including H63D and C282Y single neucleotide polymorphisms (SNPs), have previously been linked to Alzheimer's disease, Parkinson's disease, amyotrophic lateral sclerosis, multiple sclerosis, cerebrovascular disease, and stroke.
However, this is "the first time we've been able to determine this gene predicts such a significant increased risk of stroke," Borge Nordestgarard, MD, DMSc, the study's principal investigator, said in a statement from the American Academy of Neurology.
I am heterozygous C282Y/wild
http://www.medscape.com/viewarticle/554163
In addition to being homozygous for C282Y in the HFE gene, individuals homozygous for H63D, compound heterozygous ( C282Y/HG3D) or heterozygous for C282Y ( C282Y/wild type) also have biochemical signs of iron overload.