Doubt!

[Loriyas]

I couldn't have said it any better Ken. We each come to a point where we have to try something and so we go forward with it hoping that it is the answer for us. And although other people may go a different direction we can all learn from each other's experiences. Because in the end we are the ones dealing with this disease and we all need to rely on each other for advice, hope and support. Each of us must find what works for us even if it is different for everyone. All we can do is try!!

Lori

[MaggieMae]

Chris,

You are so right. I also know what it is to look into the face of someone you love who has this terrible disease. I know that feeling of - I must do something to correct this, to help, to find an answer. You and Bob and others feel this too. I read it in your posts.

[notasperfectasyou]

Lori, Ya counting down the days? I bet you are! Ken

[Loriyas]

Ken, you bet I am! We leave on Sunday for my appointment on Monday. If anyone thinks of any questions, etc I should ask please let me know. I know my time will be limited and I want to be as efficient as possible.
Thanks
Lori

[notasperfectasyou]

Ken, you bet I am! We leave on Sunday for my appointment on Monday. If anyone thinks of any questions, etc I should ask please let me know. I know my time will be limited and I want to be as efficient as possible.
Thanks
Lori

And anything you forgot to ask you can forward to me .......

I know of 2 things I want to ask:

1) Maintenance. The Wheldon protocol features a tappering off and eventual completion. In an environment dealing with a common bacteria, should folks continue some form of maintenance long after the 2-4 year protocol?

2) Pathogenesis. Is any one theory of how CPn causes myelin loss becoming more favored? Molecular mimicry, IFN Gamma or something else?

I really think most all of my other questions have been answered by Sarah and others here. I can't wait to here what you have to say afterwards. Ken