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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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JOJOB
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New one on the site

Post by JOJOB »

:D

Hello,

I am new on this forum and I 'd like to thanks everybody for the help concerning CCSVI. I have MS since jan 2005 declared date and I have an appointment with Dr Franceschi in Paris on the 15th March for doppler/ultarsound. I will then try to have the operation may be in Bulgaria as it seems to be the quickiest at the moment... In France there is nothing at all about CCSVI.

I would like to apologise if my english is not to the top but I am french...

Well, let everybody know what happens....
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jimmylegs
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Post by jimmylegs »

welcome to TIMS, jojob :)
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youbetcha
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Post by youbetcha »

JOJOB - Welcome!

Once you have your test done, won't Dr. Franceschi refer you to an interventional radiologist there in France who can help you?

Yes, please keep us posted as I have read other posts that claim they were treated in France.

All the best.
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JOJOB
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Post by JOJOB »

youbetcha wrote:JOJOB - Welcome!

Once you have your test done, won't Dr. Franceschi refer you to an interventional radiologist there in France who can help you?

Yes, please keep us posted as I have read other posts that claim they were treated in France.

All the best.

Thank you for answering so quickly, I am going to try to have the venography and operation in france, but I have serious doubts as only 2 persons had it done in france. Nevertheless, I am certainly going to try and insist as much as I can....

I will let you know on the 16th of March...

Amicalement,
jojob
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JOJOB
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Post by JOJOB »

jimmylegs wrote:welcome to TIMS, jojob :)
Thank you very much for the links...

Amicalement,
jojob
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youbetcha
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Post by youbetcha »

I look forward to you posting once you have had your test done.

I'm following with hope of treatment being available in France as I have family in France and would be more than happy to have the procedure done there.

Good luck on the 16th!
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HappyPoet
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Post by HappyPoet »

Welcome JOJOB,

I'm happy for you! And thank you for saying you will come back to update us.

Will you please consider posting the IMPRESSION section from your official test reports on this thread: http://www.thisisms.com/ftopict-10403.html

A thread of such reports (or portions of reports) can be a learning tool for everyone interested in CCSVI -- participating would be a way you can help others!

I wish you the best of luck with the testing!
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LSITC
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Dr Francesci

Post by LSITC »

Bienvenue a TIMS

Bon chance a Mars 18. S'il vous plaît nous dire comment vous monter et si le Dr F sera en mesure d'effectuer des interventions chirurgicales pour vous

:)
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JOJOB
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Re: Dr Francesci

Post by JOJOB »

LSITC wrote:Bienvenue a TIMS

Bon chance a Mars 18. S'il vous plaît nous dire comment vous monter et si le Dr F sera en mesure d'effectuer des interventions chirurgicales pour vous

:)
Hello, LSITC

I will give all the results possible on the 16th of march after seeing dr Ftanceschi on the 15th.

Amicalement,
jojob
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JOJOB
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Post by JOJOB »

HappyPoet wrote:Welcome JOJOB,

I'm happy for you! And thank you for saying you will come back to update us.

Will you please consider posting the IMPRESSION section from your official test reports on this thread: http://www.thisisms.com/ftopict-10403.html

A thread of such reports (or portions of reports) can be a learning tool for everyone interested in CCSVI -- participating would be a way you can help others!

I wish you the best of luck with the testing!
No problem I will do so, and I hope it will help...

Amicalement,
jojob
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L
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Post by L »

Enchante de vous connaitre

Votre anglais est parfait!
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JOJOB
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Post by JOJOB »

L wrote:Enchante de vous connaitre

Votre anglais est parfait!
Pleased to meet you, L !

Thank you very much L and your French is apparently very good too !! :D

Amicalement,
jojob
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Vhoenecke
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Post by Vhoenecke »

Make sure you read and reply to already existing threads. It gets very crowded if we all make new threads. I have yet to author a new one as there are many there for me to join in. :?
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Dr Franceschi

Post by AndrewKFletcher »

JobJob

When you go see Dr Franceschi can you ask him to do a doppler test with you laying on an incline with the head end 15 cm's higher than your feet and compare results with standing and sitting tests?

Dr Franceschi has already made the connection with posture and ms and has stated so.

But we need confirmation about blood flow changes using inclined therapy.
Inclined Bed Therapy (IBT) | http://www.inclinedbedtherapy.com
Sleeping Inclined To Restore and Support Your Health For Free. Fascinating Science, Discovery, History and Medical Research In Circulation And Posture.
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Cece
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Post by Cece »

JOJOB, welcome to the forum & congrats, well done in arranging the imaging for yourself! Here's hoping it turns up a treatable stenosis!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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