Recovery time after liberation procedure

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
ndwannabe
Family Elder
Posts: 290
Joined: Sat Jan 02, 2010 3:00 pm
Location: SF Bay Area, CA
Contact:

Recovery time after liberation procedure

Post by ndwannabe »

:?:

How long and how "bad" is it after the procedure has been done?

Those who have done it - can you either point me to the already existing thread on this subject or just answer it here?

Thank you in advance!
DXed 09/07
<strong><strong>MSIS-29 = 88</strong></strong>
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

I haven't had it done yet but I've researched it here...there's basically nothing to recover from. A band-aid on the incision near the groin where the catheter went in. A prescription of blood thinners in case of clotting. Some have had headaches. It's an outpatient procedure & if it works, you probably feel better afterwards than you did going in to it. Hope to help.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
User avatar
Downunder
Family Member
Posts: 89
Joined: Mon Dec 21, 2009 3:00 pm
Location: Melbourne, Australia

Post by Downunder »

I had the angioplasty last week. It's a day procedure and yes you just have a bandaid over the point of insertion in the groin.

You have to lie flat for a couple of hours afterwards, then I got up and sat in my wheelchair for 2 hours before my husband arrived to pick me up.

I felt tired for a day or so, but still able to do everything as before. I don't even have blood thinners to take!!

So to answer you, you'll feel the same or better immediately after the procedure and you'll be up and 'running' a couple of hours later.

Hope that sets your mind at ease.
User avatar
Donnchadh
Family Elder
Posts: 526
Joined: Sat Jan 23, 2010 3:00 pm

Post by Donnchadh »

They put a bandage over the incision (which was very small 1/4 inch?), and had me lie on my back for 4 hours. Got up, walked a bit, then released. No pain, no headaches. Tired, but then it was a long day.

Prescibed Plavik for 30 days (one pill per day).

Started to feel better the next day.

Donnchadh
User avatar
ndwannabe
Family Elder
Posts: 290
Joined: Sat Jan 02, 2010 3:00 pm
Location: SF Bay Area, CA
Contact:

Really?!?!

Post by ndwannabe »

On my!

Thank you all for responding!

I might be then having one of the "brain fog" episodes because I (think) I am remembering people posting about stiff necks and not handling anything for a certain time...
User avatar
hwebb
Family Elder
Posts: 361
Joined: Thu Nov 26, 2009 3:00 pm
Location: Melbourne, Australia
Contact:

recovery advice

Post by hwebb »

it probably depends on where they've ballooned. I was smiling and laughing coming out of the operating theatre..but felt quite sensitive in my head for a couple of days (stenosis was in my head). When the sensitivity subsided, I had a weird feeling for another couple of days. Strangely, it felt like part of my head was full of scrunched up newspaper. Also seemed to go through a a day or two where it felt like my venous sinuses were readjusting to the new fluid dynamics in my head.

These were more unusual, uncomfortable feelings ...not painfl. They didn't stop me going about my day.

hwebb
User avatar
Salvatore24
Family Elder
Posts: 109
Joined: Sun Nov 29, 2009 3:00 pm
Location: Melbourne, Australia

Post by Salvatore24 »

I think the only people who had noticeable discomfort post-op were those that had stents placed in the jugulars. I'm not sure if the same discomfort was experienced for those with Azygous issues.
User avatar
hwebb
Family Elder
Posts: 361
Joined: Thu Nov 26, 2009 3:00 pm
Location: Melbourne, Australia
Contact:

azygous less after-effects

Post by hwebb »

that's true! they ballooned my azygous too - and i haven't felt any discomfort since (hardly aware of any changed sensation around the azygous)
User avatar
EnjoyingTheRide
Family Member
Posts: 75
Joined: Thu Nov 12, 2009 3:00 pm
Location: Maine
Contact:

Post by EnjoyingTheRide »

I had both jugulars and azygos ballooned, but no stents. Recovery is comparable to getting a haircut :D

Biggest issue is taking blood thinners for 2 months afterward. No big deal for me, but it is a slight change in body chemistry.
Mitch
Please visit my blog at www.enjoyingtheride.com
User avatar
ndwannabe
Family Elder
Posts: 290
Joined: Sat Jan 02, 2010 3:00 pm
Location: SF Bay Area, CA
Contact:

Post by ndwannabe »

EnjoyingTheRide wrote:I had both jugulars and azygos ballooned, but no stents. Recovery is comparable to getting a haircut :D
:lol: That's a funny comparison :lol:

Thanks again, everybody!
User avatar
whyRwehere
Family Elder
Posts: 917
Joined: Mon Oct 03, 2005 2:00 pm
Contact:

Post by whyRwehere »

The people with shoulder pain/neck pain, had stents put in, not just angioplasty.
User avatar
THEGREEKFROMTHED
Family Elder
Posts: 162
Joined: Sat Mar 27, 2010 3:00 pm

recovery from ccsvi

Post by THEGREEKFROMTHED »

boy there are some thick skinned people out there! I am a firm believer in CCSVI theory but comparing the procedure to getting a haircut? I am a fitness fanatic, eat great, good shape, and hate to be the gloom and doomer but took me a good 2 weeks to recover. I did somehow happen to get a urinary tract infection and i dont think that helped matters but i didnt have stents either. Plus the warfarin drug is just that. War it is and fairin it aint. Shouldnt stop anything or anybody it isnt anything one cant overcome. But lets be real anytime you get poked and prodded there is some recovery.
User avatar
EnjoyingTheRide
Family Member
Posts: 75
Joined: Thu Nov 12, 2009 3:00 pm
Location: Maine
Contact:

Re: recovery from ccsvi

Post by EnjoyingTheRide »

THEGREEKFROMTHED wrote:boy there are some thick skinned people out there! I am a firm believer in CCSVI theory but comparing the procedure to getting a haircut?
Maybe it's not that I'm thick skinned. Maybe I've just had some really bad haircuts. :D

Seriously though, I guess I just had a really good go of it. No complications, no follow-up illnesses. Although I've heard that coumadin gives some people trouble, I've been lucky. I don't even know I'm on it. But my blood tests confirm that I'm getting the right dosage.

Part of this may be that I sit in a wheelchair all day anyway, which is not very demanding on the body. When you don't ask much of your body, it's less likely to let you down.
Mitch
Please visit my blog at www.enjoyingtheride.com
User avatar
THEGREEKFROMTHED
Family Elder
Posts: 162
Joined: Sat Mar 27, 2010 3:00 pm

enjoy the ride

Post by THEGREEKFROMTHED »

no you are wrong! You are thick skinned. You are a tough man and i give you a ton of credit. The travel alone is not easy let alone without assistance.. And those Brooklyn cab rides will kick your butt! Plus I am kind of a head case so I got myself pretty worked up during all that waiting around at Kings county. I think part of my problem was working myself up and all the events leading up to and coming down from! Keep me updated will ya! p.s. gimme that barbers number!
User avatar
Motiak
Family Member
Posts: 87
Joined: Wed Jan 06, 2010 3:00 pm

Re: Really?!?!

Post by Motiak »

ndwannabe wrote:On my!

Thank you all for responding!

I might be then having one of the "brain fog" episodes because I (think) I am remembering people posting about stiff necks and not handling anything for a certain time...
I believe most of those were from Stanford procedures where they had to treat high stenoses and there was accessory nerve damage from the ballooning.
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”