Dear THEGREEKFROMTHED:
Dr. Sclafani mentioned you were a patient of his. Is that a CCSVI patient?
If so, were you liberated?
You mention that you are presently on solumedrol. If so, could you tell us why? Are you in an MS exacerbation and CCSVI treatment did not help?
Thanks! Your post caught my eye as I don't know if you have posted any info or updates on CCSVI treatment and your health status. But this is the kind of info that I really hope to have when figuring out how effective CCSVI treatment is, I think it's important for all of us - we need to know the good, the bad, and a total picture of what's happening post-CCSVI-treatment, if that's what this is for you.
Any info would be greatly appreciated!
To: THEGREEKFROMTHED
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costumenastional
- Family Elder
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- Joined: Sat Jan 31, 2009 3:00 pm
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Eric, from where i stand you are absolutely right. Every liberated patient should sare with us. The good AND the bad. Hmm especialy the bad i d say...
This doesnt mean he has bad things to say. I really dont know.
But after a short conversation i have had with my fellow Greek, i think he knows where he stands very well. By that, i simply mean that if he doesn't want to post about his experience he has his reason and we should respect them whatsoever. I am not a lawyer of course and forgive me for taking this kind of liberty to reply. This goes for him too.
Maybe you could send him a private message next time before addressing to him out in the open as i would do with you if i didn't want to say that not sharing, doesnt mean anything about CCSVI itself.
Listen, we are all different. There is no miracles with liberation. It s only a matter of taking the "risk" and see what happens.
I for one can promise you, when i return from Sofia i ll tell you everything.
Take care friend.
This doesnt mean he has bad things to say. I really dont know.
But after a short conversation i have had with my fellow Greek, i think he knows where he stands very well. By that, i simply mean that if he doesn't want to post about his experience he has his reason and we should respect them whatsoever. I am not a lawyer of course and forgive me for taking this kind of liberty to reply. This goes for him too.
Maybe you could send him a private message next time before addressing to him out in the open as i would do with you if i didn't want to say that not sharing, doesnt mean anything about CCSVI itself.
Listen, we are all different. There is no miracles with liberation. It s only a matter of taking the "risk" and see what happens.
I for one can promise you, when i return from Sofia i ll tell you everything.
Take care friend.
The info that I posted was posted publically by TheGreek. Why on earth would I think that I needed to ask a question about it privately?
People are perfectly entitled to answer or not answer whatever they wish on the forum. Just because someone posts a public question does not mean someone is required to answer it publically. They have a choice to answer publically, to ignore it or to answer it privately.
A bit paternalistic, aren't you, costumenational, telling me how I should or should not post? Why didn't YOU bring your comments to me privately yourself?
People are perfectly entitled to answer or not answer whatever they wish on the forum. Just because someone posts a public question does not mean someone is required to answer it publically. They have a choice to answer publically, to ignore it or to answer it privately.
A bit paternalistic, aren't you, costumenational, telling me how I should or should not post? Why didn't YOU bring your comments to me privately yourself?
Bit of an overreaction here, just calm down and reread what costume said. It wasn't an inflammatory post.eric593 wrote:The info that I posted was posted publically by TheGreek. Why on earth would I think that I needed to ask a question about it privately?
People are perfectly entitled to answer or not answer whatever they wish on the forum. Just because someone posts a public question does not mean someone is required to answer it publically. They have a choice to answer publically, to ignore it or to answer it privately.
A bit paternalistic, aren't you, costumenational, telling me how I should or should not post? Why didn't YOU bring your comments to me privately yourself?
My question was of public interest since we all care about the outcome of treated patients. I was asking a question about information that was put out publically by TheGreek.
I see no reason why I shouldn't have asked my question publically. Just as it is certainly up to the responder to respond or not respond how he chooses.
I don't appreciate being told what I should post publically or privately, especially if my question is about the very subject of this forum, CCSVI. I really don't think we need to censor one another to that degree.
I see no reason why I shouldn't have asked my question publically. Just as it is certainly up to the responder to respond or not respond how he chooses.
I don't appreciate being told what I should post publically or privately, especially if my question is about the very subject of this forum, CCSVI. I really don't think we need to censor one another to that degree.