Sorry my "TiMS" writers, but I find it very difficult not to criticise these so called learned doctors for the way they have responded to this issue and even more so for the condescending comments they have made and continue to make.
Re: Freedman,
what have we done to lose the trust?
, well how about calling Zamboni a charlatan and stating that CCSVI will prove to be a hoax. The article states he has been researching the MS disease for 25 years, we know he receives significant funding from the MS Society, yet where is he with a cure, is he anywhere near a cure, does he know what causes the disease, can he prove the autoimmune theory ? I believe the answer to all those questions is a big fat NO. And yet he will not even consider the Zamboni Hypothesis despite it being close to the original theory olf MS !!!
Re: Knox,
I wish I could do better for them.
Well how about learning how to image veins, maybe go to Italy for training so you will be able to properly set up your MS Society funded research on the correlation of MS and CCSVI, and then you wouldn't have to make inane statement like you did about not knowing how to go about this research.
Re: Traboulsee,
Maybe its not the cure,
and
we want what is better for people.
First off, don't call CCSVI treatment "a cure" or even refer to it as "a cure". Secondly if you really want what is better for people, then get off the naysaying band-wagon and look at CCSVI with an open mind, and something that may indeed provide some relief to this insidious disease.
Regretably, Neuro's who have been vocal on this issue have a lot to answer for - input to the MS Society who have been active in getting a lid put on any meaningful research, they have influenced decisions that could have seen meaningful dollars going to research, and their continuous need for time consuming research when MS'ers don't have that time.
Oh and one final point for Freedman who again says he
understands their desperation,
MS patients ARE NOT DESPERATE, they simply want what appears to be a treatment that might give back some quality of life, and they are prepared to take the risk to have that treatment. It would be better if their doctors supported them instead of reprimanding them for for this choice.