Newbie here!

kollette · Post by **kollette** » Tue Oct 05, 2010 5:49 pm

Hi, I'm Kollette from the United States, Georgia to be exact. I am 30 years old, 31 on 12/12. I was officially diagnosed in august of 2008.

I have had symptoms since 1998, and possibly much earlier (I just always thought I was lazy). I have been to a total of 3 neurologists, the first when I was 21 who told me I was a hypochondriac and there was nothing wrong with me (oh lord how I wish he was right!!), the second 2 years ago when my whole left side went numb, and the chiropractor of all people said he thought I had MS, then the 3rd when I felt I needed someone more understanding on a personal level, so I chose a neuro who actually has MS, and is unfortunately in a wheelchair because of it. He was just as closed-minded as the rest. So, for the last 1 1/2 years, I have been going it alone.

I never started any traditional treatments, but did use LDN, until I got with the third neuro who would not give me another script, and for the record, I loved LDN. I am now trying to get funding together for the Liberation treatment.

I have been married for 12 years to the most wonderful man I have ever known and I have 4 high strung but loving children ages 9, 12, 13, and 14.

I am not currently disabled (according to state law), the only thing that keeps me from working is this God awful fatigue. I do however have a job coming up that I think I may be good at, its a work from home position as customer service for a satellite provider. I think I can handle that with MS, what do u think? For now anyway, until the cog-fog gets so bad that I cant remember my own name, maybe that will be enough for disability lol.

I am generally a happy, fun loving person, but of course as anyone with this uninvited guest knows, you have times of tears and depression, I dont think there is any way around it.

So, that's me! Glad to be here, and hope to meet many long time friends. And honestly, I don't know anyone with MS besides the girl in the mirror, and she doesn't talk much.

Post by **jimmylegs** » Tue Oct 05, 2010 6:16 pm

welcome to TIMS! lots of different ideas and expertise here.

while you save up for ccsvi i can help you with nutrition for ms if you are interested. ms patient bloodwork profile is significantly different from healthy controls.

i have yet to read how these nutritional differences could be caused by venous malformations, but i personally feel that it can't hurt to match your blood profile of nutrients to the profile of your average "healthy control"

PM me if you're interested! otherwise please find some relevant links in my signature, below. i don't agree with everything therein, but the links are a great starting point

jimmylegs

Mirry · Post by **Mirry** » Tue Oct 05, 2010 7:28 pm

Hi Kollette

Glad you found the forum and welcome.

You don't just have the girl in the mirror to talk to, you have us to talk to now.

I found this is the best place to be, because if I talked to myself any longer, people would think I was nuts

kollette · Post by **kollette** » Tue Oct 05, 2010 7:35 pm

I think us MSers have to be slightly unhinged in a way, to be able to deal with the disease process, on top of daily life. And if you are married and have children on top of all of that, then I think people EXPECT you to talk to yourself

Mirry · Post by **Mirry** » Tue Oct 05, 2010 7:38 pm

lol I never thought of myself as unhinged in anyway, but thinking about it, your probably right.

2 kids, 3 dogs and a husband, yep definitely talking to myself most days

kollette · Post by **kollette** » Tue Oct 05, 2010 7:45 pm

Im probably more than slightly unhinged, I talk to my cat everyday, who looks at me like im stupid of course. I talked to my washing machine today which was actually out of the ordinary, but the darn thing wouldnt cooperate.

The way I see it...my kids are in school, my husband works full time and I am here all day by myself, no one to talk to, so I figure I need to talk to myself to get comfortable with me, because Im spending a lot of time with myself, it would really suck if I didnt like me.

Mirry · Post by **Mirry** » Tue Oct 05, 2010 7:56 pm

yep that would really suck if you couldn't stand to be around yourself, it's like having the neighbor from hell

By the way, I am so jealous of you being in Georgia. We were hoping to get stationed there, but got Sth Carolina instead, were pleased with that too as it was our 2nd choice, but Georgia would of been the icing on the cake.

Mirry · Post by **Mirry** » Tue Oct 05, 2010 8:07 pm

Sent you a PM. It's playing up so you may not get it or you may get it a dozen times