Neuromyelitis Optica

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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DrCumming
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Neuromyelitis Optica

Post by DrCumming »

Hi all,

My turn to ask for help!

http://www.ninds.nih.gov/disorders/neur ... optica.htm

Has anyone heard anything about CCSVI being or not being present in these patients?
Cece
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Post by Cece »

According to Zivadinov, high prevalence of CCSVI in NMO.

www.sciencenewsline.com/medicine/2011041413000020.html
MS patients also were defined by disease type: relapsing-remitting (RR), secondary progressive (SP), primary-progressive (PP), progressive-relapsing (PR) and MS with neuromyelitis optical (NMO) -- a type of MS that affects the optic nerves and spinal cord exclusively.
The highest prevalence was seen in relapsing primary-progressive MS (89.4 percent), followed by non-relapsing secondary-progressive MS (67.2 percent), NMO (66.6 percent), primary-progressive MS (54.5 percent) and relapsing-remitting MS (49.2 percent). CCSVI prevalence was substantially higher in progressive MS than in non-progressive MS patients. In addition, patients with a progressive MS disease subtype had higher CCSVI prevalence than those with non-progressive MS.
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DrCumming
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Post by DrCumming »

Cece wrote:According to Zivadinov, high prevalence of CCSVI in NMO.

www.sciencenewsline.com/medicine/2011041413000020.html
MS patients also were defined by disease type: relapsing-remitting (RR), secondary progressive (SP), primary-progressive (PP), progressive-relapsing (PR) and MS with neuromyelitis optical (NMO) -- a type of MS that affects the optic nerves and spinal cord exclusively.
The highest prevalence was seen in relapsing primary-progressive MS (89.4 percent), followed by non-relapsing secondary-progressive MS (67.2 percent), NMO (66.6 percent), primary-progressive MS (54.5 percent) and relapsing-remitting MS (49.2 percent). CCSVI prevalence was substantially higher in progressive MS than in non-progressive MS patients. In addition, patients with a progressive MS disease subtype had higher CCSVI prevalence than those with non-progressive MS.
Thanks! I thought you might come to the rescue :)
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MegansMom
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Post by MegansMom »

That sign & symptom list sure does reek of CCSVI !
Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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1eye
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Post by 1eye »

Didn't Dr. Dake show some slides of NMO veins? I seem to recall there being some relation there.
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1eye
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Post by 1eye »

I wonder if the prevalence number goes down significantly if you do not distinguish between any 'MS'/CCSVI types.
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Loobie
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Post by Loobie »

If it's there, it's there in transverse myelitis, which is the 'myelitis' part of NMO. This is what my dx was for years. The japanese don't discriminate. To them, NMO is called Optico Spinal Multiple Sclerosis.
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