Stella HSCT Updates
Stella HSCT Updates
Stella HSCT Updates 20th - 24th August
Stella is currently in a coma in ITU on a ventilator and dialysis.
Marc, her husband is maintaining her blog to keep everyone up to date on Stella's progress, which I thank him for,
You can read Marc's updates on Stella at http://tinyurl.com/msrc-HSCTBlog
We all at MSRC wish Stella a quick recovery from this latest set-back.
Marc has asked me to say she's stable, she's a fighter & even though there is no long term prognosis as yet she will get through this. Finally he I knows she wouldn't want this to put people off having a stem cell transplant for their MS if the opportunity arose.
MS-UK - http://www.ms-uk.org/
- criptastic
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- criptastic
- Getting to Know You...
- Posts: 14
- Joined: Sun Sep 05, 2010 2:00 pm
That is true, but when used with other diseases, especially leukemia, HSCT fatalities do occur. Risk of infection is ever present, and she succumbed to the pathogens at the worst possible time--just a day or two after the transplant.
Stella had a Hickman line infection and sepsis following the conditioning phase of treatment, and they used the same site for the second Hickman. I can't help but wonder if there were a few pathogens still hiding out there.
I had high dose cytoxan (similar to HSCT) last November for another autoimmune disease, so am following HSCT very closely, in case I relapse sometime down the line. Currently I am quite stable, but still wish I'd known about SCT prior to having my procedure (learned about it the week I got home...)
Hang in there, Stella!!!!!
C
Stella had a Hickman line infection and sepsis following the conditioning phase of treatment, and they used the same site for the second Hickman. I can't help but wonder if there were a few pathogens still hiding out there.
I had high dose cytoxan (similar to HSCT) last November for another autoimmune disease, so am following HSCT very closely, in case I relapse sometime down the line. Currently I am quite stable, but still wish I'd known about SCT prior to having my procedure (learned about it the week I got home...)
Hang in there, Stella!!!!!
C
Stella HSCT Updates 25th - 28th August
Marc has kindly sent in some further updates on Stella's condition, you can read the latest blog entries at http://tinyurl.com/msrc-HSCTBlog
MS-UK - http://www.ms-uk.org/
- criptastic
- Getting to Know You...
- Posts: 14
- Joined: Sun Sep 05, 2010 2:00 pm
Stella HSCT update 4th September!
Stella HSCT update 4th September!
Stella is awake!
Read Marc's latest update at http://tinyurl.com/msrc-HSCTBlog
Stella is awake!
Read Marc's latest update at http://tinyurl.com/msrc-HSCTBlog
MS-UK - http://www.ms-uk.org/
Stella HSCT Updates 10th & 11th September 2011
Stella HSCT Updates 10th & 11th September 2011
Stella is improving bit by bit, you can read Marc's updates for the weekend on her blog at http://tinyurl.com/msrc-HSCTBlog
Stella is improving bit by bit, you can read Marc's updates for the weekend on her blog at http://tinyurl.com/msrc-HSCTBlog
MS-UK - http://www.ms-uk.org/
Re: Stella HSCT Updates
Hi,
Stella did HAVE the stem cell treatment, the subsequent problems have been caused by 2 or three infective organisms which have taken advantage of her immune compromised condition.
It is still too early to tell how the stem cell treatment has done due to all the other problems, but with time and as she is healed of the infections we will hopefully know more. I will be updating Stella's blog as soon as Marc, or hopefully herself soon , gives me the updates so we will be able to be with her every step of the way.
Stella did HAVE the stem cell treatment, the subsequent problems have been caused by 2 or three infective organisms which have taken advantage of her immune compromised condition.
It is still too early to tell how the stem cell treatment has done due to all the other problems, but with time and as she is healed of the infections we will hopefully know more. I will be updating Stella's blog as soon as Marc, or hopefully herself soon , gives me the updates so we will be able to be with her every step of the way.
MS-UK - http://www.ms-uk.org/
Re: Stella HSCT Updates
Stella HSCT Update 12th September 2011
Stella's temperature has gone back up, so another set-back.
You can read Marc's latest update at http://tinyurl.com/msrc-HSCTBlog
Stella's temperature has gone back up, so another set-back.
You can read Marc's latest update at http://tinyurl.com/msrc-HSCTBlog
MS-UK - http://www.ms-uk.org/
Stella HSCT Updates 16th - 18th September
Marc has sent in some new updates on Stella.
You can read the latest in Stella's recovery at http://tinyurl.com/msrc-HSCTBlog
You can read the latest in Stella's recovery at http://tinyurl.com/msrc-HSCTBlog
MS-UK - http://www.ms-uk.org/
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