ccsvi feasability

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
jsm6252
Newbie
Posts: 5
Joined: Fri Sep 16, 2011 3:15 am

ccsvi feasability

Post by jsm6252 »

I've read lots about ccsvi good and bad.
what is the general consensus about it?
User avatar
MarkW
Family Elder
Posts: 1167
Joined: Thu Oct 19, 2006 2:00 pm
Location: Oxfordshire, England
Contact:

No consensus

Post by MarkW »

There is no consensus on CCSVI. It is a personal choice usually governed by your approach to risk and do you have sufficient funds to go with your choice.
I assess that balloon venoplasty is a low risk compared to progression of my MS. I have sufficient money to have had balloon venoplasty on two occasions (June 2010 and June 2011) worth it for me.
Consensus takes a long time to acheive.

MarkW
Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: ccsvi feasability

Post by Cece »

I agree with Mark, I don't think there is consensus yet among patients, between neurologists and IRs, and among IRs themselves. Although I think most IRs would agree in general that blocked blood vessels contribute to abnormal flow and that they have the tools to fix this.

For me it was covered by insurance, so funding was not an issue. I had severe blockages and immediate improvements.
jsm6252
Newbie
Posts: 5
Joined: Fri Sep 16, 2011 3:15 am

Re: ccsvi feasability

Post by jsm6252 »

thankyou for your comments
User avatar
frodo
Family Elder
Posts: 1782
Joined: Wed Dec 02, 2009 3:00 pm
Contact:

Re: ccsvi feasability

Post by frodo »

jsm6252 wrote:I've read lots about ccsvi good and bad.
what is the general consensus about it?
CCSVI is a venous condition whose existence has never been questioned by any serious article. About the question whether CCSVI can cause MS or any other problem at all, no consensus has ever been reached. You will have to read the research articles and reach your own conclusions.
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Re: ccsvi feasability

Post by Lyon »

..
Last edited by Lyon on Wed Nov 09, 2011 7:51 pm, edited 1 time in total.
User avatar
IHateMS
Family Elder
Posts: 168
Joined: Sun May 17, 2009 2:00 pm
Contact:

Re: ccsvi feasability

Post by IHateMS »

what is accomplished by your CONSTANT negativity? Gets your rocks off or what?
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Re: ccsvi feasability

Post by Lyon »

..
Last edited by Lyon on Wed Nov 09, 2011 7:51 pm, edited 1 time in total.
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: ccsvi feasability

Post by Cece »

It is not true that hope alone supports CCSVI theory. There is evidence of an association between CCSVI and MS. There is precedence in other blood vessels in the body, that they function best when unblocked. My jugulars looked terrible pre-procedure. They looked much better after being treated.

I agree that we need research to prove the results so that this can go forward as evidence-based medicine. It is a treatment that I wish everyone with MS had access to, if they wanted it, and were comfortable with what is currently known and what is currently not known.
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”