"what part of MS are you the most afraid of?"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

"what part of MS are you the most afraid of?"

Post by Cece »

http://ms.about.com/b/2012/06/30/what-p ... aid-of.htm

The consensus among the readers' comments is that cognitive dysfunction is the biggest fear.

I don't know if that's true for everyone. Physical disability is pretty scary too. But cognitive dysfunction is frightening and unpleasant and disruptive to all aspects of life. Been there, done that... Cognitive dysfunction is also something which seems to respond to CCSVI venoplasty in many people, and which has a logical explanation for why CCSVI venoplasty helps.
tiltawhirl
Family Elder
Posts: 126
Joined: Sat Mar 17, 2012 7:47 pm

Re: "what part of MS are you the most afraid of?"

Post by tiltawhirl »

I've been through the valley, and hands down the biggest fear I have is the loss of hope again. Without hope, all bets are off.

tilt
...and I for one, welcome our new Neurologist overlords!

My before and after CCSVI treatment video http://www.youtube.com/watch?v=RhosV4_DvWw
Visit my Lego Amusement Rides website http://www.brickshelf.com/cgi-bin/gallery.cgi?m=Bolliger
User avatar
Robnl
Family Elder
Posts: 668
Joined: Sun Nov 08, 2009 3:00 pm
Contact:

Re: "what part of MS are you the most afraid of?"

Post by Robnl »

agree!

Second fear for me is to lose the ability to move hands, feet, legs.....as long as you can move these.....there is hope.
I can not walk without help, but i can move/lift my legs etc, i can stand up, can walk behind a walker...
PointsNorth
Family Elder
Posts: 683
Joined: Mon Sep 04, 2006 2:00 pm
Location: LeftCoast Canada
Contact:

Re: "what part of MS are you the most afraid of?"

Post by PointsNorth »

One more vote for Hope. Even tho my improvements were short-lived, the improvements experienced by others (& myself) makes me think we are now moving down the road to home.
Albany 2010. Brooklyn 2011
Hayes inspired Calcitriol+D3 2013-2014
Coimbra Protocol 2014-16
DrG B12 Transdermal Spray 2014-16
Progesterone 2015-16
Low-Dose Immunotherapy 2015-16
My Current Regimen http://www.thisisms.com/forum/regimens-f22/topic25634.html
User avatar
DougL
Family Elder
Posts: 384
Joined: Mon Jul 11, 2011 2:00 pm

Re: "what part of MS are you the most afraid of?"

Post by DougL »

my partner says losing the ability to walk.
User avatar
MarkW
Family Elder
Posts: 1167
Joined: Thu Oct 19, 2006 2:00 pm
Location: Oxfordshire, England
Contact:

Re: "what part of MS are you the most afraid of?"

Post by MarkW »

For me its not knowing how my MS could progress.
MarkW
Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
Luvsadonut
Family Elder
Posts: 116
Joined: Sun Nov 29, 2009 3:00 pm

Re: "what part of MS are you the most afraid of?"

Post by Luvsadonut »

Not being able to support my child
User avatar
1eye
Family Elder
Posts: 3780
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada
Contact:

Re: "what part of MS are you the most afraid of?"

Post by 1eye »

Can't be afraid of any of those anymore. Even death. Unless my kids get it.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
User avatar
blossom
Family Elder
Posts: 1394
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.
Contact:

Re: "what part of MS are you the most afraid of?"

Post by blossom »

that these symptoms someone named ms keep getting thrown in one basket and the causes and treatments are not looked into the way they should be.
Last edited by blossom on Tue Jul 10, 2012 7:52 pm, edited 1 time in total.
User avatar
HappyPoet
Family Elder
Posts: 1414
Joined: Thu Jul 09, 2009 2:00 pm
Contact:

Re: "what part of MS are you the most afraid of?"

Post by HappyPoet »

Am most afraid my 19 y.o. daughter has MS.

In addition to having occasional arm numbness and tinnitus, she was just diagnosed with hypothyroidism (enlarged thyroid) which immediately brought to mind DrS's CCSVI case in which IJV collaterals ran through the thyroid.
David1949
Family Elder
Posts: 928
Joined: Mon Aug 23, 2010 2:00 pm
Contact:

Re: "what part of MS are you the most afraid of?"

Post by David1949 »

1) That my children or grand kids might someday get it.
2) Hopelessness
3) Loss of cognitive ability
4) Loss of physical ability.

Funny thing; if you asked me yesterday I would have said the loss of physical ability was the biggest concern but after reading the comments of others I've changed my opinion to the above.
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”