Questions - help!

[SophieandElle]

Do any of you feel a pain in the front or sides of your neck? What the heck is that?!


Have you ever noticed that your symptoms are posture related? Any time I have to lean forward, especially w/arms out, symptoms flare afterward. This is: driving, pushing stroller, working on computer. What does this mean???

[Cece]

Do any of you feel a pain in the front or sides of your neck? What the heck is that?!


Have you ever noticed that your symptoms are posture related? Any time I have to lean forward, especially w/arms out, symptoms flare afterward. This is: driving, pushing stroller, working on computer. What does this mean???

You are not getting much of a response! It is slower here than it used to be.
I had an interesting experience when I went for my CCSVI ultrasound in Brooklyn. They were taking measurements of the veins and they were able to measure my right upper jugular but could not find my left jugular. I turned my head to glance at their computer and the technician said, "There it is!" and I moved my head back into correct exam position facing straight forward and the technician said, "No, it's gone, where did it go?" I admitted that it was because I'd turned my head and she had to convince me that it was ok to turn my head again so she could get the measurement.

Anyway, there is an external compression of some sort on my left jugular when I am facing forward or to the left. A muscle or the skull base can cause compressions. If you are having problems when you lean forward, that could be due to the same. If you are able to get an ultrasound done, it could be investigated in the different positions. To me, with the traditional explanation of MS (autoimmune disease, nerve damage), it doesn't make sense why symptoms would flare after an extended time of leaning forward, but with the CCSVI explanation of MS, there's a reason for that to happen.

[ThisIsMA]

I remember that there used to be someone with MS who posted here a few years ago that said when she was first diagnosed, and for the first few years after that, when she would look up at the ceiling, certain symptoms would go away or lessen dramatically. I think she said she had demonstrated this to her doctor who had no clue as to why it could be, but that as time went on, looking up didn't help as much anymore.

Disclaimer: I have a poor memory, so I hope I'm remembering that story right...

I agree with CeCe though that posture affecting symptoms seems plausible with the CCSVI theory.

M.A.