Need some help please-- new lesions/walking
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Notglumlot
- Newbie
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- Joined: Tue Jul 21, 2015 10:59 pm
Need some help please-- new lesions/walking
I've had q series of relapses this summer and am about to start Rituxan. I have a new lesion on my brain and some in my spine.... My walking has gotten much worse. Can I come back from this? Or does having new lesions mean that these new symptoms are here to stay?? I'm so scared. And confused about what this means. I've always thought that once symptoms appear, they stay as I've never really got back to how I used to be. Will rituxan be a help?? Thanks
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1eye
- Family Elder
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- Location: Kanata, Ontario, Canada
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Re: Need some help please-- new lesions/walking
I've wished upon that wishing star for about 10 years. You come to accept it. You "think past it." Good things still happen in your life. Magical things. Rituxan I don't know about. So many drugs that were not there when my friend died of PPMS in 72. Lots of possibilities. Now there's biotin too. Neurologists won't give me any of the "RR" or Disease Modifying drugs.Notglumlot wrote:I've had q series of relapses this summer and am about to start Rituxan. I have a new lesion on my brain and some in my spine.... My walking has gotten much worse. Can I come back from this? Or does having new lesions mean that these new symptoms are here to stay?? I'm so scared. And confused about what this means. I've always thought that once symptoms appear, they stay as I've never really got back to how I used to be. Will rituxan be a help?? Thanks
I am one of the lucky ones. I don't need them, because my progression has mostly gone. I had the CCSVI procedure more than 5 years ago. It didn't fix me, but it went a long way. One of the best things is it has made me a bit more patient. I must be, I've lived with the Canadian Conservative government for 4 years. But tomorrow Canada votes. I've got some time left. Something good may still happen to improve my lot. Yours too, even if your symptoms stay.
The local library lends me books on CD, and some movies. I have fun with personal care workers. We play scrabble. Loneliness bothers me a bit because I am shut in since I lost my driver's license. I will survive. So will you. I hope rituxan or whatever you end up taking does some good.
If you're a Canadian, vote NDP! I did, in the advance polls.
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Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Re: Need some help please-- new lesions/walking
Can I come back from this?
Yes, absolutely!
"I've always thought that once symptoms appear, they stay as I've never really got back to how I used to be."
Every case is different. And while this may be true for some, it is not true for all.
When it comes to MS, the rule is that there are no rules - again, every case is different.
Yes, absolutely!
"I've always thought that once symptoms appear, they stay as I've never really got back to how I used to be."
Every case is different. And while this may be true for some, it is not true for all.
When it comes to MS, the rule is that there are no rules - again, every case is different.