Undiagnosed but MS still on table

[Mamabear]

Hello All. Hope somebody may be able to help me. It's been about a year and a half since symptoms started. My first symptom was the side of my calf being numb. That prompted a visit to my doctor. Then within the next two weeks I got many more symptoms. They were as follows:

Muscle spasm
Numbness and tingling
Problems with speech
Trouble thinking
Difficulty and pain walking
Urge to have bowel movements constantly for 3 days
Raynaud's phenomenon once

Family doctor ruled out B12, Iron, thyroid, Lyme, lupus, sjogrens( as my grandmother had this) back X-ray,


Referred to a neurologist. MRI showed a total of 19 small lesions but not in a particular pattern to MS. I had what I thought was a second attack where my legs went numb from the waist down, not completely, I could still walk. MRI after this showed no change, so my neurologist said he was not going to see me anymore, as I was fine. I made him refer me to a specialized MS clinic where I am currently being seen.

Current doctor says I am ok for now but will continue monitoring me. I, since the beginning have been dealing with weakness in right arm and leg, muscle spasm in inner thigh, headaches, extreme skin sensitivity, dizziness, extreme fatigue, moodiness. Symptoms worsen the week before menstruation. And right now symptoms are back, been in bed for 2 days.

Just don't know what to do. Feel as if it's just a waiting game before being actually diagnosed. Have 2 young children and can't be the mom I like to be when I feel like this.

If there is anybody in the same situation that might have some advice to offer, I would greatly appreciate it. Also if anybody has had any luck easing symptoms and feeling better through diet and more natural means, I would love to know how.

[lyndacarol]

Hello All. Hope somebody may be able to help me. It's been about a year and a half since symptoms started. My first symptom was the side of my calf being numb. That prompted a visit to my doctor. Then within the next two weeks I got many more symptoms. They were as follows:

Muscle spasm
Numbness and tingling
Problems with speech
Trouble thinking
Difficulty and pain walking
Urge to have bowel movements constantly for 3 days
Raynaud's phenomenon once

Family doctor ruled out B12, Iron, thyroid, Lyme, lupus, sjogrens( as my grandmother had this) back X-ray,


Referred to a neurologist. MRI showed a total of 19 small lesions but not in a particular pattern to MS. I had what I thought was a second attack where my legs went numb from the waist down, not completely, I could still walk. MRI after this showed no change, so my neurologist said he was not going to see me anymore, as I was fine. I made him refer me to a specialized MS clinic where I am currently being seen.

Current doctor says I am ok for now but will continue monitoring me. I, since the beginning have been dealing with weakness in right arm and leg, muscle spasm in inner thigh, headaches, extreme skin sensitivity, dizziness, extreme fatigue, moodiness. Symptoms worsen the week before menstruation. And right now symptoms are back, been in bed for 2 days.

Just don't know what to do. Feel as if it's just a waiting game before being actually diagnosed. Have 2 young children and can't be the mom I like to be when I feel like this.

If there is anybody in the same situation that might have some advice to offer, I would greatly appreciate it. Also if anybody has had any luck easing symptoms and feeling better through diet and more natural means, I would love to know how.

Welcome to ThisIsMS, Mamabear.

As you probably know, your symptoms are common to many conditions. Your family doctor has a good start at ruling out likely causes for your symptoms. (By the way, do you have the actual number results for your serum B12? It is a good idea to request your own copy of any test results – it is best to have the actual numbers.)

In addition to vitamin B12 and iron, I hope other nutrient testing has been done. Since over 1/2 of the world's population is vitamin D deficient (and I have seen estimates of at least 70% deficiency in the US), it is important to check this; I urge you to request a vitamin D test (a.k.a. the 25-hydroxy D test) from your GP (do not take supplements before testing) – it is a relatively inexpensive blood test (about $50-$70, but most insurance will cover it); I believe it may give you valuable information.

In the meantime, you can find good, current information on the following website:

http://www.GrassrootsHealth.net

[lyndacarol]

Family doctor ruled out B12, Iron, thyroid, Lyme, lupus, sjogrens( as my grandmother had this) back X-ray,

In addition to your family history of Sjogren's, I wonder if your doctor tested for this because one of your symptoms is dry eyes. If so, you may find the following article interesting:

http://www.endocrinologyadvisor.com/gen ... le/434062/

Vitamin D Deficiency Associated with Dry Eye Syndromes