Hello

[JasonV]

Never very good with introductions and I do apologize for such a short introduction.
I should have looked for some place like this a long time ago when I was first found out I had MS, found out on my thirtieth Birthday.

[lyndacarol]

Never very good with introductions and I do apologize for such a short introduction.
I should have looked for some place like this a long time ago when I was first found out I had MS, found out on my thirtieth Birthday.

Welcome to ThisIsMS, JasonV. We are glad you found us. We invite you to join in our discussions, ask questions, and share experiences.

Wow! An MS diagnosis on your 30th birthday – what a crummy present!

[JasonV]

thanks lyndacarol
When I went to the ER because of my entire left side going numb I thought something else was going on, the doctors ran test, MRI, blood, you name it(spinal tap was the worst).
when the results came back they thought it was ether brain Cancer or MS, took some samples and turned out to be MS instead of Cancer so I must admit it was a better gift than what I could have had.

That had been five years ago, felt kind of alone for a while because of things going on in life which was when I figured I would look for a community and I found this one and I am thankful to have done so.

[lyndacarol]

When I went to the ER because of my entire left side going numb I thought something else was going on, the doctors ran test, MRI, blood, you name it(spinal tap was the worst).
when the results came back they thought it was ether brain Cancer or MS, took some samples and turned out to be MS instead of Cancer so I must admit it was a better gift than what I could have had.

That had been five years ago, felt kind of alone for a while because of things going on in life which was when I figured I would look for a community and I found this one and I am thankful to have done so.

In all the blood tests done at the time of your diagnosis, I am curious to know if a vitamin D test, which is called the "25-hydroxy D," was done. (Or have you ever had one done since that time?)

If so, would you share the actual test number results with us? (It is a good idea to ask for your own copy of any test results. I keep my own file of test results here at home – it is important to have the actual numbers; it is not good enough to hear "fine" or "normal" from the doctor's office.) In January, I had this test and the result was 24 ng/mL – frankly deficient. The lab's reference range was 30-100.

Over 1/2 of the world's population is deficient in vitamin D. (For the US alone, the estimate is over 70%.) AND neurological symptoms can result from vitamin D deficiency. It is easy to check and would be a shame to miss (because it is easy to treat). It is possible that some of your symptoms may stem from vitamin D deficiency.

So… If you have not had the 25-hydroxy D test, I suggest that you call your GP (family doctor) and request one (the cost is usually $50-$70, but it is usually covered by insurance).

[JasonV]

I don't remember the numbers but I do know they was extremely low, low enough that the doctor was actually worried and gave me an injection.

[lyndacarol]

I don't remember the numbers but I do know they was extremely low, low enough that the doctor was actually worried and gave me an injection.

That is alarming to hear, Jason. If possible, call the doctor's office tomorrow and request that they send you a copy of those test results. (They are your test results! You or your insurance paid for them.)

I would expect that your doctor, after finding your level was extremely low and giving you an injection, would continue to monitor your vitamin D level – testing at least twice a year (or maybe even every 2 or 3 months). It is important not only to reach the targeted optimal level, but to maintain it. (Your doctor can only know this if he tests.) If this has not been done (and the only test was done 5 years ago!), I think you have every reason to request one be done again now.

Vitamin D is critical to every system in the body – nothing works right without enough. It is absolutely necessary to have an optimal amount. I think there is a very good chance that your current symptoms are related to vitamin D.