New here.....and VERY embarrased

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.
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Limarie
Newbie
Posts: 2
Joined: Thu Nov 17, 2016 6:40 am

New here.....and VERY embarrased

Post by Limarie »

Hello all......my name is Lisa. I am 42 years old. Recently diagnosed with Sjogren's Syndrome (April 2016). I was also diagnosed with Pars Planitis in Sept of 2015. I have been having a myriad mystery symptoms this past year but something happened last night that I just can't seem to deal with.

I woke up around 3 a.m. to go to the bathroom. On the way to the bathroom I noticed that my sleep pants were wet. When I sat down to pee, I realized my panties were SOAKED!! And my sleep pants were more than just wet! So I emptied my bladder the rest of the way, cleaned myself up, put on dry bottoms and thankfully my bed was not wet! So I laid in bed for over an hour BAWLING!!!! I have been having problems with urgency & frequency lately. But waking up wet....was a first. And I hope the LAST TIME!!!

Some of my "mystery symptoms" include: clumsiness, numbness/tingling in toes & heels, "bee-like" stings on tops of feet, trouble swallowing (despite being on a saliva stimulator) and now the bladder control.
These issues don't happen everyday. I may go weeks without experiencing them. Even then I don't experience all of them.

I see my Rheumy again on 12/12 but I don't know if I should wait that long??? I am dreading going to bed tonight already!! I am already cutting off all fluids at 8 p.m. (I go to bed between 9:30 & 10) and I don't have a UTI or anything like that (just getting over bronchitis & PCP ran blood work and no sign of infection in blood work) and no other signs of infection noted.

So.....what I am getting at is.....since I already have an autoimmune disorder, and I have Pars Planitis (having PP is common in MS patients, for those that don't know) and now the bladder issue......should I be concerned about MS? Would I be justified in moving my Rheumy appt up?

So sorry this turned into a novel. I am just concerned. It seems like everyday since my Sjogren's diagnosis, I wake up and it's something new.
Thanks in advance for any replies!

Lisa
Snoopy
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Posts: 244
Joined: Wed Apr 13, 2016 11:14 am

Re: New here.....and VERY embarrased

Post by Snoopy »

Hello Lisa.

I'm sorry, I know that would have been quite embarrassing for you. I'm not a medical professional so I don't know if MS is a concern.

I would definitely see if you could get in with your Rheumatologist sooner to discuss your current concerns. There is no symptom that is exclusive to MS including Pars Plaints. Many other conditions, vitamin/mineral deficiencies, medications and mental health disorders can all cause similar symptoms as those seen in MS. One of the first things you can do is check the side effects of the medications you may use. It's not uncommon to think something else is going on when in reality it can be due to medication side effects.

Try not to stress over wetting the bed, it happens, but it doesn't necessarily mean it will happen again. It could be a "one off" type issue. Have you had any waking hour problems such as leaking, urgency or wetting yourself? As we get older urinary issues can come up, it can be due to changes in hormones or even lack of pelvic muscle tone. In a deep sleep cycle (REM) it's possible you didn't know you needed to go until it was too late. If you do take medications and it's taken at bedtime this could have contributed to wetting yourself. These are just some thoughts and I have no way of knowing if any of it fits for you.
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Scott1
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Joined: Wed Oct 22, 2008 2:00 pm

Re: New here.....and VERY embarrased

Post by Scott1 »

Hi,

I also feel for you. It can't be easy.

Snoopy is right. You will have to check the medications you take very carefully. Also, as you have a problem with saliva you must go for a dental check up far more often than other people would. The saliva helps your tooth enamel stay intact by preventing a bacterial buildup. You don't have that protection.

The only thing I can suggest you try to do, and it will difficult to get someone to agree, are more in-depth tests than the standard ones you have already had. There is a weak association with many genetic and environmental triggers but a fasting amino panel and a uric acid test (not urea) might show some readings that are outside the normal range and give you a starting point. I would also see if you can see an endocrinologist for more detailed studies.

What you have is not well understood. You will probably have to think outside the box. I'm sure many of us will have suggestions and experiences to share.

Best wishes.
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