After my first round of steroids
After my first round of steroids
I had a lot of 'symptoms' previously, including a ton of sensory issues.
Following the 6 day IV steroids and month tapering off, most of the symptoms are gone. The remaining symptoms that cause me concern now: I get what feels like a 'hot' feeling in my head, comes and goes, but feels like a heat wave in my skull, at the back to the top of the head. I also get pain in the right side of my mouth. Along the top row of gums on the right, and in my cheek. Sometimes it affects my tongue on this side as well.
Anyone felt anything remotely familiar?
The gums issue I thought may be gum disease (I brush and floss regularly), but I don't have bleeding gums or any visible signs of problems with my gums/on my cheek. The sharp shooting pain I occasionally get in my cheek leads me to believe that it's neuropathic.
Brushing my teeth/drinking water will calm the mouth sensation for a bit, and then it returns. Oddly enough, sublingual B12 tablets seem to 'coat' my mouth, and in turn, seem to have a positive effect on the mouth pain. Am I imagining things?... or could it possibly be B12 deficiency? (I was tested for B12 deficiency as part of my MS diagnosis in Feb/March of this year, but no b12 deficiency was noted, however I am aware that B12 deficiency is commonly misdiagnosed).
Following the 6 day IV steroids and month tapering off, most of the symptoms are gone. The remaining symptoms that cause me concern now: I get what feels like a 'hot' feeling in my head, comes and goes, but feels like a heat wave in my skull, at the back to the top of the head. I also get pain in the right side of my mouth. Along the top row of gums on the right, and in my cheek. Sometimes it affects my tongue on this side as well.
Anyone felt anything remotely familiar?
The gums issue I thought may be gum disease (I brush and floss regularly), but I don't have bleeding gums or any visible signs of problems with my gums/on my cheek. The sharp shooting pain I occasionally get in my cheek leads me to believe that it's neuropathic.
Brushing my teeth/drinking water will calm the mouth sensation for a bit, and then it returns. Oddly enough, sublingual B12 tablets seem to 'coat' my mouth, and in turn, seem to have a positive effect on the mouth pain. Am I imagining things?... or could it possibly be B12 deficiency? (I was tested for B12 deficiency as part of my MS diagnosis in Feb/March of this year, but no b12 deficiency was noted, however I am aware that B12 deficiency is commonly misdiagnosed).
I've yet to sit with a doctor and read over the blood results. I just know they were to tell me if anything cropped up. The answer I got was a 100% on the blood work, that I was healthy (told more so than a lot they see). I was more concerned about thyroid than anything, which checked clear.
My chiro suspects b12 deficiency like I do. Maybe mild, hard to say really. Taking the b12 is not going to hurt.
My chiro suspects b12 deficiency like I do. Maybe mild, hard to say really. Taking the b12 is not going to hurt.
Hi Nenu,
I just finished a round three weeks ago, and I had the weird heat/numbness sensation through the top of my head for about a week afterward. I thought it was due to high blood pressure but my doc checked and it was fine.
I didn't do a taper though, my neuro put me on IV for four days then full-stopped.
Weird about the mouth, I hope it resolves itself soon.
I just finished a round three weeks ago, and I had the weird heat/numbness sensation through the top of my head for about a week afterward. I thought it was due to high blood pressure but my doc checked and it was fine.
I didn't do a taper though, my neuro put me on IV for four days then full-stopped.
Weird about the mouth, I hope it resolves itself soon.
I've only had IV steroids once. My neuro had me do them one day then put me on the oral ones. The orals of course do the taper but why didn't I have multiple days of IV steroids? I was too early in my diagnosis to really know what was happening and was unable to ask intelligent questions. I didn't notice that they did anything for me.
Marcia
Marcia
Marcia