Bracing to get the diagnosis.

[worriedincanada]

WEll,

maybe some of you remember my earlier posts. I was pretty concerned that my girlfriend was showing some symptoms of MS and came here to try and get some more info....

Since the posts, things are closer to being figured out. SHe had an MRI (w/o contrast) because it was initally to figure out headaches (not due to suspected MS). The results are in and she has an appt in a week or so. We were given the impression something was found.

I have been doing alot of research and preparing for the MS diagnosis while she is (at least was) still thinking it was sinusitis (which has basically been ruled out). Her intial symptoms were: dizziness, headaches that appear in one spot and disappear pretty quick, exhaustion that just hits her and really lays her out, achy and heavy limbs....These were the symptoms that only happened in the cooler months, but now she is getting a few new symptoms: Sensitive scalp, very sensitive deep in the sinus area (especially when she breathes in), She is hot/cold on the drop of a hat (even though everyone else is fine), and the most scary of all, had some tightness around her right side of her chest (possibly MS hug??)

I want to tell her that she needs to get ready to hear the letters MS, but I really don't want to scare her in case it may be something else. She is alreay worrying about her future, our future, etc...and she is so sad. I feel helpless.

Should I really make her be aware this could be MS? Does this sound like MS to you folks? Based on internet searches and research, it does to me. The only thing is she has NO numbness or tingling anywhere and heat (hot showers, baths) aren't affecting her.

Maybe I don't even need a response, I just need to get this out. This is avery hard on both of us since she has been dealing with this for the last 3 winters and now it seems to have held on longer this time. I have seen my active, happy healthy gf turn into someone I don't know and it breaks my heart to see her like this.

Thanks for listening....

[patientx]

Can you get a copy of the radiology report? It seems cruel for the doctor's office to call and say the results are in, see you in a week. Though the radiology report isn't the final word, I would want to read it beforehand.

[Bubba]

Worried..... Remember, worry is intrest paid on something that has not happened yet (diagnosis). I am by no means an expert, but those symptoms can be related to alot of thing. I dont have any tigliness or numbness either, but I have MS. I am not telling you to not be concerned, but (and I know its easier said than done) wait and see what the doctor says. You are doing the right thing by educating yourself. If MS is the dx, then she will really need your love and support. I am not telling you not to worry, but on the other hand, I cant say "Worry"!

[LoveActually]

I agree with Bubba. It's great that you're educating yourself with MS but I think right now, your gf just needs her bf. I'm sure she knows that it could be an MS dx, she just doesn't want to speak about it because if she does, then it becomes real. Make sense? Us women don't make sense sometimes.

I am married and going through the beginning steps of figuring out what's happenin' in my head, MRI, EMG and EEG coming up. My husband is just there for me and that really helps. When I have a bad day and just need to cry, he holds me. Take a break from all your searching and take your gf out, hold her, love her and make her feel and know that you are there for her and love her no matter what. That will help her tremendously. I would leave the "it may be MS" convo to the docs.

All the best.

[robbie]

love her and make her feel and know that you are there for her and love her no matter what. That will help her tremendously. I would leave the "it may be MS" convo to the docs.

this is the best thing you could do.

[Bubba]

I agree with Bubba. It's great that you're educating yourself with MS but I think right now, your gf just needs her bf. I'm sure she knows that it could be an MS dx, she just doesn't want to speak about it because if she does, then it becomes real. Make sense? Us women don't make sense sometimes.

I am married and going through the beginning steps of figuring out what's happenin' in my head, MRI, EMG and EEG coming up. My husband is just there for me and that really helps. When I have a bad day and just need to cry, he holds me. Take a break from all your searching and take your gf out, hold her, love her and make her feel and know that you are there for her and love her no matter what. That will help her tremendously. I would leave the "it may be MS" convo to the docs.

All the best.

Well said!!!