Wow, it's almost that time. I've really appreciated reading about all of your experiences. Of course, like MS, no two cases are the same but just knowing that there are others on the same journey gives me comfort.
I go in for testing on Wednesday and based on the results I may (probably will) have the procedure done on Thursday. I have SPMS and my symptoms have more to do with mobility than cognition so I'm not expecting this to be a magic bullet but I like the thought that I'm being proactive.
All the best,
Kate
Sept 2nd and 3rd
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cheerleader
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Re: Sept 2nd and 3rd
Hi Kate,
Our forum guidelines state that custom avatar images should be within 100 pixels wide in order to prevent distortion of the column widths. It would be great if you could resize your photo to fit within these guidelines. Please refer to this post in the Forums FAQ.
Thanks.
NHE
Welcome to ThisIsMS. I hope that everything goes well for you with testing, and treatment as well if called for, at Stanford.katelayne wrote:Wow, it's almost that time. I've really appreciated reading about all of your experiences. Of course, like MS, no two cases are the same but just knowing that there are others on the same journey gives me comfort.
I go in for testing on Wednesday and based on the results I may (probably will) have the procedure done on Thursday. I have SPMS and my symptoms have more to do with mobility than cognition so I'm not expecting this to be a magic bullet but I like the thought that I'm being proactive.
Our forum guidelines state that custom avatar images should be within 100 pixels wide in order to prevent distortion of the column widths. It would be great if you could resize your photo to fit within these guidelines. Please refer to this post in the Forums FAQ.
Thanks.
NHE
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Quest56
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- Location: Northern Calif Monterey Bay Area
- Contact:
Hi, Kate,
I look forward to hearing of many good things to come for you as a result of this experience. My turn is fast approaching.
Wishing you the best, and looking forward to sharing positive experiences and outcomes over the coming weeks...
--Tracy
I look forward to hearing of many good things to come for you as a result of this experience. My turn is fast approaching.
Wishing you the best, and looking forward to sharing positive experiences and outcomes over the coming weeks...
--Tracy
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone
Former Ampyra User
Regular Botox Bladder Injections
300mg d-Biotin / day
Stent in left and right IJVs
SPMS
Copaxone
Former Ampyra User
Regular Botox Bladder Injections
300mg d-Biotin / day
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CureOrBust
- Family Elder
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- Location: Sydney, Australia
Hi Katie,
I will be there the same time for my testing and procedure. Hope to see you there. We will be staying at the Sheraton and we are flying in tomorrow.
Later, Cat
I will be there the same time for my testing and procedure. Hope to see you there. We will be staying at the Sheraton and we are flying in tomorrow.
Later, Cat
Holly - Shine On You Crazy Diamond - Pink Floyd
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
Last edited by CureIous on Sat Oct 03, 2009 3:02 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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ErikaSlovakia
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Re: Sept 2nd and 3rd
Hi Kate!katelayne wrote: I go in for testing on Wednesday and based on the results I may (probably will) have the procedure done on Thursday.
Kate
Good luck!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Hi Kate,
Nice to meet you! Good luck at Stanford and keep us posted:)
L
Nice to meet you! Good luck at Stanford and keep us posted:)
L
Last edited by LR1234 on Tue Sep 01, 2009 4:16 am, edited 1 time in total.
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whyRwehere
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Kate, i too am SPMS and like you I feel really good to have taken ,my opportunity to do something about this when I had no real options left.
I hope you have clear pcitures of your veins and can feel really comfortable about what you decide to do.
Good luck to you and Cat!!
marie
I hope you have clear pcitures of your veins and can feel really comfortable about what you decide to do.
Good luck to you and Cat!!
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics