Dr Haacke's website is soliciting volunteers !!!!!!

ozarkcanoer · Post by **ozarkcanoer** » Wed Oct 21, 2009 1:03 pm

I just 1 minute ago went to Dr Haacke's website and clicked the "be a volunteer" button. Yesterday it said "coming soon", but today there was a from to fill out to volunteer, SO I FILLED IT OUT. I wanted to let you all know even though I'm just a newbie here. I assume I'm volunteering just for an imaging study. I'm anxious for them to reply !!!!

ozarkcanoer · Post by **ozarkcanoer** » Wed Oct 21, 2009 1:11 pm

Sorry, the website is ms-mri.com. The "be a volunteer" button is on the upper left corner.

Sharon · Post by **Sharon** » Wed Oct 21, 2009 2:50 pm

Good information - BTW WELCOME "ozarkcanoer" This is interesting that Haacke got up and running as fast as he did. Hope he fills his volunteer quota fast -- we need the published data.

Sharon

Needled · Post by **Needled** » Wed Oct 21, 2009 3:00 pm

Volunteer #2 signed up. Don't know what I volunteered for or where, but I'm game if I can help move it along!

Sharon · Post by **Sharon** » Wed Oct 21, 2009 3:06 pm

Just added my name to the list.

CRHInv · Post by **CRHInv** » Wed Oct 21, 2009 3:19 pm

Sharon - Don't you have stents? I thought he would be looking for people who haven't been treated. I know I am missing something, clue me in!

ozarkcanoer · Post by **ozarkcanoer** » Wed Oct 21, 2009 3:23 pm

Dr Haacke is looking for iron deposits in MS brains. So someone who has had the stents would still have the old iron still inhabiting the brain (I assume). So I think Dr. Haacke is looking for stenosis PLUS iron deposits. Does this make any sense ?

julu · Post by **julu** » Wed Oct 21, 2009 3:35 pm

OK, this is the kick in the old arse that I needed to get me to officially join this site! I'm a newbie and yet I've been lurking around the CCSVI forum for a long time

I also have volunteered on Dr. Haacke's site. It's quite a distance from me, but some things are important enough to make a priority. This is important.

cheerleader · Post by **cheerleader** » Wed Oct 21, 2009 3:43 pm

wow..this is so cool. Good find, Ozark! Looks like the good doc is signing up patients, doctors and researchers. Look at the list of "collaborators" to see where the CCSVI testing sites are located. So far only 2 in the states, in Michigan. One in Germany, a couple in western Canada, one in Toronto.
http://www.ms-mri.com/collaborators.php
Also a place to donate thru paypal -for non-MS folks like me:)
Dr. Haacke has been updating the site every few days, so maybe more sites will sign up. This is the power of the internet and grass roots...amazing.
cheer

ozarkcanoer · Post by **ozarkcanoer** » Wed Oct 21, 2009 3:52 pm

I live in St Louis, so my hubby computed the drive to Detroit and Dr. Haacke would be just 9 hours (more if it's snowing in Michigan, LOL). So I'm just waiting for a reply !!!

BTW, I was dxed Jan 2008, RRMS, 40 some lesions, positive LP, double vision, insomnia, fatigue, depression. I'm one of those who has a high lesion low but low symptoms. Lots of symptoms in my head, none below my neck. I do Copaxone.

Needled · Post by **Needled** » Wed Oct 21, 2009 4:02 pm

My first thought (and wish) is he's collecting data on where volunteers are located. Then when he gets his 10 or so people within, say, a 100 mile radius of a major university, like Yale or Harvard in my case, he can call them up and say, "Hey, Yale, I've got 10 people already lined up for you. Want to get on board?" Oh, I hope that's how it's going to work.

Sharon · Post by **Sharon** » Wed Oct 21, 2009 4:05 pm

CRHInv

Yes, I have stents. If Haacke can use my brain to see iron deposits, I'm all for it. I am willing to spend the money to go to Michigan if he thinks I would fit his volunteer parameters. We shall see

Sharon

ozarkcanoer · Post by **ozarkcanoer** » Wed Oct 21, 2009 4:07 pm

I live within 3 miles of one of the top medical school/biomedical research universities in the USA : Washington University in St. Louis. I wish I knew how to get them interested in this. My MS neuro is assistant professor of clinical neurology. I have an appointment with him in 3 weeks and will definitely talk to him about CCSVI. I'm a little nervous that he will just brush this whole thing off as a "flash in the pan".

bestadmom · Post by **bestadmom** » Wed Oct 21, 2009 4:51 pm

Hi Ozarkcanoer,

Why don't you contact the interventonal neuro radiologists and the university to get the ball rolling.

As many on this forum have stated, if there is stenosis, it should be fixed. It doesn't need to be related to ms. Hopefully you'll get someone on-board to at least do the testing and become an outpost for Dr. Haacke.

There is less of a chance of the neurologists buying into this without the data they need to prove the theory.

Sawdoggie · Post by **Sawdoggie** » Wed Oct 21, 2009 5:04 pm

I volunteered! Heck, Michigan is right up the road and I am already going to Buffalo in a couple of weeks. It is going to take studies to move this forward in the mainstream and the sooner the better!

I have also been forwarding this to my neuro's office where they have their own imaging center. I'd love it if they would bite.