I have been accepted by Dr. Haacke !!!!!!!

ozarkcanoer · Post by **ozarkcanoer** » Mon Nov 02, 2009 6:42 am

About 10 minutes ago I received an email from Dr. Haacke himself !!! He has accepted me into his MS-MRI study in Detroit !!!!!!!!!!!!! I can hardly control my excitement !!! Of course I immediately emailed his research coordinator to begin all the scheduling and arrangements. My husband and I will drive to Detroit one day, have the imaging done the next, then drive home the next day !!!!! I'll keep you all posted....

YIPPEE !!!!!!!!!!!!!!!!!!!

Edser · Post by **Edser** » Mon Nov 02, 2009 7:37 am

Excellent stuff,i hope it all goes well.

ozarkcanoer · Post by **ozarkcanoer** » Mon Nov 02, 2009 7:47 am

Thanks Edser....

More info... Dr. Haacke's research coordinator, Paula Morton, just called me. I have to get a blood test to make sure my kidneys are OK, something called a GFR, and have my medical records faxed to Detroit. Then I will have the imaging done within 30 days of the GFR test : that would be in November or maybe December.

We are going to drive to Detroit... a 9 hour drive. I just hope we don't have a snow storm on the way there or the way back. I'm just bursting with excitement !!!!!

mrhodes40 · Post by **mrhodes40** » Mon Nov 02, 2009 8:10 am

I can't wait to hear what comes of this stuff!

bestadmom · Post by **bestadmom** » Mon Nov 02, 2009 9:59 am

SO EXCITING!!

ozarkcanoer · Post by **ozarkcanoer** » Mon Nov 02, 2009 10:07 am

mrhodes40, I can't wait either. I just drove to my neuro's office to sign the release form to have my medical records copied. The receptionist said a copying company comes to their office to make the copies and it will get done sometime in the next month. Golly it takes a whole month to get my records copied !!!!!!

She couldn't be more specific.... grrrrr !

I also told the nurse that I need the GFR (glomerular filtration rate) blood test for kidney function.

So now I gotta wait... I'm not too good at waiting, LOL.

bestadmom · Post by **bestadmom** » Mon Nov 02, 2009 10:23 am

OC,

I'd be copying those records myself! I know what you mean about hating to wait.

Sawdoggie · Post by **Sawdoggie** » Mon Nov 02, 2009 10:28 am

A month sounds crazy. I called my neuro's office to get a copy of my records and MRI CD to send to Buffalo and Stanford and had everything before the end of the day. Waiting sucks!

Sharon · Post by **Sharon** » Mon Nov 02, 2009 10:41 am

Ozark -- great news -- I hope Haacke gets all his volunteers.
I signed up to volunteer, but he may not be taking anyone with the stents.

A suggestion on your records for the future - never leave a doctor's office without requesting a copy of the written record. Same thing goes with blood tests, CT's MRI's- always sign the piece of paper which authorizes release to you. You may have to pay a small amount of money for the copies.

Sharon

ozarkcanoer · Post by **ozarkcanoer** » Mon Nov 02, 2009 10:46 am

I asked the receptionist if my husband and I could copy the records ourselves and the answer was an emphatic NO. I have an appointment with my neurologist November 12 and I will see if it can be expedited. It is so hard to even see these doctors and get MY OWN records that I paid for. Dr. Haacke's research coordinator wants me to come in November but how can I when I am waiting for records !!!!!!

bestadmom · Post by **bestadmom** » Mon Nov 02, 2009 10:51 am

Can you ask Dr. Haacke's office to call and have them expedited?

mb

bestadmom · Post by **bestadmom** » Mon Nov 02, 2009 10:53 am

Will you be able to get results to know if you have stenosis?

ozarkcanoer · Post by **ozarkcanoer** » Mon Nov 02, 2009 11:02 am

I have a copy of my last MRI on CD and my husband is making a copy of it right now. I am going to Fedex the CD this afternoon to Detroit.

I don't know if I will get the of the MS-MRI results myself. They did tell me that the imaging is free for me. I think I will get the results because this isn't a blinded study, but I will ask.

As for expediting it, I guess I could ask. Frankly, after being stonewalled at my neruo's office an hour ago I'm not too optimistic. If I don't have the records by the 12th I am going to raise holy heck at my neuro appointment !!!

Loobie · Post by **Loobie** » Mon Nov 02, 2009 12:42 pm

Michigan?? Maybe I can have my one year stent check up done up there instead of having to fly to California. It would be awesome to just drive......

ozarkcanoer · Post by **ozarkcanoer** » Mon Nov 02, 2009 1:36 pm

Hey Loobie !!! When we go to Detroit we may take highway 70 to Dayton and then go north toward Lima and then up to Detroit. I grew up in a small town near Lima (called Russels Point). I'll wave to you as we pass Dayton !!!!!!