New to this site, but not new to the monster

msphoenix · Post by **msphoenix** » Sat Dec 12, 2009 11:37 am

Hi all!

My name is Erin, and I am new to this forum and website, but sadly not new to MS.

I was diagnosed (MRI, Clinical Eval @ Barrow's) in October 2005 with RRMS. Within two weeks of diagnosis, my husband of seven years left (long story) me to raise our beautiful twin girls and an amazing son. This left me without insurance, and so as a result, I am not on any injections or disease modifying treatments.

I finally have insurance coverage, and am due to be seen soon at the John Trotter MS Center at Wash University here in St. Louis.

I have lurked on your board for a while, but am encouraged by the overall feeling of this forum. When I see thread titles with the word "shit" in it, it makes me feel like this board, unlike others, is a more realistic place to be able to openly share the frustrations, highs, and lows associated with fighting this MonSter.

Hope to become a valuable member of this community, and if nothing else I hope to make you laugh, make you smile, make you think, and learn some things myself along the way.

LR1234 · Post by **LR1234** » Sat Dec 12, 2009 12:32 pm

Welcome Erin,

Although none of us want to have to be posting on an MS board, this is a great place for support and information.

I hope you find some info here that helps you, it sounds like you have been through a lot and deserve a break.

L

Vhoenecke · Post by **Vhoenecke** » Tue Dec 15, 2009 4:46 pm

I too am new to this form. I live in Saskatchewan, Canada. I am not new to MS. It killed my dad and I have had it for years but not diagnosed until Jan 2009 (long story). Our health care is good. On Copaxone Gov pays 14000/yr and I pay 3000/yr. The only thing not good is that on my own expense I have to get tested for CCSVI. Am going to try to get into clinic in Vancouver for MRV and Doppler. See from there whether I will be able to get procedure or not. All the bes to you people new to the site. I feel very comfortable here.

CarolineMcN · Post by **CarolineMcN** » Tue Dec 15, 2009 10:41 pm

Hi Erin,

Welcome to the Board. I am also new. I joined yesterday!

I'm sorry you are going through such a hard time. I wish I could reach through the computer and hug you!

I am also going to Vancouver, BC to get tested for the CCSVI. I already had the MRI done...but I have to now do the doppler and a couple other tests. I couldn't get all the tests completed last month b/c they didn't have all the right equipment. We spoke with them today and they are ready for me. So I'm crossing my fingers and toes!

Erin, I'm glad you found this board. I hope I can be helpful for you too. I was on another board...but this one seems a lot more imformative.

I also have young kids...mine are 7 and 5. They are my little inspirational monkeys to get better!!

Hugs,
Caroline
Nanaimo, BC
Canada