Search found 14 matches

by nairb86
Thu Mar 21, 2013 6:26 pm
Forum: General Discussion
Topic: PRMS
Replies: 2
Views: 1680

PRMS

Hi everyone:

Does anyone have any information on progressive-relapsing MS? Specifically typical initial symptoms and MRI results? I read somewhere that it attacks the neurons rather than the myeline. Any additional information would be helpful.

Thanks!
by nairb86
Tue Mar 19, 2013 12:23 pm
Forum: General Discussion
Topic: Which pharma drug in the pipeline has the most promise?
Replies: 13
Views: 3807

Re: Which pharma drug in the pipeline has the most promise?

Thanks -- I think even from this small thread, the message is -- it could be a hell of a lot worse.
by nairb86
Mon Mar 18, 2013 9:53 pm
Forum: General Discussion
Topic: Which pharma drug in the pipeline has the most promise?
Replies: 13
Views: 3807

Re: Which pharma drug in the pipeline has the most promise?

It gives me hope that medication like these plus a strict diet, exercise, and supplements might actually get me through this for a prolonged amount of time.
by nairb86
Mon Mar 18, 2013 7:58 pm
Forum: General Discussion
Topic: Which pharma drug in the pipeline has the most promise?
Replies: 13
Views: 3807

Which pharma drug in the pipeline has the most promise?

Which drug in the pipeline proposes the most promise?

Personally, I wish Rituxan would become available for MS patients. I am willing to take a bit of risk, although Tysabri seems way too risky for me.
by nairb86
Mon Mar 18, 2013 7:25 pm
Forum: General Discussion
Topic: Dramtic decrease in EDSS with Liver Transplant ? Why ?
Replies: 60
Views: 18055

Re: Dramtic decrease in EDSS with Liver Transplant ? Why ?

Fascinating -- thanks for the information.
by nairb86
Mon Mar 18, 2013 11:31 am
Forum: General Discussion
Topic: Dramtic decrease in EDSS with Liver Transplant ? Why ?
Replies: 60
Views: 18055

Re: Dramtic decrease in EDSS with Liver Transplant ? Why ?

I am still in limbo-land, but I had elevated liver enzymes during my first recognizable flare. The doctor re-ran the test after the flare, and the levels were normal.
by nairb86
Sun Mar 03, 2013 9:03 pm
Forum: Introductions
Topic: How will my course play out?
Replies: 3
Views: 1522

Re: How will my course play out?

Interestingly I had pancreatitis when I was little from an adverse reaction on antibiotics I was taking. I just left a voicemail with me doctor to ask if my insulin levels have been checked, and if not, if they could please order the labs for me.
by nairb86
Sun Mar 03, 2013 8:43 pm
Forum: Introductions
Topic: How will my course play out?
Replies: 3
Views: 1522

Re: How will my course play out?

Fascinating. Thanks for the information.

I figure they will send me in for a LP after this next appointment. I hope I can get on treatment soon.
by nairb86
Sun Mar 03, 2013 6:43 pm
Forum: Introductions
Topic: How will my course play out?
Replies: 3
Views: 1522

How will my course play out?

Hi everyone, 26 year old male from San Francisco here. I've had really intense MS symptoms for the past 30 days and minor tremors for the 30 days preceding that. My symptoms include numbness and tingling in my left side (and now a bit on the right), cognitive issues that have since left, face numbne...
by nairb86
Thu Feb 28, 2013 9:59 pm
Forum: General Discussion
Topic: Does Uhthoff's Phenomenon presume MS?
Replies: 2
Views: 6253

Does Uhthoff's Phenomenon presume MS?

Hi everyone, Thank you in advance for your time. I am experiencing Uhthoff's Phenomenon (a bit of optic neuritis, tremors, and fatigue out of the shower) and other clear cut MS symptoms (numbness, cognition, slurred words). I am also fully in limbo-land in terms of a diagnosis (clean MRI of the spin...
by nairb86
Tue Feb 26, 2013 8:56 pm
Forum: General Discussion
Topic: Normal MRI -- intense MS symptoms; thoughts?
Replies: 2
Views: 1401

Re: Normal MRI -- intense MS symptoms; thoughts?

I should say that the MRI was of my cervical, thoracic, and brain, all with and without contrast.
by nairb86
Tue Feb 26, 2013 8:44 pm
Forum: General Discussion
Topic: Normal MRI -- intense MS symptoms; thoughts?
Replies: 2
Views: 1401

Normal MRI -- intense MS symptoms; thoughts?

Hi everyone: I am a 26 year old male, and I just received word that my MRI was returned normal. To my surprise they indicated there are no lesions. I am at the place where I have been having intense MS symptoms for about a month. I've had everything from tremors, loss of cognition, speech difficulti...
by nairb86
Sat Feb 16, 2013 10:02 pm
Forum: General Discussion
Topic: Fumaderm/BG-12 and PML
Replies: 1
Views: 1840

Fumaderm/BG-12 and PML

Presuming Fumaderm is nearly identical to what will be shipped with BG-12, has there been a substantial number patients taking this medicine receiving PML? I can't seem to get a straight answer.

Thanks!
by nairb86
Fri Feb 15, 2013 3:24 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: JCV and BG-12
Replies: 35
Views: 15339

JCV and BG-12

Do we know if people who test positive for JCV will be be at more risk to adverse effects on BG-12?

Thanks so much,

Brian

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