Search found 62 matches

by Hope66
Sun Feb 13, 2011 3:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Preparation for appt in Barrie on Tuesday (15FEB11)
Replies: 5
Views: 2287

Thanks Mavis!
by Hope66
Sun Feb 13, 2011 1:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Preparation for appt in Barrie on Tuesday (15FEB11)
Replies: 5
Views: 2287

Preparation for appt in Barrie on Tuesday (15FEB11)

Hi all... Sorry if this is a dumb question, but I've been waiting so long for this appt I don't want to screw it up! Is there anything I need to do to prepare? I suppose what I'm wondering is if I should avoid eating/drinking before the scan. I don't ever recall reading anything in this regard and m...
by Hope66
Tue Oct 12, 2010 3:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 39983

All this topic is about how Barb is doing, might not be my place but can we stick to this and see how Barb is doing.... Ok but getting off topic never seems to matter until there is a comment posted that does follow the "party line". I am glad Barb is doing well and I hope she continues t...
by Hope66
Tue Oct 05, 2010 3:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Globe and Mail Article: Epilipsy Surgery
Replies: 0
Views: 1646

Globe and Mail Article: Epilipsy Surgery

I just read this article this afternoon. I've included the link below. It made me wonder what kind of scientific process this surgery, brain surgery no less, went through in order to become accepted practice. And further still, why is it not being offered to epliepsy patients who, according to the a...
by Hope66
Tue Jun 29, 2010 3:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: On a personal note...
Replies: 12
Views: 3767

Thanks all!

Thanks so very much for all your kind and thoughful replies. I really appreciate it. Magoo...yes, you're right, they would be there if I asked in a heartbeat. BTW, I'm 44, single, never married, no kids (though I've had a few long term relationships)...oh, and my name IRL is Rhonda too! And I think ...
by Hope66
Mon Jun 28, 2010 4:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: On a personal note...
Replies: 12
Views: 3767

On a personal note...

Let me first say that I have a great family. I love them all and I know they love me. Nonetheless I am dismayed at the fact that they pay little attention to a) my MS (which do date is largely invisible) and b) that unless I directly press them, they pretty much avoid any MS discussion including any...
by Hope66
Sat Jun 26, 2010 11:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: problems with un-caring spouse
Replies: 41
Views: 9005

The Beer Theory (and The Spoon theory)

Hi Andie... So sorry your family is having a tough time. I think these "theories" may help explain to your hubby what MS fatigue feels like, and what it's like to live with it. And they're both pretty entertaining to read! The Spoon Theory http://www.butyoudontlooksick.com/articles/persona...
by Hope66
Sat Jun 26, 2010 11:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians-pay via a BANK LOAN
Replies: 7
Views: 2249

Hi Thoryrose... Just a couple of thoughts... If you are planning on getting a line of loan insurance the institution will no doubt offer you. That way they will have a harder time claiming CCSVI was a pre-existing condition. I think it will be tough but not impossible to get an unsecured LOC if your...
by Hope66
Tue Jun 22, 2010 6:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Surgery for Chiari...New Surgery for MS - Links?
Replies: 2
Views: 3029

To Vii

Wow...thanks so much for offering your perspective here. I

I have read your post twice and I have lot's of questions...

Right now, I must go to bed...I have a 'day' ahead of me tomorrow.

Again, thanks so much for posting...I'll be back...with questions!

be well Vii and family,
Hope
by Hope66
Tue Jun 22, 2010 5:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2697681

Me too Doc S...

I haven't had time to read through the rest of this very sad post tonight, but I will second mshusband's promise of $1,000. If that doesn't happen, or if another fund is created again, I would be more than happy to contribute. Dr Sclafani...I have no words to thank you enough for the time, energy an...
by Hope66
Tue Jun 22, 2010 3:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Surgery for Chiari...New Surgery for MS - Links?
Replies: 2
Views: 3029

New Surgery for Chiari...New Surgery for MS - Links?

My aplogies if this has been discussed here before, but I caught a bit of this on my local news station tonight and did a preliminary search... So here's a Dr (Chief of Neuosurgery at Sunrise Hospital in Las Vegas) treating a known condition with "new" surgery. By the sounds of things so f...
by Hope66
Mon Jun 14, 2010 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society of Canada “a house divided,” CEO says
Replies: 3
Views: 2988

Sorry Erinc...I didn't mean to interupt your thread...
When I first responded, it was my intention to speak to the issue you raised...then I just got carried away in my own issues...

Apologies,
Hope :oops:
by Hope66
Mon Jun 14, 2010 6:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society of Canada “a house divided,” CEO says
Replies: 3
Views: 2988

What I don't understand...

What I don't understand... The MS Society is a charitable organization which purports to serve and support the community of PwMS. The MS Society does NOT in any way shape or form have the right to decide for PwMS their choice, (or not) of which of the currently available medications they take or whi...
by Hope66
Sun Jun 06, 2010 4:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ***URGENT MESSAGE RE: MSSC BOARD ELECTIONS***
Replies: 15
Views: 5620

Good Goin' Chrystal

ttp://ca.linkedin.com/pub/valerie-hussey/6/49/91 I believe this is the Ontario Vice Chair's Linkinin site. If this is indeed correct, I'm at a loss to explain/digest etc...how it is that a publisher of kid lit with a degree in English Lit somehow thinks she has the power to influence the direction o...
by Hope66
Sun Jun 06, 2010 10:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: article "MS drug trial a fiasco"
Replies: 140
Views: 30972

"Lesions and other hallmarks of MS are detectable in an MRI, but "CCSVI" requires special training in interpreting the images.[/quote] I think this statement is misleading. I believe that MRI tech's are trained and skilled in reading the MRI's and that not all lesions are MS related. ...

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