This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Xia
How you doing.Just got back from our revisit to Katowice.
Hi Astrid
I just posted on the blocked stent thread re Doppler scans variability.
Kevin

Hi All My wife Iza had ballooning in the right jug and a stent in left valve in Katowice end of March(I think Badger left the day we arrived). She had three good months and then rapidly downhill. A Doppler follow up in July in Glasgow showed good flow in the right but restrictions in the left caused...

Hi Claire
We are in the same boat just having seen Dr Ludyga today with exactly the same hopes and results. We are in Angelo hotel and Iza is having a venogram tomorrow. I contacted you some time back when we were here in March and missed you by a day back then. Kevin

My wife Iza who also had the procedure in Katowice had problems staunching the bleeding from the entry wound. Her bruises were also very pronounced and spread for two weeks afterwards. She has an extremely high Omega 3 level in her blood due to her BBD and non gluten diet which creates enough of a b...

Hi I wrote about this here http://www.thisisms.com/ftopic-10953-30.html It's the top item on page 3 As I mentioned we are going to Dr Gilhooly at the Essential Health Clinic in Glasgow and will ask for blood tests to see if Iza can come off these anti-clotting agents in favour of Omega 3 or similar ...

Hi .We're from Edinburgh.My wife has SPMS and I have posted on the initial reactions after returning from Poland on the thread 'Some notes from abroad (Poland) and of course Badger who was with Tim is keeping us up to date on his own dedicated thread. I read somewhere that Tim had a concert organise...

Hi Xia Second week has been a bit up and down. Took advantage of the sunshine to take Iza and the dogs over the park and when my back was turned she went over and managed to land on the only two concrete slabs in the whole place. So a bruised bum and pride to add to the bruise on her leg which is sh...

Trent, perhaps your stenting enquiries might be better served on the thread Problems of angioplasty and stents which is a sticky above. http://www.thisisms.com/ftopict-8984.html I spent long hours agonising over this too but in the end i think you have to trust to the doctors.They always try balloon...

Hello, I am curious to know if medication is required after the procedure, and if so which medication is it. Do you need health insurance coming from Canada to get meds or do we pay cash Any help would be appreciated as my boyfriend heads to Poland May 26-27. Thank you Everyone as a matter of cours...

Hi Xia , Yes the journey back was a bit fraught but Iza rode it out well. Trent there was no problem with wheelchair assistance on the Polish side with helpful assistants in wheelchair logo tabards escorting us and arranging lift service and transport where necessary. It was only in Britain that it ...

While my veins were open, I experienced dramatic improvements in my symptoms. When they relapsed, all my old MS symptoms returned. Donnchadh So sorry to hear about your relapse-something I'm concerned about re the side that was ballooned. Did you have the opportunity to stipulate to stent or not to...

Trent wrote:Is anyone posting here PPMS? I was dx in late '80's and would love to know of other PPMSers results with Dr Simka.

I think edser from Cork in Ireland was PPMS and although haven't seen his name in the last month or so it might be worth searching his posts. I think he had pretty good improvements.

I put a query about post op supplements here
http://www.thisisms.com/ftopict-11063.html

Wondering when to start up the old regime of LDN and supplements again

Sorry for the double posting .Belt and braces I suppose.

Perhaps there's a thread that deals with this already but a search didn't throw up what I'm looking for. A week after op I'm wondering what supplements to start using again. pre-op we had daily LDN 3 ml. Vit D and Omega3 supps, Gingko Biloba, Colloidal silver and chlorella. Now we have definitely pu...

Is anyone posting here PPMS? I was dx in late '80's and would love to know of other PPMSers results with Dr Simka. Iza is SPMS and I don't personally know anyone with PPMS but I seem to remember reading on another thread about the relationship of azygous blockage and PPMS. Perhaps if someone with a...