Search found 26 matches

by lilaclomax
Wed Jun 02, 2010 4:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A (almost) 3 month update.
Replies: 8
Views: 3274

A (almost) 3 month update.

Hi all Yes I am being lazy and just copying and pasting my latest report from my tracking status... I do have a good excuse though as I am at work :D Just to summarise - I have had a great 11 weeks! :lol: CCSVI TRACKING MS HISTORY Name: Lilaclomax Male/Female: F Age: 32 Date & type of neurologic...
by lilaclomax
Sat Mar 27, 2010 11:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Home From Poland
Replies: 24
Views: 7523

Hello - this is such a funny time as I too am unsure if both my right and left jugulars are still open or if one or even both have collasped. With regards to the warm feet, just remember the amount of fluid that was pushed through our vascular system during out stay in hospital and the drugs too. Wh...
by lilaclomax
Sat Mar 20, 2010 11:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ella's adventures in Katowice
Replies: 117
Views: 31846

Great news :D We are coming home to the UK tomorrow lunchtime, it was really good to meet you, Ella, Robert and briefly others including Fraser. I have not noticed any big changes yet other than warm sweaty feet - yes they do smell for the first time in years (strange to get excited about that!) Fin...
by lilaclomax
Fri Mar 19, 2010 1:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UK: How long did it take to get to Poland, who did you fly?
Replies: 6
Views: 2474

We went with Wizz Air from Luton to Katowice - it took 1hr 45 mins to get here and is estimated 2hrs for the return journey (we are still here). The total return cost was £112 for 2 of us including an extra luggage allowance.
HTH
by lilaclomax
Thu Mar 18, 2010 2:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Total Number Liberated
Replies: 15
Views: 5406

Lelo wrote:My procedure the 11th of March, was the 138th Dr Ludzyka "Liberated".
:D :D :D
Great news, I was also treated by Dr Ludgya :D Although the next two patients treated yesterday were liberated by the second surgeon - I wonder how many he has liberated??
by lilaclomax
Thu Mar 18, 2010 8:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Total Number Liberated
Replies: 15
Views: 5406

It seems that the Euromedic team in Poland have 6 patients in per day, 3 - 4 days a week... There were 6 on Tuesday, 6 yesterday including myself and 6 people coming in this morning for treatment plus we met more patients at the eye clinic who are here for the procedure this week. A conservative fig...
by lilaclomax
Thu Mar 18, 2010 8:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: In Katowice, Poland now :D
Replies: 14
Views: 3643

Thank you for all your messages of support, I have a few people who visit TIMS over the last couple of days and the atmosphere is so positive and people very supportive. The scans, eye test are all organised well and the actual procedure over surprising quickly and without any major worries. I will ...
by lilaclomax
Thu Mar 18, 2010 7:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fraser's Adventures in Poland...
Replies: 71
Views: 19695

Hi Fraser

Both Robertnl and myself are staying at the Novotel and must have just missed you this morning. I hope everything went smoothly for your husband and maybe we can meet at the Qubus in the next couple of days.

It all went so smoothly for me too :D
by lilaclomax
Tue Mar 16, 2010 1:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: In Katowice, Poland now :D
Replies: 14
Views: 3643

In Katowice, Poland now :D

Good morning,

After a few delays we arrived here in the early hours, off for the diagnostic procedure (and hopefully to bump into a couple of TIMS people) this evening. Fingers crossed I have something to report back with later :D
by lilaclomax
Thu Mar 11, 2010 2:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Simka (Poland)
Replies: 436
Views: 156616

Re: Going to Poland!

Hi, Just wondering if anyone is going to Poland next week? We will be in Katowice on March 16th, with the testing and procedure on the 17th and 18th. Feeling nervous and excited at the same time.... Yes - I will be there as will one other I know of who comes on this site... My diagnostics are on Tu...
by lilaclomax
Wed Mar 03, 2010 8:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 388717

CCSVI TRACKING 03/03/2010 MS HISTORY Name: Lilaclomax Male/Female: F Age: 32 Date & type of neurological diagnosis: RRMS - since 2006 Lesion locations (most affected side, if known), number: Multiple lesions in cerebral hemispheres, lesion in right temporal fossa (potentially unrelated). Changes...
by lilaclomax
Tue Mar 02, 2010 5:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UK to Poland payment ???
Replies: 0
Views: 1626

UK to Poland payment ???

Which is the easiest, cheapest and quickest way to pay? I have the details now (took a while to get the correct address for the bank this morning) and have the money in our current account ready to go. I could do a bank transfer, this takes 3-5 working days and there are charges and their exchange r...
by lilaclomax
Sun Feb 14, 2010 4:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Possible MS 'cure' comes to Britain
Replies: 21
Views: 7974

From what I can see they are looking to have one trained Radiologist in Glasgow in the second half of this year (2010) with more ongoing training to follow. There is nothing about Endovascular procedures but I am sure that once a vacular issue has been diagnosed and they have the correct equipment t...
by lilaclomax
Sat Feb 13, 2010 4:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 270633

After my first two (awful) weeks (due to a relaspe and infection) on IBT I can now add some more information... My sense of smell has returned! I no longer sneeze or have a runny nose whilst at my workstation and food tastes so much better. I have always had sinus problems for as long as I can remem...
by lilaclomax
Mon Feb 08, 2010 1:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Calling Dr Simkas patients.........
Replies: 93
Views: 24376

lilaclomax, I'll be there also 16/17th March! Also for the old prices. Hope to see you there! Robert Hi Robert I have pm'd you :D pgm1 - I have not had times yet, just the dates but I was told that Dr Simka will try and accomodate times around you especially if you are flying in on the same day. We...

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